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exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 1/15/2010 10:06 PM (GMT -7)   
Hello everyone,  I know its been a long time since I have posted.  Really don't have a good excuse.  I just wanted to let you all know Jerry is doing good.  Its been a tough road but well worth it.  Its been 5 months since his transplant.  Believe it or not there have been times after the transplant that seems much more difficult then prior.  I think the reason for that is you get your hopes up that once you get the transplant everything will be great.  Not so. You still have a lot of the symptoms you had prior plus the new ones from the medication.  That just about drove us both crazy.  The only reason I'm posting this is when we were waiting for three years for the transplant I depended on this forum to get me through the tough times (which it did) but also I wanted so badly to hear from someone to post that had their transplant.  So now I feel like I should be doing the same thing.  If there is any of you wondering what its like post transplant I will do my best to post some info.  Now that we are 5 months out our lives are starting to get back to normal.  LIttle things that I didn't think of when he was sick.  I just knew I was exhausted.  He now can take out the garbage!  Also DRIVING  OMG I couldn't wait for that. He had amonia problems so often  I've considered having a little get together of all the ambulance drivers and police I had here to help me get him to the hospital.  And all the Dr.  and nurses that have been so wonderful.  And of course the Donor.  We know nothing.  In a few more months we will be able to write a letter.  I just want to hug the family.  How do you thank someone for such a gift.  A little funny is Jerry had grey hair when he got sick (57 yrs old).  Well, he is resembling Elvis more every day.  His hair on his head and all his body hair (prior to being sick he had a lot but lost most of it) is coming back in Jet Black!!!  We are all getting a charge out of that including the Dr. I think of all you often.  I'm a little sad I don't know the new people so I need to get with the program and read the old posts.  I still see some familiar names.  I sure do miss John.  I keep thinking some day we will hear from him.  Would that be a nice surprise.
 
Keep the Faith, Jerry is living proof there are better times ahead.
JoAnn

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/16/2010 12:41 PM (GMT -7)   

JoAnn, I am SO glad to hear from you!  Also to know that Jerry is improving daily.  I wonder if his liver donor had black hair?  smilewinkgrin   We have another JoAnn here now.  But you are quite right--we desperately need people who have had transplants (or their caregivers) to post here!  We do have one new member (David) who also had a transplant about 5 mos. ago and is doing very well.

We're happy to have you back!  You have so much to offer others.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 1/16/2010 2:01 PM (GMT -7)   
JoAnn it is good to hear from you. So glad that Jerry is doing well. You are right, lot's of people think that the battle is over once the transplant is done. I was one of them until I became a member here. Anyways maybe now you can change your user name.............Exhausted no more.......sounds good to me.

Connie you are too funny, I laughed out loud on that one.

Have a great new life, but please keep in contact........your husband's story can give hope to the ones still struggling.

Thoughts and prayers...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 1/16/2010 3:09 PM (GMT -7)   

Connie and PG  I can't beleive you said that about the donor because we also thought it may have something to do with the donor ha ha.  It was good hearing from you two.  I will keep in touch.  Hey PG any calls from Johns family?

JoAnn

Your right PG I do need to change my Exhausted name.  Only problem is JERRY still itches.  Now its caused from the Prograf.  Its a different kind of itch.  Its caused by the nerve endings.  Unfortunately we are still sleep deprived.  I'm not complaining because he has tht NEW liver!!!!!

shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 1/16/2010 6:58 PM (GMT -7)   
JoAnn I am so glad to hear Jerry is doing well, I was thinking the same thing about the black hair. A freind of mine got his transplant 6yrs ago and he said he really thinks things change cause of donor..... he now likes foods he didnt like before and gets funny feelings about different things. He was very sick when he got his transplant but only for a short time his decline was in less than a year, so his recovery was very fast. He hadnt gotten to the stages most people get while waiting, he was working full time and collapsed at work......3 months later he was transplanted and back to work part time..... amazes me every time I see him.
I am just so happy he is doing well and takin out the trash lol
Sue
When I started counting my blessings my whole world turned around.


rainbeau
Regular Member


Date Joined Feb 2008
Total Posts : 39
   Posted 1/17/2010 9:37 AM (GMT -7)   
Great news Joann!
 
Been thinking and praying for you and Jerry.  So glad to see your post. 
 
Love and light, rainbeau

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 1/17/2010 9:48 AM (GMT -7)   
JoANN....so glad to hear from you. Good to know that Jerry is doing well.....you know...many years from now, you will look back at this and just sigh a big sigh!! The encouraging thing, is my brother in law is 18 years post liver transplant and he's still kicking hiney!! Now, if my husband could just get his......

This is kind of off the mark, but I had a friend whose son had cancer and had a stem cell transplant and was on anti rejection meds for that for a while. My point is, that while he was on the anti rejection meds, his hair grew back in jet black!! (he was blonde hair and blue eyed). Wondering if the meds could be the cause.......

Keep posting, it's very encouraging to hear from those who are on the other side of this........

Mer

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 1/17/2010 2:03 PM (GMT -7)   

Rainbeau  PLEASE e-mail me its on my profile. PLEASE

 

JoAnn

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