Back on the roller coaster

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mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 6/10/2010 8:49 PM (GMT -7)   
I have not posted in a while, but here we go again. My husband had been status 7 (inactive) on the transplant list due to medical. He had been having seizures constantly and we now have the seizures under control. Now that they are under control, his transplant team was re-submitting for approval with medicaid for transplant. Well, medicaid denied coverage for transplant due to lack of evidence proving medical necessity!! So, next week, we are going to see the hepatologist and she will do what she needs to do to document medical necessity. In the meantime, we had a doppler ultrasound of his abdomen as he had not had one done in a while and it showed that his left kidney was enlarged. Not sure what that is about, and I know I need to address it with the doctor, but am waiting for the other shoe to drop saying they cannot make him active again until we find out what's goig on with his kidney. In the meantime, he is sleeping more and more throughout the day, really does not look good, and obviously not feeling well, but his MELD score is only a 7 or so. This has been such a long bumpy ride (6 years) and would like to see something happen! Sorry for the blubberying, just needed to vent!
 
Mer

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/10/2010 8:57 PM (GMT -7)   

Mer, what the heck?  Do they think people have transplants because they have nothing better to do???  Geez!  So okay...I hope the doctor documents every little thing.  Did he get labs done, too?  If his creatinine and BUN are okay, I wouldn't worry too much about the kidney if they didn't notice any cysts or tumors.

Keep us updated, okay?

Big hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 6/10/2010 9:05 PM (GMT -7)   
Thanks, Connie....will do. I think the hepatologist will probably run a complete new set of labs when we see her next week. She is an amazing, and very thorough doctor. It's just irritating that we have to jump through these hoops for medicaid or any insurance company that is not in the medical profession. Like you said, he's not getting a transplant just for the heck of it!!

Talk to you soon
Mer

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 6/10/2010 9:08 PM (GMT -7)   
Oh, and his creatnine was 1.1 which is in the normal range...higher end of normal but in the normal range and BUN is 15 mg/dl which is dead center of normal. I am sure we will just keep a watchful eye. He is on topamax for his seizures and from what I understand it is secreted through the kidneys, so it could just be his kidneys are having to work overtime.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/10/2010 9:37 PM (GMT -7)   

The Topamax might be the culprit.  But his BUN is a whole lot better than mine, which was 33 as of yesterday.  I'm cutting back again on Lasix and Aldactone--from 3 x a week to once a week.  I know it's causing the elevated BUN in my case.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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