Initial evaluation went well

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Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 4/26/2010 5:36 PM (GMT -7)   
Update-  My husband was going through his second round of Interferon when they found cancer in his liver last month.  He's had a chemoembolization procedure and now we are waiting to see if he's a candidate for a transplant. 
 
Today was hubby's initial transplant evaluation.  We had a transplant education class, they took about 15 vials of blood from him, and he had an appointment with the transplant surgeon.  They are scheduling a complete series of tests in a week or two.  Everything is going well at this time.  We are going on as if everything will go well and keep thinking positive unless we are given reason not to.  I was going crazy thinking about all the "what ifs?"  so I push them out of my mind when I start mulling over the things that can go wrong.  I'll deal with that if it happens. 
 
 
Thanks to all who have been praying for him.  I appreciate it!
 
Linda

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 4/26/2010 6:06 PM (GMT -7)   
I will pray for you... very good that they could do chemoemoblization... that means liver healthy enough to handle that...Mike's liver was not healthy enough for that procedure... and Connie can tell you more about that... but focus on each step as the step comes up.. otherwise it is overwhelming... plan ahead but with your head... walk each moment through... and enjoy each other.. and talk to each other.. the rest will take care of itself...

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/26/2010 8:27 PM (GMT -7)   

Linda, it sounds good thus far in terms of how quickly they are moving.  I agree with Arneeb:  Just take one thing at a time.  If you have questions, be sure to ask the transplant people, but don't worry about the infinite possibilities that may never happen.  When he has a scan, they will be able to tell how successful the chemoembolization has been in shrinking the tumors.  Both of you stay positive and our thoughts and prayers are with you both.

Hugs,

Connie



hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 5/9/2010 1:52 AM (GMT -7)   
The scan he had last week Thursday showed the two largest tumors were GONE! Just two black spots where they used to be. The smallest one was still lit up a bit so they're going after that one on May 17 with another chemoembolization. Next week, he has appointments on Monday, Wednesday and Thursday for the complete series of transplant evaluation tests. Things seem to be moving along well and I think he is still having the best results of a crappy situation. Just taking it one day at a time. The Interferon along with the Chemo is really making him tired and weak. He wishes they would stop the Interferon but I'm thinking maybe that's keeping the cancer in check. He's still golfing twice a week and I hope he continues as long as he can. It keeps his body strong and his mind clear. We'll know more after the test results next week but I pray he gets a new liver and sticks around for a while. I've been doing better at pushing the "what ifs" out of my mind for now. Please continue the prayers for him.

Thank you so much,
Linda

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 5/9/2010 4:32 AM (GMT -7)   
What Wonderful Mother's Day News!!! turn turn turn   Prayers are with you both!! Sandi
There is no pit so deep that He is not deeper still... Corrie Ten Boom


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/10/2010 8:17 PM (GMT -7)   

That is great news for me to come home to, Linda!  BTW, interferon is actually chemo.  It was used for cancer prior to it being used as a treatment for hep C.  So I think you're right about it keeping the cancer in check.  No doubt, between that and the chemoembolization, he is feeling very dragged out.  However, results are what count and he's having good ones!

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 5/13/2010 4:56 PM (GMT -7)   
Most of the tests are done but we don't have the results yet. We just got home today and he goes back for another chemoembolization this Monday. They still have to schedule his colonoscopy and some GI thing. He's in good spirits and is taking all this testing in stride. His attitude is that it sucks but if he has to do it to get a new liver, it's worth it. I'm also keeping that goal in mind and will do what ever is needed to get him through all of the scheduled testing. He's very tired but planning on golfing this Saturday. I hate waiting for test results!
Thanks again to all for the prayers and good wishes.

Linda

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 5/13/2010 7:46 PM (GMT -7)   
A couple of things. Interferon is still being used for cancer. I have a friend who's using it after having a tumor (from a skin cancer) removed from his calf. His dose is huge, compared to what I took. He injects it every other day.

Linda, yes the testing sucks, but having received a liver 9 months ago, it's well worth it. There's a great online forum for transplant folks and those awaiting one. Connie and PG both have my email address and I'd be happy to pass the forum address along. It isn't proper to do so here. Be well. **David**

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 5/14/2010 12:01 AM (GMT -7)   
Keep trucking... keep focused... hold on for the long haul.. so glad to hear good news!! thoughts and prayers are with you ... Sandi
There is no pit so deep that He is not deeper still... Corrie Ten Boom


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 5/15/2010 8:12 AM (GMT -7)   
Hello Linda,  hope your husband is able to play golf today.   Let us know how he does.   
Also call them for the results Monday if you didn't get any yet......They may not have them but by doing so it lets them  know that you are on top of things and will call you as soon as they get them.   I learned the hard way in the beginning......trusted that if the results were bad that we'd get a call.........WRONG.......we were made aware  that there was something wrong from his PC doctor a couple months later and to call his GI doctor who had ordered the sonagram  (he didn't call us back) ........and then a couple of days later......at his appointment with the hepatologist.......he asked us why were there?... that my husband needed to be hospitalized and that he had liver cancer and wanted us to go directly to the transplant hospital.  That started the journey of ESLD for us.  
I was such a baby in this disease during that time and learned as I went.   I didn't find this forum until about 5 months before my husband died.   I feel that if I would have only found it sooner there may have been a different out come.......or at least he would have lived longer. 
When my brother was hospitalized last June........I felt like a veteran.  I knew what to expect and also knew what to do and what questions to ask.  The doctors were impressed that I actually was as educated as I was on this disease.   They actually  talked to me and didn't blow me off.  What a difference from the 1st go round.   Unfortunantly same out come... as my brother also had emphysema. 
Anyways Linda.......remember to take care of yourself too during this journey......take little breaks when ever you get a chance to .  You need to catch your breath and recharge your batteries every so often. 
Lot's of thoughts and prayers.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

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