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New Member

Date Joined Feb 2010
Total Posts : 15
   Posted 3/16/2010 12:40 AM (GMT -6)   
Hi Everyone,
I have learned so much the last couple of weeks.  Like if you are dealing with more than one dr at a time you have to quit asking and start telling people what you need to have done.  I was worried I was too green for this.  I found out that the mom in me really helps when you are fighting for someone you love.  I actually had to tell one person that if they were not willing to do the procedure that her doctor had ordered I would take her out of the hosptial and drive her to the hospital down the road where they would do it.  That was kind of interesting, I am not usually that assertive.  My mom had a Plurex Cath put in and now gets to be drained at home, hospice came in and she has a wonderful nurse that she got to pick.  That went well, I thought it would take forever interviewing people and places, even with her agoraphobia.  I am not sure I spelled that right.  She now has less than 5 months but she is comfortable and not in any pain, which is what she wants.  There is a tremendous amount of relief for her that I can help but feel good about her decision.  It was awful watching her go through the worry about being in the offices and all of the people and dr.s.  Things have finally started relaxing a bit.  My grandfather came in to see her for a few days, my great aunt, grandma and cousin.  Now they are all back home and she can relax.  I have almost all of her memorial service done and my great aunt is helping with putting a dvd together for her.  My mom has been able to be apart of the things she want to and has enjoyed going through old pictures.  It is bitter sweet, but I would not change the time we have left.  I have not seen her this clear for so long.  We have started to see more of the confusion, she said something about being in school the other day.  We are watching more closley so that Hospice can get her meds for it when necessary.  Thank again.  It is nice to have a good update.

Veteran Member

Date Joined Apr 2009
Total Posts : 1130
   Posted 3/16/2010 7:54 AM (GMT -6)   
i am so happy that things are working out for you. and good job on taking initiative on getting her stuff finalized beforehand. with my mom i think i was in denial and really had no way of paying for expenses up front but i did find a wonderful place to do her service. you learn to be assertive when you are dealing with this disease.
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are
"No one really dies because they have loved. Because they love they stay in the hearts of the people they have touched so in that their memory lives on." Ghost whisperer-i know corny but this touched me deep down and i see so much truth in it.

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 3/16/2010 9:52 AM (GMT -6)   

DD, it sounds as good as it can be at this point.  Good for you, being assertive.  You will find Hospice to be a God-send.  Please keep us posted.



Forum moderator - Hepatitis
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Pink Grandma
Veteran Member

Date Joined Nov 2006
Total Posts : 2445
   Posted 3/16/2010 7:20 PM (GMT -6)   
Hi DDLee, so glad that you got things straightened out. It is a big relief when things start falling into place, especially in your circumstances..........It's wonderful that she is being a part of it and that everything is getting planned ahead of time.

Just enjoy every minute you can with her..........thoughts and prayers.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

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