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bostonmike
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 1/29/2010 6:49 AM (GMT -7)   
nono Good Morning
 
          Had my follow-up consultation with my hepatologist doctors yesterday. They do not know why I am not getting rid of the adequate sodium amount in my body and this is the reason why I am retaining so much fluid. They are changinging my medication to 80 mg. of Furosemide and 20 mg. of Amiloride up from 40mg of Furosemide and 10mg. of Amiloride that I started a week ago. Also 400 mg. of OTC magnesium Oxide daily. 2 weeks ago I was taking 40mg. of Furosemide and 50 mg. of Spironolactone. I could not handle 100 mg.'s of Spironolactone because of the excess cramping. I only lasted 4 or 5 days on the 100 mg. Spiro. This also happened when I first added the 100mg. of Spiro back on November 20th. I think I lasted about a week that time before they cut my meds in half. Alot of med juggling, but I hope I start losing this water weight because it is really uncomfortable in my stomach, legs feet, etc. and sleeping at night. The 2 doctors I talked to said if the Amiloride does not work with the Furosemide, I wouls have to go back to the100 mg.'s of Spironolactone or more mg."s. This medication combo seems to work for most. What scares me is that the furosemide seemed to work at one time and then lost it's potency and if they put me back on the Furo & spiro combo, I fear the cramps. I fear the cramps now that they upped my meds today, but I have to take the good with the bad. No pain No gain. Hope this works.This has been an up and down see-saw for the last 7 months. Thanks for listening. Have a happy, healthy & all good news day!

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/29/2010 9:39 AM (GMT -7)   
Mike, thanks for the update.  It does take some juggling of the diuretics.  It also took me some months to finally get it right.  Now I am weaning off of them.
 
Hang in there!
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 1/30/2010 12:07 AM (GMT -7)   
Mike..... yeah the med juggling is a big challenge, everyone is so different and the human body handles things different from one person to the next I sure hope it gets right soon for you, I remeber how difficult it was for Doug when he had all the extra fluids. We had a physical therapist and occupational therapist come in and show Doug excercises he could do at home while sitting and laying down to keep muscle strength and his body moving to help with fluid retention in different areas of the body. I so wish you the best
Sue
When I started counting my blessings my whole world turned around.

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