I have not posted in a while, but here we go again. My husband had been status 7 (inactive) on the transplant list due to medical. He had been having seizures constantly and we now have the seizures under control. Now that they are under control, his transplant team was re-submitting for approval with medicaid for transplant. Well, medicaid denied coverage for transplant due to lack of evidence proving medical necessity!! So, next week, we are going to see the hepatologist and she will do what she needs to do to document medical necessity. In the meantime, we had a doppler ultrasound of his abdomen as he had not had one done in a while and it showed that his left kidney was enlarged. Not sure what that is about, and I know I need to address it with the doctor, but am waiting for the other shoe to drop saying they cannot make him active again until we find out what's goig on with his kidney. In the meantime, he is sleeping more and more throughout the day, really does not look good, and obviously not feeling well, but his MELD score is only a 7 or so. This has been such a long bumpy ride (6 years) and would like to see something happen! Sorry for the blubberying, just needed to vent!