It's been quite a while since I posted

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bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 1/14/2010 9:22 AM (GMT -7)   
Hi Everyone..hope everyone is feeling the best that they can today. I want to say welcome to new members. I my self diagnosed in '07 and told 3-6 months to get my house in order (HEP C, end stage cirrhosis and all the wonderful things that goes along with it. Isn't it just wonderful when we can stump the DR. I had a TP eval in Aug'08 and physically felt I wouldn't make it to have a TP. Did a lot of praying and self searching and self pitying. Well, all of a sudden I started feeling better and my blood work was looking better all the time. My Dr was surprised and amazed on how well I started to get. My last appt was Jan 3 and she said my liver was at around 65% function and going up. YEAH! Bad news so is the quantity of the HEP C virus..I actually knew something was up because I had been feeling so good, almost normal for about 6 months and suddenly the brain fog, the aches and pains, the tiredness etc all started coming back quick. The good news is (I guess), I start treatment next month.
I sure have missed you guys. I have been working my butt off on the computer to try to get my son who is a Senior this year, a football scholarship and into college. I did not realize all the red tape. It would be easier to get in the white house (LOL)
Anyways, Connie how are you? and everyone else. Mind went blank for more names to ask how you are.FOG.........................................................
Will someone tell me if there is someplace where I can get an official or official-like (from experience) list of side effects from treatment smhair
I need to read some more messages to catch up
Take care and hang in there everyone
Don't Let the DRAGON get you down....Stand up and fight
Karen in Nevada


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/14/2010 1:00 PM (GMT -7)   

Hi, Karen!  Good to see you back here, but sorry to hear your viral load is up.  Ask your doctor about the new treatment that adds a 3rd drug (tenaprevir) and only has to be taken for 24 wks.  It's in final trials now, so you might be able to get in the trial (and of course it would cost you nothing.)  I had a bit of a scare with a "spot" on my liver, but MRI proved it wasn't cancer...probably just some scarring.  My viral load is low, so my hep doc said I could wait a year until the new treatment is widely available...but for those with high viral loads, she is recommending going on it now.

As for effects from the combo, here's a link to all things hep C:

http://hepatitis-central.com/hcv/hcc/toc.html

Don't be a stranger here and do let us know how treatment goes!

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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