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livvielou
New Member


Date Joined Apr 2010
Total Posts : 6
   Posted 4/27/2010 7:15 AM (GMT -7)   
My neighbor age 42 found out she had cirrhosis of the liver about two years ago from drinking.She just quit drinking a couple of months ago.She would drink Captain Morgan rum almost everyday and drink until she passed out.Now she's in pain everyday and is having to go to the hospital every three days to be drained.Last week she was swelled up to the hips and the Dr. upped her Lassix. She was told she would die before she could get a transplant.My question is since she is having to be drained so often now is she close to the death? She went from being drained once a month to now every three days.And why did it go from once a month to every three days so fast?

livvielou
New Member


Date Joined Apr 2010
Total Posts : 6
   Posted 4/27/2010 8:49 AM (GMT -7)   
I should have added I check in on her everyday while her husband is at work and I want to know what to expect.I don't want to find her dead.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/27/2010 9:23 AM (GMT -7)   
Livvielou, welcome to the forum.  You will find a lot of information and support here.  I suggest you start by reading the information in the folder at the top of the forum entitled Hepatitis Resources.  It's really about liver disease and particularly end-stage.  Also, do a search on here for alcoholic cirrhosis and paracentesis to bring up posts on those topics.  Nobody can tell you how long she has left, as liver disease is so individualistic.  However, you will get a better idea about what to expect by reading the above.
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


mathman
Regular Member


Date Joined Jan 2010
Total Posts : 31
   Posted 4/27/2010 9:49 AM (GMT -7)   
Livvielou, with the right treatments and total abstention from alcohol, some patients (even those who are that far advanced) improve. It's not a guarantee but it's possible. Your neighbor should do everything she can to educate herself about her disease and see if she can join a forum like this one, DailyStrength, or MDJunction. All have a lot of great people who know about or have liver disease.

Here is a website with lots of great information, written by a man who was in the same boat and improved:
http://livingwithliverdisease.ning.com/

Keep checking on her and provide her with support. Alcoholism is a tough monster.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/27/2010 3:18 PM (GMT -7)   

Livvielou, the probable reason for her doctor telling her she would die before she gets a transplant is the fact that all transplant centers require 6 mos. of DOCUMENTED sobriety in AA or alcohol counseling before they will even evaluate an alcoholic.  He probably doesn't think she can stay sober long enough.  She's awfully young to give up.  If they can get the ascites and edema controlled, she should start going to AA.  There is also a procedure known as TIPS to help with the fluid problem, but she must be healthy enough to undergo the surgery.  Is she being seen by a hepatologist?  If not, she should be.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


livvielou
New Member


Date Joined Apr 2010
Total Posts : 6
   Posted 4/28/2010 7:51 AM (GMT -7)   
Yes she is seeing one.She still wants to drink the only reason she stopped was because of the pain.I'm sure she won't go to AA. She was drained last thursday and friday was filling up again.Got it done again monday and getting done again tomorrow.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/28/2010 9:28 AM (GMT -7)   

If she can stay stopped, she might have a chance.  However, fluid retention bad enough to be drained every few days is an indication that her liver is in very bad shape.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


livvielou
New Member


Date Joined Apr 2010
Total Posts : 6
   Posted 4/28/2010 11:16 AM (GMT -7)   
That's what I was thinking also that it is probably very bad.Her husband called me one night last summer he seemed mad.I asked him where she was he said out drinking where do you think.He told me he was really mad at her about a lot of things not just the drinking but he didn't want to talk about it just wanted to talk about anything else but her.I think he's had it with her he dosen't seem to care.When someone askes him how she is he'll just say she's dying her liver is gone.He says it in a way like and it might rain tomorrow.I can't help but feel sorry for her because that's just the way I am.I worked in nursing homes for alot of years saw alot of death but never saw one like I think this is going to be.Saw my dad die from cancer had it myself but I don't think it was half as bad as dying like this is.Now that she's got bad and is in pain all the time he'll just take off go to see friends and leave her there alone.
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