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pohiki
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 3/3/2010 11:46 AM (GMT -7)   
 I'm relatively new here..but I want to say hello.
I've had hep c for about 30 yrs now. I've only had a ct scan and ultrsound..revealing a granuloma and two other size masses..back in 2006, less than a year after my discovey of the virus.
I wanted to know if anyone who is or has been dealing with cirrhosis can tell me if they've had encepalopothy, but.. whether brain fog was experienced first? Also, does encepalopothy come on suddenly? If so,  can you describe how you felt before hand? Do some of you not have jaundice? 
Thanks, Pohiki-
 
 

worriedgirl
Veteran Member


Date Joined Apr 2009
Total Posts : 1130
   Posted 3/3/2010 11:55 AM (GMT -7)   
my mom it came on suddenly with no warning. she was incoherent and barely knew who she was, where she was, she kept asking for food and sprite even though she just had stomach surgery. when they transported her to osu she asked the paremedics for food and they told her she was crazy and she sat up and said "bullcrap and i want a sprite too." unfortunately she never woke up afterwards. but some i hear it comes on gradually so who knows, this disease is different for everyone.
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 3/3/2010 12:14 PM (GMT -7)   
Pohiki, My experience was that it crept up on me slowly, or it felt like that. When it became stronger, I realized that it had been there for a while, but not enough to notice it, while it was happening. I thought it was tied to being tired and having Hep C. The encephalopathy was worse when I didn't have enough sleep, or on days when I had worked hard (I'm a tile setter). I never turned yellow at any point. After my transplant, everyone remarked on how good I looked with a pinker face. Before that they said I appeared grey. No one ever told me how sick I had looked. I wish they had, it was another symptom to factor in to my equation. **David**

pohiki
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 3/3/2010 3:07 PM (GMT -7)   
Just lost my whole respose and the beginning of another. Firstly, my deep heart felt thanks..this is the first forum (joined a few in the past) where I haven't been met with arrogance "yes, but you need to see a doctor" ..ya, I've heard of them"?
 
Worriedgirl..so she ask for a sprite!! must of really seemed good to here) ha. This came on suddenly..do you recall if she ever complained of any confusion or a foggy feeling before that.. Just curious?
 
David, now this crept up slowly? (being worse without enough sleep speaks to me)...(bet that's hard work). Anyway, you've seen those drop-down lists..(flapping arms or hands and the inability to write)..this throws me. So no jaundice either..hmm? I don't either. Wow, so your face had a lot of coloring..a nice contrast? This is great..I'm beside myself cool Pohiki-

pohiki
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 3/3/2010 3:12 PM (GMT -7)   
Oh..another thing, if heavy drinking caused or is presently a battle in regard to the encepalopothy) can you let me know that..in your response above? I'm not a drinker or a smoker..so I just want to eliminate that or keep that in mind. Thanks- Pohiki

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/3/2010 3:50 PM (GMT -7)   

Pohiki, WG's mom was an alcoholic.  David isn't a drinker.

My short-term memory isn't the greatest and I do some mindless things from time to time, but I chalk it up to the brain cells I killed in the 60s, aging, and all the general anesthesia I've had in the past 7 yrs. for surgeries.  I've never been yellow.

I do want to mention that you should be under the care of a hepatologist and get a current scan of your liver.  I developed liver cancer from hep C and am very fortunate to still be here today.

Hugs,

Connie



hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Post Edited (hep93) : 3/3/2010 3:56:35 PM (GMT-7)


worriedgirl
Veteran Member


Date Joined Apr 2009
Total Posts : 1130
   Posted 3/3/2010 4:21 PM (GMT -7)   
it came on all of a sudden for my mom with no symptoms at all, of course i wasnt with her when her ulcer perforated(yes it was the main thing that caused her death) but in the hospital she looked at me with the saddest look i could ever see and never will forget and said i have no idea what im doing. she said it like a little kid and it broke my heart. i dont regret being there for her on her last days. when she took her last breath i was holding her hand and telling her i loved her. i do hope she heard me. my sister and my uncle walked in five minutes later and seeing my mom was still looking like she was breathing(although she wasnt) i told my sister that she took her last breath when she walked in. to me that lie was a good lie.
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 3/3/2010 7:43 PM (GMT -7)   
Connie got it right. There are doctors and there are doctors. Go see a hepatologist. A gastro might be better than a GP, but you need to go to the best. It's you health and your life, don't take any chances. Prior to being diagnosed with Hep C I drank, but not all that much, and not until I was in my thirties. I did inhale. Again, not over the top. Once I got out of my early twenties, I wasn't much for getting out of control with any substance. No IV drug use. **David**

pohiki
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 3/3/2010 10:17 PM (GMT -7)   
Worriedgirl- Maybe you didn't lie..I heard many stories of clinical death..(NDE) where they saw everything going on. Besides, I think the auditory senses are the last to go. I'm happy you could spend that time with her before she left. Very touching.

David & Connie, I was told this afternoon I would need to see my regular physician then obtain a referal. The lady I spoke with let me know they don't do liver biopsy's on this side of the Island anymore either (they were the ones who did them). Still, at this point I would need to come up with both doctors visits (consultation) and the start of blood work. We may qualify for Kaiser insurance here but we are still looking into it.
In 2006, they did the CT scan and abdominal ultrasound..(I mentioned previously, though brief) they found what was consistant with a granuloma (7mm calcification in the left lobe), a 7x7x5 mm echogenic mass on the right lobe (on the scan, posterior echoustic shadowing wasn't seen. There was another 4x4x5mm echogenic mass adjacent to the gallbladder..clearly demonstrating post acoustic shadowing but not seen by the scan either. I guess these are pretty small too, but this was four years ago. This is why I'd like the biopsy.
Oh, I'm not a drug user either..hope this helps, thanks for now, Pohiki..

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/3/2010 10:48 PM (GMT -7)   

Pohiki, if you can get insurance, an MRI with Gadolinium would be the way to see if those spots on your liver are cancerous.  They were able to diagnose my cancer with this method and without doing a biopsy.  Of course, for cirrhosis and the overall condition of your liver, a biopsy is warranted.  They sometimes don't like doing them due the the risk of bleeding.

Good luck and hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


pohiki
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 3/4/2010 10:04 PM (GMT -7)   
Connie, just want to thank you- very helpful!! I will make a not of this..if the insurance doesn't fly, well, I'll be back to the drawing board. I suppose it's the not knowing that tends to nag. I'm sure we'd all love to be in the hands of a good knowlegeable physician though? Hmm
I may have a few more questions. My very best, Pohiki-
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