Mike, I truly understand where you are coming from. Although my hep C is not currently aggressive (viral load 68,000 and liver enzymes actually normal for the first time in 20 yrs. at last blood check), I am certainly not the same person physically that I was even a few years ago. Aside from my hip replacements and three revisions, I had the rt. lobe of my liver removed due to cancer (along with the gall bladder, BTW), and then had 2 incisional hernias and repairs on those. All the surgeries in a matter of a few years really took their toll on my body. And I have a sneaking feeling I have another hernia, just below the previous ones. I think my bathing suit days are over. Fortunately, the swelling is mostly gone from my legs and feet with 40 mg of Lasix and 100 of Aldactone every other day. I tried to wean down to none, but can't do it without swelling. It's hard to accept that this is the "new" me. At the same time, I know I am grateful just to be alive and very glad that I was clean and sober for so long when I was first diagnosed with C.
Did you discuss a TIPS procedure with the doctor at Mass. General? I know that Rick was in similar circumstances as you and had the TIPS and it gave him greater quality of life, plus he lost all that belly fluid and gained back muscle mass.
Hang in there, my friend.
Mike, I definitely would bring up TIPS again with your doctor. As for the family get-together: They are FAMILY. They are going to love you regardless of how you look. One Christmas, I had to wear a large sleep tee, as that is the only thing I was comfortable in. I had my nephew do fluid manipulation of my feet as they were hurting so much. There's a certain way to do it, using the thumbs and pushing upward. You have to use lotion, too. It does give temporary relief. You need to let your family be there for you.
I'm sorry your feeling so lousy. I agre with you about your gallbladder surgery. They wanted to remove mine last year but I said no and went to my hepatologist and he said I made the right decision since my gall stones were not blocking anything and are still moving(they just keep a watch on it) He said if I have my gallbladder removed It can put me into complete failure.He said not from the surgery but from the general anesthesia. He told me I would probably need a new liver right away and unfortunately we know the chance of one being available. If I ever have to go under general anesthesia I will have it done where I go to see the transplant team. I have ESLD, due to hep c and on transplant list.
I just remembered my mom's Dr. told her to drink tonic water for the cramping rather than take the med. quinninine. My mom had liver cancer. I wouldn't drink it unless you check with your Dr. Every disease is different and person is different.
I'm sorry I can't help you with TIPS I never had any dealings with this, atleast not yet. I wish you the best and my prayers are with you,
I am sorry you are feeling so bad. I Jumped at elective gallbladder surgery in june 2007, and my health deterotiated rapidly. I had to quit a job, I loved, and I wanted desparately to turn back the clock! But, I've finally accepted that my life is different now. My health has improved, and I pray that yours will too, Don't forget miracles happen every day. Ailsa
Post Edited (bostonmike) : 3/24/2010 8:45:20 AM (GMT-6)
Mike, I doubt it's the anesthesia because I've had general anesthesia 8 times in the past 7 1/2 yrs. and my liver enzymes were actually normal in Dec. But I'd be interested in your doctor's opinion. Since my gall bladder was taken at the same time as the right lobe of my liver, perhaps that made a difference.
Be sure to bring up TIPS again, too.
Baffled, I've never heard of a connection to child abuse/neglect. If you have been diagnosed with liver disease and would like to post about that, please start a new thread and introduce yourself and your liver problem by clicking on New Topic.
Connie, Not only my hepatologist told me about general anesthesia, the transplant team and my gynocologist and my hubby's hepatologist,urologist, and surgeon. My hubby goes to a complete different hospital than I. I think it has to do with how bad your labs are(platelets,CBC etc.) which tells them alot. My liver enzymes (AST ,ALT) are normal too. They wouldn't do a liver biopsy on neither of us. They all said they won't put us under Gen. Anesthesia unless there is no other choice. This is why my hepatologist/transplant team said I can go to my local hosp. and they can notify them and transport me to them and they will be on alert and waiting for me. They said that gen anesthesia slows everything down and there is a really good chance my liver won't start functioning again. Connie and Mike how are the rest of your labs?
I am curious to hear if any one else was ever told this and Mike please let me know what your DR. say's about the general anesthesia.
Mike I really hope all improves for you. Keep strong and positive and keep the faith.
My prayers are with you, Dee Dee
Actually, for the last 2 hip revisions, they gave me very little general anesthesia. I got an epidural for the left revision and an epidural and some other local anesthesia directly at the site of the nerves on the right. But for the other 6 surgeries, I was under general anesthesia for a long time. Go figure. All of these surgeries were necessary.