Post Edited By Moderator (Pink Grandma) : 5/31/2010 9:10:16 AM (GMT-6)
Hi, Dee Linder, and welcome to the forum. Is the doctor who diagnosed you a hepatologist? If not, you should be referred to one. Also be sure to ask what your test results mean. It is not likely you will suddenly die if you get hot and sweaty. I don't know where your nurse friend got that bit of info! You can do whatever activities you feel up to doing.
Yes, the current treatment is a combination of 2 drugs and it's a 48-wk. course. However, there is a better treatment becoming available early next year that adds a 3rd drug and has a higher success rate, which only has to be taken for 24 wks. I am waiting for that one myself.
The only symptom most people with hep C have is fatigue. The danger is that it can lead to liver cancer (which happened in my case) and cirrhosis (which I also have.)
The most important things you can do for hep C are to abstain from alcohol intake, eat a nutritious diet (lots of fresh fruits and veggies and water) and get sufficient rest. You will also need to make a decision about treatment.
Post Edited (hep93) : 5/30/2010 1:42:03 PM (GMT-6)
It's probably a hepatologist then. And you need to ask about Lasix or Aldactone or both for the swelling.
Dee. liver disease is such an individual thing. Also, it depends on whether you respond to treatment. Hep C causes cirrhosis and liver cancer. You've already been diagnosed with cirrhosis. Did you have a biopsy? With some people, the hep C virus very quickly replicates, causing ascites (fluid in the belly), varices, and end stage liver disease. With others, the activation is very slow. When you see your hepatologist again, ask him what your viral load is.
Hello Dee and welcome to HealingWell. So sorry that you are dealing with this disease.
Glad you found us.......as you can see we have lot's of knowledgeable compassionate members.
Can't add much more at this time than the others have told you.....except for that in our educational thread there's a lot of good information that we put together from posts from some very dear members who were kind enough to explain liver disease in layman's terms so that it's easier for people to understand. Please check it out is in the Resource post near the top of our forum.
Also have you put your email address in your profile? That's the safest way to do it. So that only members have access to it. I am going to edit your email on your first post so that spammers can not pick it up so easily. If you have a problem doing it , let me know and I will walk you through it.
Take care.......thoughts and prayers......
Dee, the biopsy will tell more exactly how bad your liver is. Also, if you have a swollen belly, that's likely ascites. Ask your doctor about a diuretic when you see him.
Good luck with your move, Dee! Once you get settled, let us know the outcome of your biopsy.
Jewelz, thank you for your input. If you would like to copy your post into a new thread (New Topic) and introduce yourself, that would be appreciated.
I'm glad to hear that the combo treatment seems to be working for you. Those with Genotype 1a and 1b will have a new treatment available the beginning of next year, which is only 24 wks. long and has shown a 75% cure rate in trials. I'm glad to hear that your treatment is only 24 wks. I know that it can be very rough.