There are folks from around the world on here...Just people helping people so it doesn't matter where you're from! I'm sure everyone would agree!
I was diagnosed with AIH in Jan 2007. I am currently in remission and only on 100mg of Azathioprine and 250mg BID Urso. I finished my pred wean in Dec 2008. What are your current doses? If you look back through the posts, I have posted my story before...not too eventful. Had a severe onset but they diagnosed me 2 weeks after the jaundice set in. I've been lucky that I have responded well to all my treatments. I did have all the traditional pred side effects; insomnia, weight gain, irritability, moon face, facial hair (I'm female so that didn't make me any happier than my crazy mood swings), hump on my back, acne, water retention, etc... All of it went away when I reached the 10mg dose (except the weight gain but at least I didn't gain more!). I have also been lucky that my wean went well and my adrenals kicked in without a problem. I have occasional joint pain but nothing I didn't have before AIH diagnosis.
I'm glad you're feeling well. Sounds like you're responding quite well, too!
I think everyone with AIH has that feeling when they bring it up to others. Everyone assumes that the word "hepatitis" means viral and contagious...when all it means is liver inflammation. So I know some people on the AIH Yahoo group that simply say they have a rare liver disorder. If you start with that, and if they ask more, you'll already be passed the more commonly talked about viral types.
Taking higher aza will help the rest of the pred wean. Then once you're off the pred and stay stable, they could try decreasing the aza again. Have you been on 75mg yet? You don't have to jump to the 100mg dose...I did but I think they'll still finish the wean at 50 or 75mg. Have you had the TPMT test for azathioprine tolerability? I never had it done but don't get sick with it so it's all good.
Gotta run and actually get work done! Have a great day!
JP51, welcome to the forum! As Dany mentioned, we have people from all over here and all are welcome. We also have quite a few with AIH. I'm glad to hear that you have it under control at this point and are doing fairly well. You will certainly get a lot of support here.