Hi, Marco, and welcome to the forum. I'm really sorry for your diagnosis of PBC. The cause is unknown, but it is thought to be an autoimmune disease and frequently other autoimmune diseases (such as rheumatoid arthritis) are found in patients with PBC. PBC cannot be cured, but it can be treated. In Dr. Melissa Palmer's Guide to Hepatitis & Liver Disease, she states the 3 standard drugs used to treat PBC are methotrexate, cochicine, and ursodeoxycholic acid.
We do have several people here with PBC. I know they can give you more info and support. Also, stay in close touch with your doctor and keep a positive attitude.
Marco, once a person starts to have symptoms from liver disease, it can often go downhill really fast. So don't become complacent and think that you will have 15 more years to progress. Unfortunately, this may not be the case. Take your medications, eat properly and get enough rest. In other words, take very good care of yourself.
You are correct, it is a long road as it is a chronic condition but don't let the negativity get to you. Positive thoughts really do go a long way when dealign with lifelong conditions. There was nothing you could have done differently. You had mentioned not having done drugs or drinking heavily. PBC has nothing to do with that. I have AIH (autoimmune hepatitis). Same thing, who knows what caused it. Different things could be a trigger but hard to pinpoint one cause. Patients usually have a predisposition where autoimmune diseases are concerned. I have 2 sisters with MS. I, too, am on Urso but to treat a side effect of my immunosuppressant. Generally, Urso is a PBC drug. It's a bile acid to keep the bile thin so it doesn't back up and cause more cirrhosis.
Connie is right, don't think that since it only really came to light now that you have all the time in the world to take action. Be good to your body, eat right, exercise and take your meds. See your doc and get your labs done when you are supposed to. Find out about the alcohol thing. If your doc says none, then none it is! There is a lot of info in Melissa Palmer's book and check out The American Liver Foundation website.
Let us know how you are and welcome to our little liver-related family!
The "man boobs" thing is gynecomastia. It is caused by a hormonal imbalance and is something that can happen with liver disease.
You are better off eliminating beef from your diet. This is the most difficult protein for your liver to break down. In a diseased liver, it really has to work overtime to break it down. Try turkey burgers, chicken breast (no skin), seafood, pork tenderloin, beans. low-fat cheese. You can do a search online for recipes.
It's a lifestyle change, but your liver will thank you for it.
Guys, did you notice that his last post was in 2010?