Confusion for the First Time

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

justmichelle
New Member


Date Joined Jun 2010
Total Posts : 3
   Posted 6/15/2010 8:37 AM (GMT -7)   
Hi, my mom was diagnosed with non-alcoholic cirrhosis of the liver a few years back. Not sure how she got it. She had been doing okay. She uses water pills for the water retention. Her main problem has been swelling of the legs. She has been a great hardworking mother all her life. Never stops. Yesterday for the first time she started acting strange. We had never ever seen her like this. And it was extremely scary and sad. She repeated herself alot. And argued that the lights where off, things like that. We knew this would happen eventually. But I guess we weren't prepared for it. I hate to see her like this and want it to go away. We took her to the hospital a few hours after it started. Turns out she had a UTI which caused diarrhea and dehydration. They beleive the confusion could have come from both the dehydration and the ammonia levels. After I left the hospital this morning I immediatley started googling stuff on the internet and foung this forum. I already have a list of things I'm going to ask her doctor. And things I will do myself to help with all this. This forum has great information and support. sad
 
Thanks so much!
.....Love still stands when all else has fallen.....
 
 

DGinSD
Forum Moderator


Date Joined Apr 2007
Total Posts : 839
   Posted 6/15/2010 9:15 AM (GMT -7)   

Hi Justmichelle,

Welcome!  Sorry to hear your mom is getting confused now.  Had they been giving her anything for the ammonia before?  How often has she been going in for lab work and evaluations?  I don't know much about what she has but is there any treatment for it to slow it down or do you just treat the symptoms?

Welcome again and you'll find a whole lot of helpful, caring and very knowledgeable people here.


Dany
 
Diagnosed with AIH January 2007,
CMV (cytomegalovirus) June 2008
Raynaud's February 2010
meds: Azathioprine 100mg, Ursodiol 250mg BID
 
 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/15/2010 9:21 AM (GMT -7)   
Hi, JustMichelle, and welcome to the forum. Is your mom seeing a hepatologist (liver specialist?) If not, I suggest she do so. I'm also wondering if she is on Lactulose for the confusion. Nonalcoholic cirrhosis can be caused from certain medication toxicity, from viral hepatitis or autoimmune hepatitis, or other causes. The more you are able to find out about her medical condition, the more information we can give you and the better equipped you will be to deal with it.

Hugs,
Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Post Edited (hep93) : 6/15/2010 3:35:15 PM (GMT-6)


susie_sassafrass
Regular Member


Date Joined Jun 2010
Total Posts : 317
   Posted 6/15/2010 9:22 AM (GMT -7)   
In the spring of 08, I went to my internist for a routine checkup.  She felt I was off mentally and ordered an ammonia test.  My test came back extremely high (300) so she told my husband to take me to the emergency room at the hospital where my hepatologist practices.  They initially put me on enulose but betweeeen my diuretics and the diarhea the enuluse caused I was always in the powder room.  My liver doctor then prescribed Xifaxin which I have been on ever since.  I  still have bouts of forgetfulness and have trouble finding my words.  If I have to do something, my husband is great about leaving me reminder notes.   It's a day to day thing.  Unfortunately, these problems make it impossible for me to work, and I am on social security disability.
 
I am also prone to UTI's.  I take 50 mg of nitrofurantoin daily to prevent recurrent infections.
 
Susie
 

justmichelle
New Member


Date Joined Jun 2010
Total Posts : 3
   Posted 6/15/2010 11:42 AM (GMT -7)   
hep93 she does have a liver specialist. Some of the meds she is on right now are Lasix which is the water pill. And for the liver she is on Urso Forte, although it makes her extremely sick and she doesn't like to take it often. She was given Lactulose at the hospital today for the first time. Dr. says she will be kept on that from now on to avoid this in the future. Dany, the last time she was seen for an evaluation or blood work was in January. They usually call every 3-4 months to see her again. The last two times she has been at Emory, her liver was at the same stage which was a 13. Her liver doctor saw her last in January also, and she wasn't scheduled to see her again until six months since she was doing so well. She would have seen her this 22nd. The specialist said that she is surprised that my mother had this confusion problem being that her liver is not in the stage where it should happen often. She belives that the UTI & dehydration brought it on. Susie, I will ask about the nitrofurantoin, anything that will help. I don't want to see her that way again.
 
Thanks!
.....Love still stands when all else has fallen.....
 

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 6/15/2010 2:05 PM (GMT -7)   
Hello, Just Michelle. Welcome to the forum. You will find a wealth of information here as well as support from both caregivers and patients. I, myself, am a caregiver. With regard to the confusion (encephalopathy), sometimes even the slightest rise in ammonia level can cause it.....it just varies from patient to patient. I will tell you this, my husband's liver team explained to me one time that any kind of imbalance can cause problems whether it be an infection, electrolytes off, etc. It is good they are keeping her on the lactulose. She may not like it or the side effects that come with it, but it is very important to get that stuff out so she does not get as confused. You take care of you, as well!

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/15/2010 2:44 PM (GMT -7)   

Michelle, if she doesn't have bladder infections, no need to ask about the nitrofurantoin.  What you might want to ask about is Xifaxan in addition to the Lactulose or Enulose.  If you do a search on this forum for encephalopathy you will find a lot of info!  Good to hear she's being seen at Emory.  It's supposed to be excellent.  In fact, the Mayo surgeon who excised the rt. lobe of my liver left Mayo and went to Emory.  He was young, so maybe he wanted to be in "Hotlanta!" 

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/15/2010 8:50 PM (GMT -7)   
Hello Michelle and welcome to HealingWell. I am glad you found us. Sorry that you had the need to though.
Infections are one big headache for liver patients. They definitely do contribute to encephalopathy.
Here's another vote for Xifaxan. Ask her doctor about it.

Take care.......thoughts and prayers.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


justmichelle
New Member


Date Joined Jun 2010
Total Posts : 3
   Posted 6/17/2010 9:46 AM (GMT -7)   
My mom will be released from the hospital today. She is doing prefectly well, mentally. Back to her normal self. I'm really happy this has passed. However, I know that in the future we will be seeing this gradually increase. But at least were a little more prepared now. She will be kept on the Lactulose from now on. And if ever I see that it's not enough I know what meds to ask her doctor for or to just increase the Lactulose. I feel so much more comfortable now that I have a little bit more knowledge about this disease. And that there is so many people out there dealin gwith this on a daily basis. And if they can do it. We can too. I was even able to explain alot of things to her. Thanks for all your help!! Anything that comes up, I will be here.  
 
Thanks so much!
.....Love still stands when all else has fallen.....

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 6/17/2010 11:00 AM (GMT -7)   
Michelle! So glad she is doing better! Lactulose is a medication that you can increase and decrease. It is imortant that she take at least one dose of it per day (we had this discussion today with my husband's hepatologist) to get those toxins out of the system. I will also give a vote for the xifaxin, but I will also tell you that it is a VERY expensive medication and alot of drug plans will not pay for it unless the doctor tells them it's a necessary medication, etc.

I am glad you are at Emory....they are a WONDERFUL hospital! (I am originally from that neck of the woods).

You take care!
Mer

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/17/2010 3:12 PM (GMT -7)   

Michelle, I'm very glad to hear that they got your mom's encephalopathy under control.  Just make sure she takes her Lactulose, as Mer stated (even though I hear it tastes awful.)  You can try mixing it in juice if that makes it easier for her.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


KathleenW
Regular Member


Date Joined May 2010
Total Posts : 80
   Posted 6/17/2010 8:36 PM (GMT -7)   
One of the patients where my mom was in transitional care liked to mix it with diet sprite or 7 up. Said it was a whole lot easier to get down. She also told me it was awful tasting, but my mom took it quite well. Important to make sure your mom does take it as directed and more if she is not having about 4 BM's a day!
Kathleen
Life is painful, suffering is optional

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 9:07 AM (GMT -7)
There are a total of 2,733,488 posts in 301,127 threads.
View Active Threads


Who's Online
This forum has 151264 registered members. Please welcome our newest member, bvail.
330 Guest(s), 8 Registered Member(s) are currently online.  Details
schoolpsych, Tickled6, gitane44, ASAdvocate, maria2016, ChickenArise, Traveler, straydog


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer