David, I e-mailed you, but it took 2 members of the PIC team to get a vein...3 different tries...under imaging.
Mer, unfortunately the new treatment still includes interferon and ribavirin. I had been treated for a short time when I was first diagnosed with hep C in '93. At that time, the only treatment was interferon alone. I tried 2 separate trials of it, about 6 mos. apart, but each one lasted less than 8 wks. My white count plummeted so low both times that I was taken off treatment. I have therefore been reluctant to again try anything with interferon, but with this shorter treatment time I'm hoping I will be able to handle it. My doctor also said they have meds now to deal with various side effects--although I would think that psychosis would contraindicate interferon in your husband's case. (I had the same thing happen decades ago with Prednisone and don't do well on steroids of any kind.)
Post Edited (hep93) : 6/11/2010 12:32:19 PM (GMT-6)
Dany, I hope FDA approval will come quickly and not be delayed needlessly. Please let us know of anything you hear through your friend at Vertex!
Thanks and hugs,
I was an IV drug user in the 60s and have a lot of scar tissue, so they are limited to where they can even try. I also have very small, superficial veins that branch off. Therefore, for an IV, they have to use imaging and access a deep vein in my inside upper arm. It does hurt something awful in the hands, so I make those off limits, but mine are also too small for an IV.
Mike, I think you meant you hope your liver is NOT too far gone for the new treatment (typo.)
The fatigue and wiped out feeling is likely from the liver disease, not the meds. However, I don't think it's the best idea to be limiting fluids if you are going to be out in the summer heat for longer than a few minutes. I take a bottle of water with me at all times, so I can just take a swig here and there. Dehydration WILL make you feel tired and dizzy. You can restrict fluids once you are indoors, but outside--stay hydrated! I still take 20 mg Lasix and 100 mg Aldactone. However, I have now cut them to twice a week as I see my BUN steadily climbing up and know it's from the diuretics. Next, I will try taking them just once a week or PRN.
I hope we will both be able to try the new treatment next year, Mike! Meanwhile, just listen to your body and if you must sleep, do so.