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Charlie92
Regular Member


Date Joined Jul 2009
Total Posts : 192
   Posted 6/2/2010 5:50 AM (GMT -7)   
My wife was admitted to the hospital last Friday after several days of severe nausea and vomiting. Her discharge diagnosis was "hyponatremia" (low sodium). She was released this past Monday and placed on a fluid restriction of no more than 50 oz of fluid per day. She had a good day yesterday and really had no problem with her fluid restriction. Has anyone else had any experience with this problem, as this is the first I've heard of a liver patient having been diagnosed with this. I knew that an electrolyte imblance could cause problems, however I never knew it could make you this sick.
 
Charlie

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/2/2010 9:40 AM (GMT -7)   
Charlie, sorry to hear that your wife was ill enough to be hospitalized. Low potassium, sodium, and calcium (or high) can cause problems. It's quite a balancing act.

Hope she's feeling better now!

Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Charlie92
Regular Member


Date Joined Jul 2009
Total Posts : 192
   Posted 6/2/2010 10:13 AM (GMT -7)   
She is actually having another good day, but of all people, you know how this roller-coaster ride works. I just  hope and pray that we can keep the balance under control so that she can have some quality of life. Her dr has also changed her  Xifaxan dosage to two 200 mg tablets three times a day instead of the three morning and night tablets  she had been taking. Her Kristalose dosage has also been increased. I've got my fingers crossed..........
 
Charlie

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/2/2010 6:07 PM (GMT -7)   
It also happened to my husband. The doctors put him on a low sodium diet.... then it got too low and he was hospitalized. Who would have thunk?!? They didn't tell us that it getting too low would be dangerous. skull


Glad your wife is doing better. Hang in there........lot's and prayers........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/2/2010 9:53 PM (GMT -7)   
Charlie, I looked up Dougs info as this sounded familiar and yes he had been diagnosed with "hyponatremia also, the balancing act is a tough job.
Sue
Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.


Charlie92
Regular Member


Date Joined Jul 2009
Total Posts : 192
   Posted 6/3/2010 5:16 AM (GMT -7)   
As you folks have said time and time again, being a caregiver is a real challenge. I do my best to keep everything on an even keel, and try not to worry so much, but each day when I wake up I say a little prayer and keep my fingers crossed. It seems that we get one problem under control, and up pops another one. She gets really down when she remembers things she used to enjoy doing (shop, weekend garage sales, etc) and now she just doesn't have the energy. It's really tough wanting her to feel good, but knowing she has to get much sicker to get a transplant. I don't want her to get worse, but in the back of my mind I know that it has to happen for her to get a transplant and a new lease on life. She has an appointment to see her Hepatologist next week, so I suppose we will find out if her MELD score has changed. Thanks for the comments and support, before I found this group I felt like that I was the only person in the world having to deal with this ordeal. Family and friends just don't understand how tough it is for both of us, as they have no idea what this roller coaster ride is really like. I just pray that my health doesn't go down-hill, for if something would happen to me, she would be up the creek, as she just can't manage her meds, appointments, etc.

shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/3/2010 12:01 PM (GMT -7)   
Charlie, As an old hat at being a care giver I totally understand what you go through day to day. You cant plan anything beyond the day your in. You really need to have someone to sit with her for just a few hours and do something you enjoy, even if its just a walk in a park, sit at a picnic table and have a sandwich anything. Is there someone to help you?
Sue
Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.


mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 6/3/2010 5:40 PM (GMT -7)   
Charlie, I completely understand what you are feeling. Yes, it does seem that once you get one issue taken care of, another pops up. We thought we were on an even keel....we have finally gotten my husband's seizures under control, and his transplant team is goin through the motions of getting him off of "status 7" (inactive) back to active on the list. We had a routine doppler sonogram done last week and it is showing that one of his kidneys is enlarged.....so kind of waiting for the phone call from our transplant coordinator telling me we have to find out what the deal is with his kidney before we can go any further. It may not happen, but been around this block long enough that I know they will question it. All I can say is, do take some time for yourself. I have a wonderful group of friends that manages to get me away for a couple of hours a week to go to lunch while our son is in school. Believe me, those couple of hours a week are such a blessing!! You take care of you, too!!
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