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Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 7/1/2010 12:04 PM (GMT -7)   
As of today, hubby is officially listed for a liver transplant!  It's wonderful and scary all at the same time.  Just wanted to post an update.  I'm going to pack a bag to keep in the car.  If we get the call, I don't want to be running around throwing things in a suitcase.  Now, we just have to be patient and hope he stays healthy enough to stay on the list.  I'll post if there's any new news.  Thank you for all the support and prayers!
 
Linda

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/1/2010 2:29 PM (GMT -7)   
Great news, Linda! By all means, prepare to leave at a moment's notice! If you have pets, make arrangements for them in advance. And do keep us updated!

Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 7/1/2010 7:42 PM (GMT -7)   
yeah   yeah yeah yeah What wonderful news Linda.   Good idea about the bag in the car.   Lot's of thoughts and prayers  for a quick and successful transplant for your husband........Take care 
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 7/1/2010 9:09 PM (GMT -7)   
Good for both of you! Most of what you need to pack is for you. In the hospital, a johnny is required, as there will be too many tubes going to and fro, for normal clothing. After he's out, sweat pants and t-shirts are good. Make sure to pack a cellphone charger and some reading material (for you). You don't need a blade razor. Electric is fine. If you have people who need to know, make a plan to call a good friend, so they can call all of the rest of your friends and relatives. You don't need to be dealing with that until later down the road. I'd email, but by provider is messed up right now. By the way, what's his MELD score as of now?
"No good deed goes unpunished."


arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 7/1/2010 10:58 PM (GMT -7)   
Wonderful!!
There is no pit so deep that He is not deeper still... Corrie Ten Boom


Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 7/2/2010 4:07 AM (GMT -7)   
Good suggestions! I do have a pet sitter and a back up pet sitter and all my contacts are on two phones. His MELD score isn't too high by itself but the cancer bumps it up. Even though the tumors are gone right now, it's understood that there may be some lurking and undetectable so it's still graded as cancer. I don't really have to worry about him shaving. He used to have a beard and mustache but that hasn't been growing much for the past few years. Even his chest hair disappeared a long time ago. One day, I had my hand on his chest and realized all the fuzz was gone! They said liver disease will do that.

I bought a new refrigerator last week. Our old one was 16 years old and it wasn't cooling well. I'm going to stock up on some basics in the freezer so I won't have too be running to the grocery store as soon as we get home from the hospital. We also replaced our AC unit and had new ductwork installed. Our house was built in 1969 and I'm sure the ducts were nasty. The coolest it was getting on a hot day was 87 degrees. I want him to be comfortable.

I know it could be a long wait for a transplant and I do realize he needs to maintain fairly good health to remain on the list but I have to think positive and be prepared. Please keep the suggestions coming if you think of anything I should be doing to prepare in advance.

Thank you,
Linda

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/2/2010 11:34 AM (GMT -7)   

Sounds like you are thinking ahead and have done some very positive things to make him more comfortable.

That hair thing--maybe that's why I no longer have hair on my legs.  I never have had any under my arms.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

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