Very low blood pressure

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Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 6/15/2010 4:49 PM (GMT -7)   
Still waiting on the results of the last chemoembolization but we find out this Thursday.  It's been very hectic!  (David, I have three letters to you in my drafts folder!)  My hubby has been very anemic and finally had to have a blood transfusion last week Thursday.  They gave him two units of blood, took him off all Interferon for now and I don't know why they didn't stop it sooner.  His blood tests have shown very low levels even with injections of Procrit and Neupogen.  His blood pressure has also been extremely low.  It was 76/60 tonight.  He has a CT scan, radiologist appointment and hepotologist appointment on Thursday and on Friday they are doing the colonoscopy and some other gastric test.  Anyone experienced very low blood pressure and anemia? 
 
Thank you,
Linda

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/15/2010 6:33 PM (GMT -7)   

Linda, only when I was much younger--not after chemoembolization or with liver cancer.  But by then I was on BP meds.  Low pressures used to make me dizzy.  It can also make a person feel wiped out (in addition to all else he has going on.)

Thanks for the update and let us know the results of everything.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


**David**
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Date Joined Nov 2009
Total Posts : 3708
   Posted 6/15/2010 6:59 PM (GMT -7)   
Hi Linda, I had both low blood pressure and anemia, when I was doing the cocktail. In my case, Procrit helped. I never needed a transfusion and would have resisted one, seeing as that's how I got the virus when I was 14. Send me your drafts, I'm interested in what you have to say. Good luck! **David**
"No good deed goes unpunished."


Pink Grandma
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Date Joined Nov 2006
Total Posts : 2445
   Posted 6/15/2010 8:40 PM (GMT -7)   
Hi Linda, If your husband is taking diurectics .......they may need to be cut back some. It was the case with my husband a time or two when his blood pressure dropped. Call his doctor asap.
A lot of the meds need to be readjusted on occasion as symptoms develop.
For some liver patients, anemia is common.

Take care........thoughts and prayers........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/15/2010 9:38 PM (GMT -7)   
Linda, I also say yes to diuretics for low blood pressure. I learned that they upset the balance with the kidneys which will then cause low blood pressure. I used to have to take Dougs BP every morning at same time. He was maxed on the diuretics though, hence the daily BP, so when it was low we had to call Dr and change doses for awhile. You do need to call DR when ever it drops low like that though.
Sue
Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/15/2010 11:13 PM (GMT -7)   

That really is a low BP reading.  I agree with PG and Sue that you should alert his doctor.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 6/15/2010 11:28 PM (GMT -7)   
get on the BP that's what the initial crisis prob with Mike was... which led to kidney failure and multiple organ failure... but he was still on bp medicine... which was a no no... also....60/40 or something like that when he went in... and man I never thought to do a daily reading... or knew about the diuretics... keep ur ears open guys...
There is no pit so deep that He is not deeper still... Corrie Ten Boom


Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 6/16/2010 2:12 AM (GMT -7)   
I'll call the doctor's office today but his blood pressure hs been running low for a while now and they haven't said much about it. His Lasix and Spirolactone have been adjusted a few times. He's been on one or the other and then the combo. For the past week or so he noticed the combo of Lasix and potassium was giving him severe cramping in his feet and hands at night so bad he couldn't sleep. It's gone away since he stopped the potassium and is just taking Lasix. I would have thought the potassium would have helped, not caused, the cramps but he's been keeping track of what he's taken when the cramps happen. The swelling in his ankles has gone down but his belly is still very bloated. It's the biggest it's been in four years and that started right after the the first chemoembolization. He could not button the shorts he wore into the hospital the day before. Luckily. he packed some elastic waist shorts too.

He is not seeing his regular doctors that he's seen for the past few years and he's kind of in a gray area because he no longer sees the doctors in the hep C section and he's not on the transplant list yet so they transfer me around when I call because no one knows which section should be dealing with him. He was doing OK with the chemoembolization until they started him back on the Interferon /Ribavirin combo after the procedure. They took him off for the week before and after and when he started back on it, he was sicker than after the first injection. I think it was too much for his body and he hasn't felt right since the second chemoembolization. He has lost so much muscle in the past two months too. His forearms are the size his wrists were two months ago. He's still trying to golf once in a while but his swing is very weak. I just wish he didn't feel so miserable. I've been making fruit and protein shakes for him in the morning when he doesn't feel like eating. Sometimes I use whey protein and somtimes Carnation instant breakfast plus a scoop of vanilla yogurt. The dietician said he needs more protein than he's been eating. We try to limit protein but with the anemia, he needs more. Wal-Mart has bags of fruit in the frozen section with no sugar added and they have a nice variety so I can make all different combinations. It's hard to get him to eat when he feels so bloated.

All for now. I'll post an update this weekend after he completes his appointments. Hopefully, he'll complete all the evaluations, get on the list and get a new liver. Hanging in there but it's tough to watch him go through this plus he snaps at me all the time. Thank you, David, for a little insight to his behavior. I'll try to be more patient with him and cry less when he gets crabby.
Thanks for the support,
Linda

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 6/16/2010 4:05 AM (GMT -7)   
Hi Linda, I had terrible cramps for years. My Hepatologist prescribed Quinalone (quinine) for the problem. It took care of most of them and the times I had them, they were diminished. I remember a time when I couldn't stand up quickly without getting dizzy and nearly passing out. Eventually, I learned to sit up for a few seconds, then slowly stand up. That worked better. Good luck tomorrow. **David**
"No good deed goes unpunished."


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/16/2010 8:39 AM (GMT -7)   

Linda, Doug would get crabby too, as the caregiver I feel for you. I learned early on when I took care of a friend who had ALS that people will lash out at loved ones. We are safe we wont leave them we love them.....so it may sound strange but it is a compliment to us caregivers, we are their comfort zone! I also learned that when they are confused and dont make sense to play along, its called fiblets, when Doug was running for president and his limo was late I told him I forget to give him the message that they had car problems! When he couldnt work the remote and thought the TV was broken I would just say I would fix it.....lol we always seem to have loose cables! The hardest one was when he couldnt find the bed, we lived in a one bedroom apt.....had a hard time fixing that one, couldnt say I moved it I did think of pretending to call the police to report a stolen bed....nah that wouldnt have worked, so I redirected him saying I thought he wanted to shower before bed. By the time he showered he forgot he couldnt find the bed....problem solved. Here's your lactulose Doug just a little extra today, I know it tastes terrible just chug it down you will feel better have some water to was it down with....goodnight hon!

Sue


Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/16/2010 11:18 AM (GMT -7)   

Linda, this all sounds very familiar to me (except for the low BP.)  Everyone had fantastic input, too.  But there's one thing they missed.  Spironolactone (Aldactone) is not potassium, but a potassium-sparing diuretic.  I was initially on Lasix and potassium tablets.  I had great difficulty swallowing the huge potassium tablets, so they put me on Aldactone instead.  And it seems to work for me, including preventing cramping.  Give his body time to adjust to it (several weeks.)  If he's still having cramps, ask about the quinine.

All the rest (blown up abdomen, edema, etc.) went away in time.  I slept much more than usual (and I already sleep quite a lot, but it's broken up.  Then it was not.)  Since I live alone, I don't know if I was grouchy or short-tempered, but definitely didn't feel well and didn't want company.

I agree that putting him back on the combo so soon was too much for his body.  They are trying to aggressively attack the cancer and hold the hep C at bay.  I did the study drug, TheraSphere, after the one chemoembolization, and then had surgery to remove the entire right lobe, after the tumor had shrunk and died.  That is the only treatment they did at Mayo and 4 yrs. later I am still cancer free.  I hope your hubby will have as good as results as I've had.  My thoughts and prayers are with you both.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 6/16/2010 10:26 PM (GMT -7)   
Sue, thank you for sharing about the fiblets! I have found myself the last couple of days really getting impatient with my husband (he has been in his little world for a few days now and I have increased the lactulose). But, you are right.....deep breath, let him just talk, etc. He thinks he has everything all figured out anyway. He thinks his liver is not that bad, so why is he worried about the list, blah blah blah. We see his hepatologist tomorrow, so I really hope she will say something to maybe convince him to shut up and go with the flow here! Sorry, that is my tired self talking! It is so nice to have other caregivers to relate to here. I have not been posting as much as I used to...I kind of have had my hands full with hubby, raising our 6 year old, etc, but I do check in. Thanks for letting me vent for a second!
Mer

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/17/2010 2:53 PM (GMT -7)   

Any ole time, Mer.  You're amongst friends and those who understand.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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