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pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/17/2010 6:38 PM (GMT -7)   
hello my mom was dignosed with nash a type of liver disease. she is 73 she also has kidney,rhumatiod arthrtis. von williburn,chf,ascitis,diabetic,and other health issuse. she is on lactouse and directics. right now everything seems good right now she sleeps alot. dr gave her 1 to 3 years. she was tapped 1 time 2 liters were removed. she seems to be swelling up again. how is nash diffrent from other liver problems. she was frist told she had cirrhosis.

Post Edited (pug5) : 5/17/2010 8:07:52 PM (GMT-6)


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 5/17/2010 6:50 PM (GMT -7)   
Hello Pug5 and welcome to HealingWell. I am glad you found us.
Sorry that your mom has NASH and so many other health ailments. You have found the right forum we do have members who are dealing with NASH . Hopefully one will come on soon.
How long has it been since she was diagnosed with NASH? Fatigue is a big issue with all the liver diseases. Is she under the care of a hepatologist? As you probably already know liver disease of any type is a long hard journey.

Take care........thoughts and prayers....
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/17/2010 7:01 PM (GMT -7)   

Welcome, Pug5.  NASH is an acronym for non-alcoholic steatohepatitis (also known as fatty liver disease.)  And I believe you mean von Willebrand's disease, a bleeding disorder.  Please refer to the Medical Word List for other words.

 


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/17/2010 7:12 PM (GMT -7)   
thanks yes my spelling is bad when i hurry yes she has a liver doctor and we were told 3months ago

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 5/17/2010 7:23 PM (GMT -7)   
Wow, three months ago and already on lactulose and diurectics? She must have been suffering with it for a while before she was diagnosed. Are you her primary caregiver? Sometimes care giving is almost as hard on the caregiver as the patient. smhair So remember to take care of yourself too. Thoughts and prayers...
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/17/2010 7:45 PM (GMT -7)   
yes we are thinking she must have. yes i am. i am a certified nursing assistant and daughter. so some of it i kinda got but i do need to learn too. where is the medical word list.

pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/17/2010 7:52 PM (GMT -7)   
i have been reading your site for awhile but wasn't sure about it. but pink grandma you sound like you understand. but also i dont know the right word straight forward. and i like that. i am not much on web chatting but i had to be able to find out what i can

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/17/2010 7:57 PM (GMT -7)   

Pug, it's on the main page of the Hepatitis forum, near the top.  The best thing you can do for your mom is to get educated about her disease, and also remember to take care of yourself.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/17/2010 8:39 PM (GMT -7)   
i am learning between job and family. some i knew from work but you never think about it being there she never drank or did drugs but what a doctor gave her so i never thought...... and most cirrhosis i am around was someone being alcohlic soooo a person never knows. i have found tons of info on the web but she really hasn't been real bad like i said mostly sleeping.

Post Edited (pug5) : 5/17/2010 9:52:31 PM (GMT-6)


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/18/2010 10:04 AM (GMT -7)   

Pug, if she is on Lactulose and sleeping a lot, she is probably in serious shape.  The Lactulose, in case you don't know, is for hepatic encephalopathy (mental issues) which result in confusion, agitation, and being "out of it."  This is caused by a buildup of ammonia in her brain, and the Lactulose removes it through bowel movements.  If she is sleeping 18-20 hours a day, she is in serious condition.  Just because she doesn't have some of the things you may have read about, doesn't mean that she is not very ill.

Hugs,

Connie



hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Post Edited (hep93) : 5/18/2010 7:15:54 PM (GMT-6)


pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/18/2010 4:33 PM (GMT -7)   
yes i do know about the sleeping and the meds i am just saying she has not having pain right now or mental problems at this time. which for right now is good

pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/25/2010 10:12 AM (GMT -7)   
hello again just checking in. mom is doing well. her other kids are here to see her. taking her for short rides. she seems to be enjoying it. i told them they need to come see her now because i had read enough to understand next week could be to late. thanks for being here. pug

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/25/2010 1:31 PM (GMT -7)   

Pug, that's good that you are getting some family involvement.  If you could get some of them to take her to medical appts., etc., too, that would be helpful.  You should not have to do it all.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/25/2010 3:26 PM (GMT -7)   

no one lives close enough to do that. but they each has taken her for short periods of time. so that i do have breaks. also my adult children lives around me so that helps. i really think doing what she wants with her kids while she can is a good thing not always does someone lucky enough to get that chance. she is pretty happy right now. i feel happy for her too.


pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/25/2010 3:42 PM (GMT -7)   
they live 3 hours or more from where mom lives. but i do thank them for coming on their days off once in awhile to help. their is 5 of us but 3 of us are really involved and helping in our own ways. it does take the pressure off a little. and does make mom happy and right now thats important. she was a single woman with 5 kids and worked as a secrtary and made our clothes. she did the best she could for us. so right now making her smile is a very good thing.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/25/2010 5:15 PM (GMT -7)   

It takes a lot of strength to raise 5 kids alone.  Maybe that strength will help her through this difficult time.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


KathleenW
Regular Member


Date Joined May 2010
Total Posts : 80
   Posted 5/25/2010 8:35 PM (GMT -7)   
Sorry to hear about your mom - I am going through the same thing but my mom was diagnosed with NASH over a decade ago. She has moved into cirrhosis and it is pretty bad. Hope you are holding up and keep coming back to this site - it is helpful, the people are wonderful and there is a ton of real life experience.

Bless you and your mom!
KathleenW

pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/25/2010 9:28 PM (GMT -7)   
How old is your mom. KathleenW. My mom is actually not down right now she has lost alot of water weight and not eating a whole lot but she was over weight. she has lost 40lbs which now puts her at 225lbs. So she is pretty stable right now,but we know that can change quickly.

pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/25/2010 9:39 PM (GMT -7)   
Mom has had some other changes since this started but not many. Her biggest has been her weight. Not much else but sleeping and getting tired easy. We just vist and do what we can and getting to know each other again. Its sad that we had to have this happen to make us get back together,but doesn't it seem families do that. We get to living our lives and lose touch. glad things are stable now so we can all be together with her now.

KathleenW
Regular Member


Date Joined May 2010
Total Posts : 80
   Posted 5/26/2010 5:13 AM (GMT -7)   
NASh can actually be managed so it does not end up as Cirrhosis. The fact your mom is on Lactulose would lead me to think the problem is more advanced. Mom is 77 and was overweight but only by about 30 pounds or so. Mom started Lactulose in the hospital about a month ago, truth be told, she should have gone in about 4 months before that and started the drug. I learned a number of the drugs mom was on prescribed by her doctor were actually also harming her liver such as Actos and Metforman (spelling) to control her blood sugar. Many things, including having a BMI at 30 or over, can cause NASH and lead to Cirrhosis. Aspirin and the non aspirin pain medications are also not good for your liver if you have NASH. I wish there was more education around liver health out there... I am shocked at what I am learning now. Good luck with your mom and keep coming back to the site!

KathleenW

pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/26/2010 2:40 PM (GMT -7)   
She has cirrhosis at this point she was on methatrixate(spelling). Her doctor thinks that med caused her liver damage. I have worked in the a nursing home since 1992 and a hospital for 3 years and I know we are a small area but I still am shocked what I have learned in the last few months. And I really didnt think I was a stupid person but I really feel like I missed something.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/26/2010 2:57 PM (GMT -7)   
I added methotrexate to the Word List.

hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


pug5
Regular Member


Date Joined May 2010
Total Posts : 70
   Posted 5/26/2010 4:21 PM (GMT -7)   
Thanks.

KathleenW
Regular Member


Date Joined May 2010
Total Posts : 80
   Posted 5/26/2010 9:02 PM (GMT -7)   
Don't feel bad... I missed a ton with my mom. I work for Blue Cross and have access to all kinds of professionals, claims data, pharmacy studies etc. Mom was on Metforman (spelling) for her diabetes which is a huge no no for liver disease. I found the warning within 5 minutes on line once I looked. Worst part... She gave me her drug list every year so I could make sure she was on the right Medicare D plan. I never took time out of my busy schedule to look up her drugs to see what warnings were out there - on the other hand, I doubt she would have taken my word over her doc. Neither of us is stupid! We just expected the professionals to do their jobs. I am really mad at my mom's doctor - this was not the only thing missed by any means - had she done her job a bit better, we would have more time. But, we both need to focus on today and what little we have with our moms in the near future. That's all we can do now. I am determined to have no regrets! You seem like a very caring person and I know you will make your mom's time as good as you can.

Stay strong!

KathleenW

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/26/2010 9:23 PM (GMT -7)   

Kathleen, doctors and others in health care miss things all the time.  I think one reason for that is too many patients.  They simply don't have sufficient time.  Another thing is lack of communication---the patient not communicating effectively with the doctor and doctors involved with the same patient not communicating with each other.  That's one thing I like about Mayo.  Everything is in the computer system, so a new doctor will pull up a patient's history and be able to see all the diagnoses, meds, what has been done thus far, etc.  They take their time.  I have never felt rushed there.  They also work as a team, so it is not just one doctor making decisions and treating.  I know at Shands they missed a few important things with me.  This is one reason it is so important for patients to advocate for themselves or have someone doing it for them.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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