age related macular degeneration at 30

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sam123
New Member


Date Joined Mar 2010
Total Posts : 5
   Posted 3/3/2010 2:24 PM (GMT -7)   
hi every one ..
my name is sam i'm 33 years old. well like a lot of people did not even know what is age related macular degeneration well for people don't know what is it it's eye disease cuses blined .. well i was diagnosed with it 3 years ago . well make the long stroy short so far it's only in one eye the left one.. i did 2 surgery it did not do much really and the hard part is they put some thing in the eye like air or some thing like that and you have to face down for 3 weeks .. yes face down all the time any way for who cares to know how i'm doing so far i saw many doc and i was geting more than one treatment at the same time well i start with an eye injunction call Avastin and i was on it for 6 mounth more or less .. at the same time i was on Prednisone i start with 60 mg a day and i was on
Cellcept 3000mg a day ..after some time my vision was going bad and i saw this new injuction call Lucentis iIT DID WORK for me the only thing is not nice about it it's very expensive drug so any one think about it should really have a good cover insurance  .. well thank god i'm off it now for the past 15 mounth .. oh by the way for who cars to know i have the WET form ..any way  the good news now for me my eye stop bleeding and that is what i meant the wet form is . and that becouse of Lucentis .. so if any one or loved one you know they was diagnose with age related macular degeneration they should aske them doc about it it may help them like it did to me . hmm let's talk about the great news now for me .. i'm planing to have a kid but i know with all this drug was very hard special i'm still on cellcept .. so i aske my doc what i can do .. he told me this is a very hard call to do cus if i get of my meds i could go blined ..the only thing so far help me to see is the drug but i did aske him many time if there is anther way he came up with this he start to cut the meds for me so i'm now on 1000mg a day (Cellcept) and that is the only thing i'm now on.. but with in a mounth i should change the Cellcept to Imuran he told me it's safe drug it's been in the market for the past 40 years .. my main worry is i'm willing to give up my own sight to have a baby but i have been reading about this drug .. some say its safe some say it's not all i'm asking did any one been on this drug and have a safe pregnancy ... dose that drug cus a birth defects i'm going crazy over that now .. my doc plan is to change from Cellcept to Imuran next mouth .. i'm very worry and i don't want to be selfish and think of my being a mother without looking hard and making sure what i'm taking to save my eye sight will harm my baby .. so pls any one can tell me more info about this drug ..
thank you all for taking time to read this and i hope my story can help any one with any thing in it

Post Edited (sam123) : 3/3/2010 3:42:48 PM (GMT-7)


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/3/2010 3:37 PM (GMT -7)   

Sam, unfortunately you have posted in the wrong forum.  This is a forum for liver disease.  I don't believe that Healing Well has any eye forums, but if you do a search on the Internet you might find a group on Yahoo or some other site.

Good luck!


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


sam123
New Member


Date Joined Mar 2010
Total Posts : 5
   Posted 3/3/2010 3:59 PM (GMT -7)   
thanks for your respond
but if you read what i'm looking for not help for my eyes or info about my eyes.. the only thing i'm looking for in my forum is any women reading this forum and she did try Imuran this is the new drug my doc told me about i would like to know if that did work for her ..
and tell you the truth ihave been looking for people with age related macular degeneration my age and that was hard too cus not many ppl out there have it in my age ...
thanks for the help any way and god may help us all with what ever we have

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/3/2010 6:55 PM (GMT -7)   
Hello Sam that question as been addressed on this forum before. The the top of this page under Join HealingWell.........there's a google search. Type in Imuran and pregnancy and it will bring up the threads that addressed it. Hope this helps and good luck. Thoughts and prayers.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


sam123
New Member


Date Joined Mar 2010
Total Posts : 5
   Posted 3/3/2010 9:54 PM (GMT -7)   
thank you i will google it ..
like i was saying before i don't know much about the drug and i need to get more info on it ..
thank you so much
Sam
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