Hi, Sad Grandma. Just because you have hep C and cirrhosis and are going to undergo treatment, doesn't mean that you are going to die soon. I was diagnosed with "C" in '93 and cirrhosis in '07, and I'm stable. I am holding out for the new treatment that adds a 3rd drug, which will be widely available in about a year and only has to be taken for 24 weeks. Once you start treatment, if you are not responding by the 8th week, or if it seems to be affecting you adversely, they will take you off. So try to be positive. A positive attitude, the right diet, and enough rest can do wonders for us.
I know that most people really don't understand. I have a problem because I look well but have very little energy. I have to sleep a lot. Treatment IS rough, but we are here for you. Feel free to vent any time. Let us know how you are doing. You may not feel up to doing much when you are on treatment. Do you have a good support system? Your family and friends need to understand that treatment is basically chemo and that you need their help and support.
What transplant center are you going to?
You will certainly be in our thoughts and prayers.
sad grandma, How old are you and when were you diagnosed with hep c and cirrhosis ,you said you tried to seek treatment in 2003. How are your platletes and other blood work results
Alittle about me:
Like you I only have 1 good friend, I revolved myself around my family. Although I don't talk about me to much to my friend since she gets very upset and my kids don't like to talk about it and my husband is an alcoholic so needless to say I can't talk to him. The forum is the best thing for me. There is alot of wonderful friends on here to listen and give advice or just for us to vent and not be judged.
My lab work(blood results) were off since 2004 but my Dr(at the time) didnt tell me or order further testing, by the time I was diagnosed in 2008 my labs were pretty bad. I at that point(2008) was told I have cirrhosis ,varcies,enlarged spleen ect. I was put on the transplant list and my meld score was 12 and now it's 9. My hepatologist tried me on hep c treatment at 1/2 the normal dose,but after 4-6 weeks of treatment I had to stop due to my blood work went into the danger zone. It wasnt pleasant but if it worked and I was able to take it I would due it again. I'm a fighter so for now I as Connie said: diet is important and rest. I also am very fatigued and due to the increased fatigue I just stopped working recently but hopefully I can go back to work soon. I have been sleeping 8-10 hrs. at night and sometimes I get up have coffee and fall back to sleep, then I fall asleep again in the afternoon. My Dr. said to rest and sleep when my body tells me to. I don't have much of a choice since I can't seem to stay awake when I get tired. I was just diagnosed with chronic pancreatitis so I'm not sure where my pain comes from or if its from all(Liver,spleen,pancreas,gallbladder) I dont take pain meds. since its not good for the liver,but fortunately I have a high tolorence for pain.
Please remember to eat right,rest,dont take over the counter meds without your Dr. giveing you the ok,and most importantly don't give up!
Take care and my thoughts and prayers are with you,
SG, don't forget beans as a source of protein. You can also have fish, chicken, and a little lean, fresh pork. Fresh fruits are good for your immune system. Filtered water and tea are recommended.
When you go to the liver center, ask them to explain anything you don't understand. You have that right as a patient. Here's a link to info on hep C and its complications:
Hang in there!
Post Edited (hep93) : 2/17/2010 12:38:52 PM (GMT-7)
SG, sorry you were in the hospital, but it's good that you got testing done. It's important that everyone communicate with each other, so be sure to sign a release to have those records sent to TX Liver Center, or request them for yourself and make copies. It is always good for you to have a copy of everything yourself. That way, you can follow your progress with your labs and tests and note differences, plus you will be able to make copies for whoever needs them. How far of a distance is it from your residence to the Liver Center? Would it be possible for you to get a GI doctor locally, if not a hepatologist? Perhaps a GI doc, or even an Internal Medicine doc, would be a little more educated about liver disease than a PCP. Does the TX Liver Center want to oversee the hep C treatments or can you do that with a doctor locally?
Try to eliminate everything white from your diet (sugar, white bread, white rice and pasta, white flour) and keep salt and fats to a minimum. Walk more, too. This should increase your weight loss.
SG, thank you for answering my questions. I'm glad that the liver center isn't too far away. You don't sound like a complainer to me. Even if you are, it's perfectly okay to vent here. We all need a safe place to do that, and that is one of the functions of this forum. Also, we may be able to offer helpful info and suggestions if we know what is going on. It's sometimes hard enough to deal with other "life situations" when we are well, but when we are not feeling well it often becomes impossible. Just remember that your health should be your primary concern and that it is not your job to "fix" other people or their problems. You have to take a little time for yourself, too, or you will be no good for anything (a pedicure or lunch with a friend can do wonders!)
Please keep us updated.
SG, good luck with your treatment! Let us know how it goes!
SG, keep the goal in mind: To rid your body of the hep C virus! Slay the dragon! If the treatments aren't reducing your viral load and LFTs, they will know within 8 wks. In other words, if it's not working, they won't keep you on it. If it IS working, then hang in there!
Post Edited (hep93) : 2/17/2010 12:39:52 PM (GMT-7)
SG, you are fortunate to have family support and help. And you're young to be a great-grandma already! You have a lot to live for! Just be prepared for bruising with the shots. Remember to rotate injection sites and to give them in the lower half of your body, in places with the most fat, like abdomen and thighs. I'm sure they went over that.
My thoughts and prayers are with you! Keep us posted.