Ranbrew, welcome to the forum. I'm sorry your son has ESLD. The good news is that he is on a transplant list! Most caregivers and patients come here trying to get on one. He will absolutely be a new person after transplant, if he doesn't reject the liver. Of course, he will get anti-rejection medication.
Do a search here for transplant and you will find a number of posts. The most important thing is for your son to stay sober and to do everything the transplant team asks of him. Does he go to AA? Most places require 6 months of documented AA attendance before they will list an alcoholic for transplant.
It might be best for him to apply for SSI and stop working. He will not be able to work for awhile after transplant anyway. He needs to rest his body. Once he has recovered from transplant, of course he can return to work.
If you have questions, we will try to answer.
Post Edited (hep93) : 3/13/2010 12:17:24 PM (GMT-7)
Ranbrew, I completely agree with PG. If the transplant center is ready to list him, let them. They will not proceed with transplant unless he gets really bad, but that could happen quickly. If he has cirrhosis, that is not reversible. It can be halted or slowed, but not reversed. Also, anything that is just going into trials will not be widely available for some time. I wouldn't recommend him trying to join such a trial with a MELD of 22.
I suggest that he apply immediately for SSI. If approved, he will also get Medicaid, which should help with the bills. You should also go with him to his next appt. at the transplant center and ask them whatever questions you have. You can also look into whatever charity help they might have at the center. See a SW there, not the financial people.
I just want to say that I agree with everything that David and Mathman said. A part/time minimum wage job likely does not have insurance coverage. It's time for him to have some humility and admit he needs help, at least temporarily. It takes time to be approved, so he may as well apply now. Of course he can return to work in the future, if all goes well. He's still quite young. He might want to ask about taking a medical leave of absence if he is really intent on keeping that particular job.