Hi, Janey! Thanks for the update. Yes, our member Rick had the procedure and has done well with it. He feels it has given him quality of life and he no longer has to be drained. Hopefully, he will see your post.
Janey, we do have members in the UK and other countries. :)
Lovingson, welcome to the forum. Thank you for sharing all the info you have discovered! That is the best thing you can do is become educated about the disease. I also applaud you for getting 2nd and 3rd opinions. With her current MELD score, she will probably outlive the need for a transplant...unless things go downhill quickly. BTW, I also have Raynaud's and a low MELD score.
Chris, I don't have PBC or AIH. I have hep C (diagnosed in '93) and cirrhosis and am a liver cancer survivor (4 yrs. next month.) I currently live in FL. I am followed at Mayo here.
The most important thing I do nutritionally is eliminating beef from my diet. It's the most difficult protein for the liver to process. I'm not perfect...I might have it once a month when I'm craving variety...but I'm not much of a meat eater to begin with. I have upped the fresh fruits and veggies and drink a lot of spring water. I also keep to a low-sodium diet. I take a multivitamin w/o iron, vitamin C and vitamin E daily, and that's about it. The most important thing I do for my liver is no alcohol intake; however, I had been sober in AA for 7 yrs. when first diagnosed with hep. Now it's 23 1/2 yrs. of continuous sobriety.
Chris, I have an allergy to alcohol, too. I break out in a drunk.