SD, please start a new topic soon and let us know about your doctor visits and how you are doing! Thanks for posting!
SD Grandma, I am sorry to hear how sick you are! You said your on a transplant list, the only time medical prof. dont HONOR drinkers is if you are actively drinking. Part of the labs will include random drug and alcohol testing, this is done even if you dont have a history of either. UNOS is the ones who make the match based only on meld, blood type size and age, as long as you are clean and sober. Of all the people I met at our center and group meetings only 2 were not related to chemical abuse. So I dont understand why you were told that. Different areas are more difficult because of availability. New England the average meld is high 20 to mid 30 meld and some areas it can be low 20 ask your center what the usual meld is. Hang in there and take care of yourself you still have a chance, you can also opt for a B list organ which has a slightly higher risk after but still has a good prognosis, my husband was on both lists.
SD Grandma, thanks for starting your own thread, as I had suggested. It sounds like you are on a transplant list and it's just a matter of waiting. Have they done all the evaluations? Is there a reason you can't take medicine for your BP or are you already on it? If you are on BP med and it's not working, they can change it. I've had mine changed several times.
So you did the 6 mos. of AA meetings or are they not requiring that of you? Sorry for all the questions, but I'm not clear on a couple of things.
I'm glad you are posting, as you will get a lot of info and support here. I know that they are doing stem cell treatments for a number of issues now, but it's still in the very early stages.
Julie, I agree with David on this. You don't want to suddenly go into a downward spiral and not be able to get a liver because you were taken off the list. Believe me, when people are facing death, they will usually do anything to stay alive! I would also double-check on the AA requirement. You wouldn't want to be denied a liver on a technicality. although 14 mos. is a good amount of time. Suppose they want proof?
The Norvasc should bring your BP down. I was on it for quite awhile, but when I started having rapid heart rate, was changed to a beta blocker. Your high BP could be the cause of your headaches. If you don't get it down, you could have a stroke.
"I guess I'll start the flucatose"
Do you mean Lactulose? I didn't find a drug with your spelling. Lactulose or its equivalent will clear up your confusion. Try to make sure of the spellings and dosages of the drugs you take. This could save your life in an emergency.
As for the cancer marker, I'm not sure. They use AFP (alpha-fetoprotein) as my cancer marker, although it wasn't really high even when I did have cancer.