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shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 5/15/2010 1:00 PM (GMT -7)   
David, Yes we were with BI. We started there in 2000 but after awhile they transplant center had to go through a change over so all patients were assigned new centers, we got lahey and they were horrible! We had no luck at first finding a Dr here to Tap him and it would take forever to get someone at lahey so he would be in agony for as long as a week or more one time he got so bad an ER doctor here did as an emergency. He couldnt believe they let him go so long. As soon as BI was up and running again we went back to them. They were awesome to Doug and myself. They didnt just take care of him, they were my support system too. Our local hospital loved working with them too as we got a network going locally between Drs, Labs and nurses. I couldnt begin to tell you how far above and beyond they went for us. When Doug passed they also remained a support for me! I also heard good things from them about MG too.
Sue
When I started counting my blessings my whole world turned around.


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 5/15/2010 2:46 PM (GMT -7)   
I've heard good and bad things about the follow up at BI. The nurse/therapist who helped me through my interferon treatment over on the cape, eventually went to BI and worked for Dr. Afdahl (sp). He's supposed to be one of the top hepatologists anywhere. Lahey is a great organization, but many people have had bad things to say about their communication with patients. One thing I like about BI is that the hepatologist and their team stay with patients after the transplant. At MGH, I no longer deal with the pre transplant team and have been handed to the surgeons and their team. The transplant team have been wonderful, but I had 5 years with Dr. Pratt and his PA, Abigail and I was used to them. My treatment is second to none, so this isn't a knock on anyone. I feel great about everything, that everyone has done for me at MGH, but I miss my original team. Be well. **David**

shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 5/15/2010 8:46 PM (GMT -7)   
Yeah we started with Dr Afdahl, spelled it right, He is good but he played a part in the program having to be revamped. He is world renowned for a hepatologist but he was not as good at running the program or conforming to rules! Dr Curry was a fellow with him and he took over when they reopened, he stays very involved pre and post transplant. I have a friend who got his TP at BI and they are still very active in his care and it has been at least 6yrs. I guess once the surgeons are done you revert back to the center for all follow ups. Actually my friend is from the cape also. Doug was part of a group in Hyannis for awhile that raises money for people waiting for a transplant.
I am glad you have done so well with your transplant and your passing on your positives from this.
Sue
When I started counting my blessings my whole world turned around.


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 5/15/2010 10:11 PM (GMT -7)   
Another difference is that BI doesn't do live donor transplants. If you went to Dr. Afdahl, did you meet Deb. She was the nurse/practitioner from the cape that took care of me and then went to work at BI around 2005-6. Dr. Sugar was the cape doctor she worked for. **David**
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