Tips Procedure

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susie_sassafrass
Regular Member


Date Joined Jun 2010
Total Posts : 317
   Posted 6/21/2010 8:07 AM (GMT -7)   
Got a surprise call from my transplant center this morning.  They are recommending I have a tips procedure done.  I have known for a couple of years I have a clot in my portal vein and apparently they want to do this to relieve pressure.
 
I meet with the hepatologist on Friday morning for my 3 month evaluation.
 
Anybody on list, can you tell me about the procedure?  There is so much to learn when one has liver disease.
 
Susie

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/21/2010 10:53 AM (GMT -7)   

Susie, I know that Rick had the TIPS procedure and has done wonderfully well since then.  However, the reason he had it done, and the usual reason for doing it, is uncontrolled ascites.  Do you have this problem?  Have they tried dissolving the clot with meds?  I think I would be very leery, actually, of having TIPS when you have a portal vein clot.  You might want to get a second opinion.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


CGR
Regular Member


Date Joined Nov 2009
Total Posts : 64
   Posted 6/21/2010 3:49 PM (GMT -7)   
Hi Susie!

I agree with Connie.

However, if you are suffering from the effects of ascites, as my Frank was when he had his done, then certainly consider this procedure.

For Frank, it gave him his life back as far as comfort and not being ashamed to be seen.

Frank was very think, but also very bloated .... the "pregnant skeleton" that you'll hear of, and this procedure has him looking better than me!

Okay, that's not saying much!

Discuss this as much as you can and be prayerful about your decision as there is no reversing it.

Blessings,

Rob
~~~
Please! Don't take your organs to heaven ...
Heaven knows we need them here!
Be an organ donor and restore up to 8 lives.
www.organdonor.gov
~~~
Please visit my blog with reflections, meditations, and prayers on life and nature:
www.rob-wanderingthoughts.blogspot.com
~~~


susie_sassafrass
Regular Member


Date Joined Jun 2010
Total Posts : 317
   Posted 6/21/2010 5:25 PM (GMT -7)   
I dont't think I have ascites.  I am overweight so I do have a tummy bulge.  I have not had variicies either.  My main problem is my cardiac pressure is slightly elevated due to the liver disease and I see a cardiologist for pulmonary hypertension.  I do have edema in my calves, ankles, and the tops of my feet.  I take furosemide (lasix) and spironolactone.  I take propranol to keep my blood pressure down.  Six years ago it was borderline hypertensive.  Now it ranges from 90/60 to 120/80.  I have also cut back significantly on sodium intake.
 
When I was first evaluated for transplant in 2008, they did consider doing a liver and small bowel transplant because of the clot.
 
To me it's ironic I have a clot, since my prothrobin time is so high and platelet level varies from 40-90.000.
 
It should be an interesting visit to the transplant center on Friday.
 
Susie

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 6/21/2010 10:36 PM (GMT -7)   
Mike had this procedure... it added 5 1/2 years to his life... it was because of the varices.. also please... anyone on high blood pressure medication... if your blood pressure returns to normal... have your doctor reevaluate the need for it... Mike's blood pressure crashed .. because he stayed on the bp medication... please... keep an eye on it... Sandi
There is no pit so deep that He is not deeper still... Corrie Ten Boom


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/22/2010 7:52 PM (GMT -7)   
I have just learned something bizarre a TIPS for a clot.....I would be concerned it would move...
Sue
Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.


susie_sassafrass
Regular Member


Date Joined Jun 2010
Total Posts : 317
   Posted 6/25/2010 11:26 AM (GMT -7)   
Spoke to the hepatologist today.  Turns out that they have not decided that TIPS would be beneficial in my case.  He is going to speak with the cardiologist and re-review my scans.  If they did the TIPS, they would also do a procedure to remove the clot at the same time.  This would leave my portal vein in better condition to receive a transplant.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/25/2010 11:33 AM (GMT -7)   

Thanks for the update, Susie.  Keep us posted.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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