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siloamsandy
Regular Member


Date Joined Mar 2010
Total Posts : 46
   Posted 6/17/2010 7:25 PM (GMT -7)   
Did anyone who has had a liver transplant ever have headache afterward? Almost like a migraine? The light hurts your eyes? But, not all the time? Just after being up a few minutes and a light shining anywhere in the room makes my head hurt behind my left eye mostly. Anyone else have that happen to them?
 
God never gives us more than we can handle.


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 6/17/2010 8:17 PM (GMT -7)   
Hi ss, It could be from the anesthesia. The effects can last months. My memory was messed up for a couple of months afterward. They told me there are a number of other problems that could occur. Having said that, call your Transplant Clinic immediately. Don't fool around and wait to see if the problem is more than a headache. **David**
"No good deed goes unpunished."


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/17/2010 8:53 PM (GMT -7)   
I agree with David! You've just had a transplant. Give your coordinator or doctor a call!

Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/17/2010 10:36 PM (GMT -7)   
CALL YOUR TEAM.......never think anything is just and ache or just a headache! At least not in the begining till you learn more on post TP and things to watch for!
Sue
Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.


siloamsandy
Regular Member


Date Joined Mar 2010
Total Posts : 46
   Posted 6/20/2010 11:43 AM (GMT -7)   

As it turns out, my headache is caused by my pain medication...imagine that...

I never would have thought that in a million years.  But, it's true. If I don't take a pain pill for longer than the 4-6 hour window, then take it, my headache returns.

Thanks you guys for all of your advice...

 


God never gives us more than we can handle.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/20/2010 12:43 PM (GMT -7)   

But if you take it every 4-6 hours, no headache?  Guess you know what to do, then.  wink   Unless, of course, you can do without it completely or switch to another med that may not cause that problem.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 6/20/2010 3:07 PM (GMT -7)   
I would still call the transplant clinic, if only to let them know what happened and why you think it did.
"No good deed goes unpunished."


siloamsandy
Regular Member


Date Joined Mar 2010
Total Posts : 46
   Posted 6/20/2010 4:53 PM (GMT -7)   
No headache if I don't take pain medicine. Headache if I do. No matter how many hours in between taking it. And yes, I will be calling the hospital tomorrow after labs in the morning.

Thank you for all your advice. I'm not ignoring the calling portion, but have to have everything in order in my mind and notes as to what to tell them.

Thank you.
God never gives us more than we can handle.


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/20/2010 5:16 PM (GMT -7)   
Sandy, I am a migraine sufferer and let me tell you PAIN meds give me the most trouble.....imagine that......it will help with pain anywhere but gives me a migraine like no other. For survivals sake I have built a high tolerance for pain and use basic overcounter pain releivers.
Sue
Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.


siloamsandy
Regular Member


Date Joined Mar 2010
Total Posts : 46
   Posted 6/20/2010 9:43 PM (GMT -7)   
I also have suffered with migraines. The pain is excruciating!!! And that is what this pain medication induced headache feels like. A migraine. The pain is the same, in the same area, etc. I just never thought pain meds could cause such a headache.

Before I had the transplant, I could only take aspirin as pain reliever. One aspirin would do the trick, even knock me out. But if I took 2, it didn't do anything...strange, huh?

But now, I can't take anything extra without the transplant teams ok first. So, before I can change anything, I have to talk to team first.

Thank you, for your info. I appreciate it.
God never gives us more than we can handle.


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/22/2010 8:03 PM (GMT -7)   

Sandy, I was in the hospital very sick and in severe pain, so they started pain management for a few days pre-op and the nurses were floored because I was no longer in pain but my head was about to explode!! Had the room as cold and dark as I could get it and couldnt deal with visitors and their noise or smells!! It was my Dr that told me that some people have this happen problem. I have since had 3 surgerys and no post op pain meds....motrin and tears LOL. Hopefully they can come up with a way to help with pain and get rid of migraine.

Sue


Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.


siloamsandy
Regular Member


Date Joined Mar 2010
Total Posts : 46
   Posted 6/23/2010 8:13 PM (GMT -7)   
Contacted transplant team. Told them what I suspected and they agreed with me. They are getting me a new prescription for a less potent pain pill. I have to go on Tuesday of next week and have staples taken out. Wonder if that hurts?
God never gives us more than we can handle.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/23/2010 8:56 PM (GMT -7)   

Silo, I've had staples taken out many times and it does not hurt.  In fact, it's a relief, as the skin no longer feels pinched and stretched.

I'm glad that you contacted your transplant team and hope the new medication will not give you a headache.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/24/2010 7:57 PM (GMT -7)   

Sandy, I love taking staples out....I will do it Doug would never let me when he had his gallbladder out, not even the drain, he just wouldnt let me have fun. He said he didnt trust the look on my face..... lol I removed some of mine at least the ones I could reach, took out my own IV at the hospital cause they were taking to long LOL that sent a few people into a tizzy so it was worth it hehehehe! I am good at removing stitches too..... broke my toe last month and reset that nice and straight.... freaked my sister out on that one hehehe it was worth the look on her face... I love wound care and removing tape off too!!! Doug said I was one sick puppy!

Sue


Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/24/2010 8:15 PM (GMT -7)   

Sue, I took my own drain out, as it had clogged and stopped working.  I was a little surprised at how much tubing was inside!  I've taken stitches out of my granddaughter and myself.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/25/2010 7:24 AM (GMT -7)   
Sue and Connie,  all I can say is .......You go girls!   I am a big sissy when it comes to things like that.   I had blood work done yesterday and had to look away or I might have fainted.  Poor girl had to comfort me.  I can't even watch them draw blood much less try and remove stitches or anything else along those lines. 
 
But Sandy,  usually having stitches or staples removed doesn't hurt.  In fact I have had them removed and it kind of tickled, where I laughed out loud.  But I couldn't watch them do it either.   ( A surgeon I could never be!)
 
I hope your new pain med works well for you.......Take care.......thoughts and prayers......
 
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 6/25/2010 9:47 AM (GMT -7)   
Now u guys sound like my 15 year ole daughter... who wants to know everything... medical... and when I went in with chest pain last week... wanted to take out the IV... look at this and look at that... turned out I had a virus that went to the heart muscle.. tired but doing fine.. and then at the mortuary.... fascinated with everything there... she wants to be a nurse... and just loves needles... shots... anything medical.. wheel chairs... splints...I thought she was my nurse there for a minute.. she took over the whole thing asking the dr questioins.. about this thing and what does that machine over there.. do.. she's so funny.. and being a farm girl and well versed in the art of animal husbandry... and things like that I'm good with the knife........... shots etc..... well that's my take on that.............. here's for the "sick" people!!!

There is no pit so deep that He is not deeper still... Corrie Ten Boom


siloamsandy
Regular Member


Date Joined Mar 2010
Total Posts : 46
   Posted 6/30/2010 10:26 AM (GMT -7)   
Found out what is causing my headaches!!! My prograf!
God never gives us more than we can handle.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/30/2010 10:39 AM (GMT -7)   

Wow!  So what are they giving you instead?

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 6/30/2010 4:02 PM (GMT -7)   
What other meds are you taking? I take 1 mg. x 2 prograf and 500 mg. x 2 cellcept for (anti) rejection.
"No good deed goes unpunished."


siloamsandy
Regular Member


Date Joined Mar 2010
Total Posts : 46
   Posted 7/2/2010 4:30 PM (GMT -7)   
Along with the prograf, I take myfortic and prednisone. My prednisone will be discontinued on the 29th of July. Then, my nystatin will be discontinued then too.
God never gives us more than we can handle.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/2/2010 5:38 PM (GMT -7)   
But what about the Prograf?

Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 7/2/2010 7:53 PM (GMT -7)   
What's your dose of prograf? Have they tried cellcept?
"No good deed goes unpunished."


siloamsandy
Regular Member


Date Joined Mar 2010
Total Posts : 46
   Posted 7/3/2010 1:28 PM (GMT -7)   
Evidently they are not going to be changing my prograf yet. I take 8 mg twice a day and then the myfortic.
God never gives us more than we can handle.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/3/2010 2:20 PM (GMT -7)   

So are you still having headaches?

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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