Mike, do you have these drugs in hand? If so, could you please give the exact spellings? The closest I could find is duloxetine (Cymbalta), an antidepressant, and Risperdal, a psychotropic drug.
Who prescribed these drugs? Has a TIPS procedure been mentioned at all? That is what is usually done when diuretics and other measures are not working.
Post Edited (hep93) : 2/4/2010 2:05:40 PM (GMT-7)
Mike, you are right. He prescribed another diuretic (metolazone) and a med for cramping (ropinirole--note correct spelling.) I feel frustrated for you. However, they never drained me, either, except when I had a fluid pocket after an incisional hernia surgery and the drain clogged. They had to drain the pocket before placing another drain. But for the ascites and edema, they just kept increasing the diuretics and finally it did go away. My feet were soooo painful when they were swollen. It's been over 2 yrs. since I had a fluid problem, but I believe all the swelling damaged some nerve endings on the top of my feet. They are very sensitive and at times really itchy.
Give this new regimen a try, but if it doesn't help within a week or so, I'd really push for paracentesis or the TIPS.
Post Edited (hep93) : 2/4/2010 3:38:24 PM (GMT-7)
"There are no routine operations in your midsection."
I'll say a big AMEN to that! I haven't been the same since they cut me from side to side and from breast bone down to the navel (rt. lobectomy and 2 incisional hernia repairs at the midrift.) I pooch out above the naval and just feel "weird" in the upper abdominal area. Sometimes when I bend over, I can feel my intestine get twisted or "caught" and it takes a moment of relaxing for it to return to normal.
Mike there is a "reacher" or "grabber" you can get at Walgreen's or most any drug store. It allows me to pick things up from the floor easily. I also use it to hold up a pants leg. Additionally, I have a contraption that allows me to put on my socks myself. You would probably need to contact a medical supply house for that. It was given to me at rehab after my last hip revision. The sock goes over it and the foot goes in it, then you pull the cords on the side and voila--the sock is on!
I mentioned TIPS because that is what is usually done when nothing else is working. At that point, the benefits outweigh the possible risks.
Mike, I'm glad that the MGH people are staying in contact with you. As to whether you should switch to their PCP, I'll let David address that since he is familiar with MGH. I would like to mention, though, that Dr. Mullen appears to be a gastroenterologist (GI doc) and not a hepatologist. Who are you seeing on Thurs.? I suggest you ask to be transferred to a hepatologist. They are much better equipped to handle ascites and all the complications of liver disease.
Good luck and hugs,
Post Edited (hep93) : 2/8/2010 9:12:45 PM (GMT-7)