My Cirrohsis has become a lifestyle.

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bostonmike
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 3/17/2010 7:53 PM (GMT -7)   
Hello Everyone,
 
        I have accepted the fact that my distended belly and fluid filled legs,ankles and discolored feet is probably not ever to be a 100% better. Also, I will have to lead a life of discipline if I want to stay out of the emergency room. Meaning a no-salt diet, water restriction, taking medication and bed rest. Right now the medication is just maintaining the fluid from building up as quickly if I took no meds. I saw my doctor for a follw-up on 03/04/10 and he said my sodium level was still low at 125 and he wanted me to double the Furesomide(Lasix) to 80 mg. & Spironolactone to 200 mg and gave me a Quinnine prescription, 1 daily for cramping. I had blood drawn after the follw/up . A week later he sent me a letter stating the sodium level was better at 128 but still low and could not lift the 1 liter water restriction until next week on Monday I am going to give a blood sample he requested and if it goes up more I can add a 1/2 liter, Whooopee. I know my attitude is bad and I  read the threads and the hearwrenching stories and I should be grateful, but the good weather is coming and I look like a beachball with sandals on. I am thin but it looks like I am 9 months pregnant. My legs feel like they are tearing apart when I walk down a staircase and when I walk up stairs it is like wearing cement shoes on. My legs from the kneecap and especially the calves and shins have tiny blisters and dead skin and they're so dry they have to be treated with skin lotion a few times a day. my feet and toes are discolored and bruised. I stay in like a hermit to avoid people from seeing me because even with a coat and sweater they notice the wasting in my face, neck and shoulders. I have seen 3 different doctors and have had 3 paracentisis since the end of November. I keep telling my doctor that the furosemide is not working like it used to. I am supposed to see my weight go down 1/2  pound or a pound a day, but I fluctuate up between 1 and 3 pounds a week then gradually it goes higher after a month or 2, the ascities fluid goes up to 8 to 10 pounds and then I need another paracentisis because of fluid build-up. When they do a para they take 5 liters of ascities out of my stomach and I usually weigh 10 to 12 pound lighter. but my stomach is still distended and looks huge. They would need to take 20 liters to make a big difference and have a somewhat normal looking size stomach. I am not talking six pack Abs either. I guess the writing can be therapeutic. It makes me  grateful that this is all I am experiencing when I know it could be whole lot worse. Reading the threads is definitely a wake-up. I do not know what to write back to people that are in so much emotional pain more than the physical. I  am still not looking forward to the good weather . Well thanks for those who read this thread for listening. You know before my gall bladder surgery on 07/09/2009 I ate whatever I wanted to eat, I did not take any medication in 50 years except self medication and I was asymptomatic from Hep C and had no sign of cirrohsis. All things changed because I listened to some doctor to take out my gall bladder when all I had was a few small gall stones, but he said you got to get it out because with your Hep C it could cause alot of problems in the future. I listened to that idiot, and here I am! Almost a year later, and I want to go back and change it, and I can't. What a fool I was to jump at any kind of surgery. I had only had arthroscopic knee surgery done befor this in 1987 and I wished I never had gotten that done either. I still have problems with my right knee today when it is cold or damp and rainy. Good Night Everyone. Hope to have a better year this year because this last 9 months has been a nightmare.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/17/2010 8:30 PM (GMT -7)   

Mike, I truly understand where you are coming from.  Although my hep C is not currently aggressive (viral load 68,000 and liver enzymes actually normal for the first time in 20 yrs. at last blood check), I am certainly not the same person physically that I was even a few years ago.  Aside from my hip replacements and three revisions, I had the rt. lobe of my liver removed due to cancer (along with the gall bladder, BTW), and then had 2 incisional hernias and repairs on those.  All the surgeries in a matter of a few years really took their toll on my body.  And I have a sneaking feeling I have another hernia, just below the previous ones.  I think my bathing suit days are over.  Fortunately, the swelling is mostly gone from my legs and feet with 40 mg of Lasix and 100 of Aldactone every other day.  I tried to wean down to none, but can't do it without swelling.  It's hard to accept that this is the "new" me.  At the same time, I know I am grateful just to be alive and very glad that I was clean and sober for so long when I was first diagnosed with C. 

Did you discuss a TIPS procedure with the doctor at Mass. General?  I know that Rick was in similar circumstances as you and had the TIPS and it gave him greater quality of life, plus he lost all that belly fluid and gained back muscle mass.

Hang in there, my friend. 

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/17/2010 9:03 PM (GMT -7)   
Hello Mike, sorry that you are feeling so down. Everyone has those days.........especially the chronically ill. Me being one of them. I may not have Hep C or cirrhosis but I am so tired of being sick. But me reading all the posts here, I know I have nothing to complain about compared to others.

Like you, I don't always know what to say so sometimes I just read the threads and not post. It doesn't mean that I don't care........in fact it is just the opposite......I care too much and don't want to say the wrong thing.

Hang in there Mike.........I know it is hard but you can do it. We are all here for you guy.

Take care.......lot's of thoughts and prayers...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


CGR
Regular Member


Date Joined Nov 2009
Total Posts : 64
   Posted 3/18/2010 12:56 PM (GMT -7)   
Dear Mike,
 
I am sorry that you are going through this, I know how difficult it is.
 
My partner was diagnoses back in July and suffered through the ascites and all until he had his TIPS procedure in December.
 
It mad a world of a difference to both of us.
 
These fine folks here in the Forum, particularly Connie, Pink Grandma, and especially Ric / Timeless have been amazingly positive and helpful ... truly lifesavers.
h
They helped us to choose quality of life over quantity, and my partner & I have spent as much time as possible enjoying life.
 
There was a time that he would not allow himself to be seen by anyone, and hid his neck behind a scarf and his body behind nylon gym suits and a coat.
 
He was going for paracentesis every 5 days or so andhad a girth of 44". he is now 33" and feels great.
 
Now, he has a "normal" looking body (no 6 pack abs there either) and he's active again.
 
He knows that things may change any day, so we appreciate life for the moment .... after all, anything can happen to any one of us all.
 
Please discuss the TIPS with your doctors and consider it.
 
Also, for the dryness and itching, there is a product named "Bag Balm" which offers amazing benefits.
 
Please stay with this Forum, there are many fine people here.
 
Blessings,

Rob
 
 

bostonmike
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 3/18/2010 4:49 PM (GMT -7)   
Good Evening,
 
         I Know many of you have experienced more pain and for a longer time, too. Connie, I admire your courage and constant fight and optimism. You have alot of experience with this disease. It just bothers me that it is 2010 and they do not have other medications than Furosemide & Spironolactone. My last 2 doctors are bent on this combo because if you read the MDA or other websites it seems to be the protocol. Up to 120 of furosmide & 400 Spiro and after a few months should take the fluid down. I did talk about the the TIPS with Dr. Mullens at the MGH. He seemed to want to avoid this and I have read that people have been very successful. I am going to run it by him again. This weekend my brothers,sister and mother get together in March every year for a boiled corned beef and cabbage dinner. We have it earlier in the month most years than this year. I saw my mother, sister and 1 of my brothers on Christmas day, but I have not seen the rest of the family my other 3 brothers, their wives and 2 nieces and 2 nephews ages 9-17. I am sure my mom told them I wasn't looking like my usual self. I have to go and I am scared how they will look at me. I am glad I wrote the thread because through your replies, I am not going to get uptight about it. I can't eat any corned beef, anyway and they have to boil the veggies in clean water by themselves. How boring. There are some meals I deeply miss, PIZZA being the number one.  CGR, Do you know where I can purchase the Bag Balm, local pharmacy,Walgreens,CVS,etc? I looked today at CVS and did not see anything. I have been using Eucerin cream and it is very oily & greasy. Thank You CGR, Connie & Pink Grandma you helped me and I appreciate it. With that I will say, Good Night.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/18/2010 6:46 PM (GMT -7)   

Mike, I definitely would bring up TIPS again with your doctor.  As for the family get-together:  They are FAMILY.  They are going to love you regardless of how you look.  One Christmas, I had to wear a large sleep tee, as that is the only thing I was comfortable in.  I had my nephew do fluid manipulation of my feet as they were hurting so much.  There's a certain way to do it, using the thumbs and pushing upward.  You have to use lotion, too.  It does give temporary relief.  You need to let your family be there for you.

Big hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


worriedgirl
Veteran Member


Date Joined Apr 2009
Total Posts : 1130
   Posted 3/18/2010 11:29 PM (GMT -7)   
My mom had the gallbladder surgery and seemed to go downhill from there but I don't think it had anything to do with it. My mom was really thin, cept for the ascites, that they said she had a child sized liver which made her hep c and cirrhosis worse. That and her body was so worn down from abuse. I would ask s out the tips and if need be get a second opinion. Your quality of life is worth it
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are
 
"No one really dies because they have loved. Because they love they stay in the hearts of the people they have touched so in that their memory lives on." Ghost whisperer-i know corny but this touched me deep down and i see so much truth in it.


CGR
Regular Member


Date Joined Nov 2009
Total Posts : 64
   Posted 3/20/2010 4:44 PM (GMT -7)   
Mike,

Walgreen's carries Bag Balm. It's in the moisturizer section in a green tin with roses on it and a cow on top.

Please consider the TIPS ... Rick is right about the risks, but when Frank had his done, it changed his life. He was comfortable and happy, and his spirit improved.

I truly believe that when our spirit is strong, we are capable of everything.

Also, I love what Rick saya .... if I die tomorrow, I smiled today.

Quality of life over quantity is all we can pray for at the moment.

Blessings,

Rob

deedee48
Regular Member


Date Joined Aug 2009
Total Posts : 148
   Posted 3/22/2010 2:02 PM (GMT -7)   

Hi Mike,

 I'm sorry your feeling so lousy. I agre with you about your gallbladder surgery. They wanted to remove mine last year but I said no and went to my hepatologist and he said I made the right decision since my gall stones were not blocking anything and are still moving(they just keep a watch on it) He said if I have my gallbladder removed It can put me into complete failure.He said not from the surgery but from the general anesthesia. He told me I would probably need a new liver right away and unfortunately we know the chance of one being available. If I ever have to go under general anesthesia I will have it done where I go to see the transplant team. I have ESLD, due to hep c and on transplant list.

I just remembered my mom's Dr. told her to drink tonic water for the cramping rather than take the med. quinninine. My mom had liver cancer. I wouldn't drink it unless you check with your Dr. Every disease is different and person is different.                                            

I'm sorry I can't help you with TIPS I never had any dealings with this, atleast not yet. I wish you the best and my prayers are with you, 

Dee Dee


ailsa
Regular Member


Date Joined Nov 2009
Total Posts : 35
   Posted 3/22/2010 3:36 PM (GMT -7)   

Dear Mike,

     I am sorry you are feeling so bad. I Jumped at elective gallbladder surgery in june 2007, and my health deterotiated rapidly. I had to quit a job, I loved, and I wanted desparately to turn back the clock! But, I've finally accepted that my life is different now. My health has improved, and I pray that yours will too, Don't forget miracles happen every day.  Ailsa


bostonmike
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 3/24/2010 6:11 AM (GMT -7)   
I Thank You,Everyone for your words of encouragement It really helps me know I am not alone. The qualaquin or Quinnine pill helps the cramping some. After 4 or 5 days I still experience cramping from the double dose of Furosemide 80 mg's. & 200 mg's. Spironolactone. I just tweak the meds and take 1.5 tablets instead of 2 for 2 or 3 days. Then back to 2 tabs. I regulate it myself because I know my bodies limits best and I am not going to be up all night with massive cramping. I tried the tonic water before the pills. There is a trace of quinnine in tonic water, but not enough to stop the cramping. The edema has not changed if anything it is worse with my legs feeling tighter than ever before. Hard to bend legs walking and climbing stairs. Going down stairs is the worse and having fluid build-up in the scrotum area which I did not have since last August 2009. But not much change in weight, unless wasting in shoulder, neck and chest area which I do not notice because it just looks bad to begin with. I am dumbfounded about the weight fluctuating 1.5 to 4 pounds since my Parascentesis 4.5 weeks ago and the fluid gain in my legs & scrotum area. I had a blood lab on Monday 03/22/10 to check my sodium level to see if it come up more than 2 weeks ago with the added double dose of meds. It was 125 which is very low and 2 weeks ago it went up to 128 which is still low,but better than 125. I am hoping i go up in the 130's so my doc can lift the 1 liter water restriction. I do not think it will because I have been very tired and lethargic, lately. I sleep 6 to 8 hours a night and fall asleep in the A.M. in front of my computer sitting in a chair. Sometimes every hour or 2 until noon time. Before, It seemed I was not getting much sleep at all sometimes 4 hours a night. I was getting up at strange hours like 2:30 A.m., 3:30 A.M. or:00 A.M. I just have to wait for the blood lab results this week to see if it is good or bad news. Having this cirrohsis and ascities and getting good news is a plus. Would'nt you agree? Talk to you soon. Thanks a million. bostonmike. stay well and positive! Oh, I will have to run that by my doctor the next time I see him. about the anesthesia being the reason and not the gall bladder surgery itself. I thought it was the trauma on the liver because the gall bladder sac that they cut off is attached to the liver. This is what the 2nd doctor from the Leahy said about the the Beverly liver specialist I began with.

Post Edited (bostonmike) : 3/24/2010 8:45:20 AM (GMT-6)


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/24/2010 9:53 AM (GMT -7)   

Mike, I doubt it's the anesthesia because I've had general anesthesia 8 times in the past 7 1/2 yrs. and my liver enzymes were actually normal in Dec.  But I'd be interested in your doctor's opinion.  Since my gall bladder was taken at the same time as the right lobe of my liver, perhaps that made a difference.

Be sure to bring up TIPS again, too.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 3/24/2010 10:17 AM (GMT -7)   
Mike, You're experiencing exactly what I was last June. I was hospitalized twice, once for fluid in my abdomen that was infected, and again when my legs were so filled with fluid I was unable to bend them. In both cases, there was tremendous pain in my legs and there were had red rashes on my thighs. I was taking the exact same meds you are and had swelling in my scrotum. The docs and nurses kept telling me these problems would cease once I had a transplant. My MELD score was below 18, up until a few days before I was called in for a transplant, when it had jumped 6 points in a couple of days. The docs were correct. I no longer have swelling and all is going well so far (8 months as of today). I can't remember if you're in the MGH transplant program, but if not, push for it. Even if you're not ready for one (by their standards), waiting until the last minute could cost you dearly. For 5 years, I felt I was wasting my time and a transplant was unlikely. In less than a day, my life turned around. Now, I'm taking anti rejection meds and a few other things, but compared to the side effects of lasix and spironalactone and lactulose, it's a piece of cake. I still have Hep C, that's a given. So far, no problems with any flair ups. Everything about my body now works as it should...everything! Stay on the docs and get on the list, if you're not there already. **David**

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/24/2010 12:50 PM (GMT -7)   

Baffled, I've never heard of a connection to child abuse/neglect.  If you have been diagnosed with liver disease and would like to post about that, please start a new thread and introduce yourself and your liver problem by clicking on New Topic. 

Thanks.


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


bostonmike
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 3/24/2010 2:11 PM (GMT -7)   
Haven't heard from you in awhile David. To answer a few questions my doctor never gave ma an actual MELD score. He said it does not look as though you need to be on a transplant list at this time. So, were you experiencing all these symptoms during the 5 years before the liver transplant? Or just some of the time? I have been the same since after halloween 2009, almost 5 months. I mean I was never 100 % after the gall bladder surgery 07/09/09, but the edema and stomach was not as bad and I was taking meds for a week or 2 and then take 0 meds for a week or longer until the ankles and stomach swelled a little I would go back to the meds for another couple of weeks. I kind a like the TIPS option Connie was talking about before I start asking about a transplant. I am glad to hear you are doing well with your transplant but it does not sound like a routine surgery procedure. I was going to ask you before what the anti-rejection meds was like and if you were having any bad reactions from the meds. I did not want to open a can of worms if you know what I mean. I heard and watched tv programs that the recovery and the anti-rejection meds reactions were nothing nice. Some people are more fortunate than others. But we both agree on the cramping and fatigue from the diuretics lasix & aldactone. I usually feel all side effects from any drug prescribed to me, even the antibiotics in the past made me sick at times. Good to hear from you David. I am still with the same team over at MGH, Dr. Alan Mullen, Dr. Thim, and my doctors aide the one that takes vital and weight everytime I have a follow-up

deedee48
Regular Member


Date Joined Aug 2009
Total Posts : 148
   Posted 3/24/2010 7:07 PM (GMT -7)   

Connie,  Not only my hepatologist told me about general anesthesia, the transplant team and my gynocologist and my hubby's hepatologist,urologist, and surgeon. My hubby goes to a complete different hospital than I. I think it has to do with how bad your labs are(platelets,CBC etc.) which tells them alot. My liver enzymes (AST ,ALT) are normal too. They wouldn't do a liver biopsy on neither of us. They all said they won't put us under Gen. Anesthesia unless there is no other choice. This is why my hepatologist/transplant team said I can go to my local hosp. and they can notify them and  transport me to them and they will be on alert and waiting for me. They said that gen anesthesia slows everything down and there is a really good chance my liver won't start functioning again. Connie and Mike how are the rest of  your labs?

 I am curious to hear if any one else was ever told this and Mike please let me know what your DR. say's about the general anesthesia.

Mike I really hope all improves for you. Keep strong and positive and keep the faith.

My prayers are with you, Dee Dee


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 3/24/2010 8:45 PM (GMT -7)   
Hi Mike, I'm on here a couple or three times per day, not always commenting, but reading. My major problems with swelling started less than 4 months prior to my transplant. My MELD score was in the 13-17 range, until it went to 18 a few weeks before the transplant. The only thing I've noticed from the meds is a slight tremor in my fingers. You'd never notice it unless I held my hand out and showed you. The prograf has made me slightly diabetic, though that may go away in a year or two. It does in about 20-25% of cases. I'm surprised they can't or haven't figured out your MELD score. My first one was 13 and for the first 4 years never went over 16. I wonder why they would say you needn't be in the transplant program and not know your score. If you're having problems with edema, etc. a new liver cures those problems. While you may not need one yet, if you were to regress suddenly, it takes the better part of a week to go through all of the tests. Better to be on the list and not need it than to need it and not have gone and had the testing. A transplant forum I go to has reports of people who got a liver and weren't aware they needed one until the last second. All of these reports I've seen were from people who had diseases that struck suddenly and they were dying right then. My case and possibly yours aren't in that category. We knew (know) our livers are (were) fried. Otherwise, you wouldn't be having the problems you speak of. By the way, they remove your gall bladder when you receive a transplant. If you'd like to discuss this directly, my email address is dgoodman@nantucket.net . I'll be back in MGH on my first anniversary, July 21. By then, I love hear your doc has a MELD score for you, as well as possibly putting you on the list, if needed. I was told at one point, that if my score never went up too high, there would be no transplant and by 70, you're no longer viable to get a transplant. The idea of major surgery sounds daunting to some. It wasn't for me. I wanted the being tired and in pain to end. Now it has. I could suffer rejection tomorrow, but having the past 8 months, feeling normal again has been unbelievably liberating. My belief about the surgery was that they'd put me to sleep and I'd either wake up with a new liver and be well, or I wouldn't wake up and I wouldn't know I'd died. Either way was a win in my book. Quality, not quantity is what I needed. I got it. There's no question this is a risk, but so is any part of life. I couldn't go on, living half a life. Within 7 days after the transplant, I was feeling great. I lost over 30 pounds, half of which was a good thing and I was weak for a couple of months. I'm over most of that now and am working (I'm a tile setter) every day. No swelling and no pain. Your mileage may vary. Any questions please ask me. **David**

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/24/2010 8:47 PM (GMT -7)   
DeeDee I think you are right about the labwork dictating whether or not that they would do surgery for gallstones or if they would do a biopsy.  They would not do either for my husband .  But they never said anything to us about the anesthesia being the reason why they wouldn't.  They just told us that he might bleed to death if they did either one.   But that was enough for us to decide against them.  
They did do a chemoembulzation (Spelled wrong sorry) but they gave him 2 pints of either whole blood or plasma before they did it.  They said he blood count was too low and that it was also too thin.
They also gave my husband the quinine for his cramping also.  But it didn't really seem to help him much. 
 
Thoughts and prayers to all.......
  
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/24/2010 9:19 PM (GMT -7)   

DeeDee, I was never told that anesthesia would be a liver risk for me; however, my enzymes have never been really high--elevated for years, but not by a lot.  In Dec., for some odd reason, they were normal for the first time in 20 yrs.  The only problem I've had following anesthesia and surgeries has been low red blood cells, for which they gave me iron pills.  For two hip replacements at Shands, they gave me an injectible med whose name escapes me.  I never needed any transfusions, though I was told on two occasions that I bled a little more than they expected.  It could well be the labs that predict a possible problem if one undergoes anesthesia. 

Mike, if you have copies of your last labs, you can calculate your own MELD at this site:

http://www.mdcalc.com/meld-score-model-for-end-stage-liver-disease-12-and-older

Mine is currently 6.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 4/1/2010 10:32 PM (GMT -7)   
Hello All, The anesthesia is an issue with a compromised liver! When Doug first got sick with an infection before he was diagnosed with ESLD he had to be put in a medical induced coma. Afterwards they diagnosed his ESLD and was concerned as they said his liver had to filter the drugs and would damage it worse than it already was. We were told that they would only use anesthesia when there was no choice, every time would cause the liver to rapadly become worse. His galbladder was removed at a later date but it really had to be done by then as it was so bad they were afraid to leave it. Yet he recovered as fast as I did when I was cut in half..... no lie.....from belly button to spine, took me 4 weeks to go back to work..... doug had major surgery with ESLD and was home in 5 days and back to getting around in 3 weeks...... human body and spirit are amazing
Sue
When I started counting my blessings my whole world turned around.


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 4/1/2010 10:39 PM (GMT -7)   
Mike Doug called himself the Mighty Expandable Man..... he would open his closet and say.... am I a large, extra large or extra extra large today... he had 3 wardrobes. He would bring smaller pants to his para and say I want to wear these home!!!! and I am not leaving till they fit cause I have to impress my woman..... caught her looking a skinny guy!!!!
Sue
When I started counting my blessings my whole world turned around.


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 4/2/2010 7:27 AM (GMT -7)   
Sue you have me rolling...LOL. My husband too had multiple sets of clothes. (He had more clothes than me.) He went from a size 36 waist all the way to a 50 before we realized that it wasn't normal weight gain. That was at the start of our bumpy road with liver disease. Thankfully they were able to control it with diuretics. Because back then I didn't have HealingWell to educate me and knew next to nothing liver disease.

Thoughts and prayers to all.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/2/2010 3:05 PM (GMT -7)   

Actually, for the last 2 hip revisions, they gave me very little general anesthesia.  I got an epidural for the left revision and an epidural and some other local anesthesia directly at the site of the nerves on the right.  But for the other 6 surgeries, I was under general anesthesia for a long time.  Go figure.  All of these surgeries were necessary.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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