4 liters of fluid

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Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 7/23/2010 3:42 AM (GMT -7)   
Hi,
Hubby is still waiting for a liver but has had trouble with fluid build up in his abdomin for the past few weeks.  They finally did a Paracentesis procedure yesterday and removed 4 liters of fluid.  They didn't weigh him right after but when we got home he was about 10 lbs lighter.  He was so uncomfortable and was having trouble breathing for the last few days.  I'm hoping he will feel a little better now.  He's never had that procedure before and I think the reason they waited is because last month his blood levels were very bad due to being in Interferon, Ribavirin, and having the chemoembolization done.  They gave him a transfusion of two liters of blood last month and took him off the Hep c treatment.  I think they were worried about infection if they did the procedure then.  This month, his blood levels are better.  He's been really depressed and wishes he could just go to sleep and wake up with a new liver.  I keep telling him that he's on the list and it shouldn't be much longer.  We are in one of the shortest wait areas in the country and I just pray that nothing new pops up before he gets a liver that would disqualify him.  I just don't understand why the ascites would get so bad now.  I've been documenting his physical condition with photos since he got sick four years ago and his belly was NEVER like it was yesterday morning.  I thought he was going to pop.  What could be causing the accumulation of all this fluid now?  His last chemo was mid-May.  If he hadn't had cancer, his MELD would only be an 11.  He's on a low sodium diet but hasn't felt like eating much because of the pressure.  Hopefully, he will be able to eat more because he is also having more muscle wasting than before.   Also, is it normal for him to still have some pain at the front of his abdomin from the swelling?  Will that go away?  Any suggestions? 
 
Thanks, Linda

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 7/23/2010 8:54 AM (GMT -7)   
Hi Linda, hopefully your husband's pain will subside. What diurectics and how much is he taking? Also is he on fluid reduction? My husband luckily never had to have a Paracentesis procedure. They were able keep his ascites under control with diurectics and fluid reduction. They would up the dosage and lower as needed. It was a tough balancing act for sure though.

Thoughts and prayers for a speedy transplant......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/23/2010 11:07 AM (GMT -7)   
Linda, hopefully your hubby will get some relief from the paracentesis. I also blew up, but they handled it with diuretics and a low-sodium diet. Eventually, it mostly went away, though I still take Lasix and Aldactone 1-2 x a week. He could try an elastic abdominal wrap, which should give him some relief from the pressure. Hopefully, your husband will get a transplant soon. He may want to consider going on an antidepressant, although that might be contraindicated as a transplant candidate.

Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 7/23/2010 1:13 PM (GMT -7)   
Hi Linda,
Sorry to hear of your husbands problems. I know the feeling, having lived it for too long. I was fortunate, in that my transplant came out of the blue. I wasn't sitting around waiting for a call. I was lying around with my legs up, feeling like crap for several months, other than two, one week sojourns in the local hospital. When the call came, I was shocked and feel lucky, to not have been waiting for it. There wasn't time to think about it and no relatives were present to add trauma to the event. I can't imagine how tough this whole episode of your husbands life must be, but tell him to hang on. With the care (that I know) you're giving him, he's got little reason to be depressed. I only wish I had had that kind of support. My partner abandoned me, 2 years previous to the transplant, because she didn't want to have to take care of me. I made it through; one year as of today. And, I've reconnected to a woman I lived with 35 years ago. As people like to say, "Every thing happens for a reason." Stay with it, you'll get there. **David**
"No good deed goes unpunished."


Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 7/24/2010 5:11 AM (GMT -7)   
Hi,
His weight is still down but his abdomin still looks swollen. Not as bad as before the paracentesis but still a lot larger than it was in May before the second chemo. He is taking 50mg Spirolactone twice a day and 40mg Lasix once a day. I think part of the problem is he has been staying in bed for the past few weeks. He's only been golfing once a week, he doesn't go to the gym anymore and I've been doing all the shopping, cleaning, laundry and cooking. He hasn't felt up to doing any physical work and doesn't feel like going anywhere. The waiting is really getting to him. He also has a painful "knot" near the surface of the skin. The doctor said it might be some muscle separating from the pressure. I've decided to make the spare bedroom into an excercise room for him. I'm looking for a used treadmill and I'm going to put a TV and sound system in there. Since he doesn't feel like going out to the gym, I'll bring it here.

David, I can't even imagine leaving someone at a time like that. I hope your rekindled relationship brings you love and happiness. Congratulations on your one year transplant anniversary. I hope you went out and had a nice celebration.

More later.

Thank you, Linda

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 7/24/2010 6:11 AM (GMT -7)   
Linda,

I am so sorry your hubby his having so much trouble! My husband's belly looks like he's about ready to pop but luckily we have no ascites. Watching the sodium, etc as Connie mentioned should help with that. I wanted to address the issue of antidepressant and being a transplant canditate. My husband is on an antidepressant medication and out transplant center is aware of it, and they do not have a problem with it. The interfuron and ribavarin does have depression as a side effect. If he has discontinued those, then it may subside, but just watch him. It may not hurt to talk to your doctor about a mild antidepressant. You hang in there!

Mer

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 7/24/2010 11:59 AM (GMT -7)   
Linda,
Your husband has to get up and do something, even walk a few hundred feet. Getting outside might help lift him from his depression and he needs some exercise. I was taking quite a bit more meds than he is and still wasn't doing well. Tell him he can't quit. He's lucky to be in a program, many don't get a choice for life. That's a great reason not to be depressed. He has a chance to make it to the other side. Letting everything go, both physically and psychologically, means recovering from surgery will be much more difficult. If he would like to talk, I'd be more than happy to speak to him on the phone. Feel free to email me and I'll call.
"No good deed goes unpunished."


Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 7/25/2010 4:31 AM (GMT -7)   
He came home from golf yesterday with a much better attitude. He said he's not going to think about the transplant and he's going to try and go back to doing his usual routine including the gym. When the call comes, he'll be ready but he's going to try not to sit around and think about it. We also went out to the movies last night. David, I still have your number but he hasn't wanted to talk to anyone lately, not even close friends. I'll have to see what kind of mood he's in when he wakes up today.

Thank you,
Linda

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/25/2010 11:09 AM (GMT -7)   

That's a good change of attitude!  I hope he keeps that mind set and does as much as he is able to.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland


Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 7/30/2010 11:06 PM (GMT -7)   
It's been a week and a day since the paracentisis and he went from 188 lbs last week to 163 lbs today.  Most of the fluid is gone and he looks and feels much better.  He played 18 holes of golf on Wednesday but could only get through 9 on Thursday due to the extreme heat.  He's planning on golfing tomorrow and I told him to see how he feels.  I wish he would just do a steady schedule of excercise instead of going from nothing to over doing it and then burning out and going back to nothing.  At least without all that fluid he is now eating better.  I would like to get some weight on him before the surgery.  His wrists and hands are so boney.  He's been having trouble sleeping lately.  Any suggestions to help him sleep?  nono   I know what you're thinking and I've tried that and it just wakes him up more.  LOL
 
Linda

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/31/2010 11:39 AM (GMT -7)   
Linda, my PCP suggested melatonin (OTC) and it did work well for a month or so. However, I had to decrease the dosage due to bad dreams. Now I vary the dosage, but am still not sleeping well at all--up and down every hour or two all night. My doctor won't prescribe any type of sleeping pills, so I don't know what else to do. I am tired all the time anyway from the hep C, and not sleeping makes it worse. Perhaps your hubby's doc would give him an Rx for Sonata or Ambien, if it won't cause worse damage to his liver.

Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/2/2010 11:36 AM (GMT -7)   

Sana Henk, we do not allow links such as the one you posted.  I couldn't remove the link without removing your entire post.  If you or a loved one has a liver disease and would like to post, please start a new thread and don't include the link.

Thanks.


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Linda325
Regular Member


Date Joined Mar 2010
Total Posts : 80
   Posted 8/2/2010 12:42 PM (GMT -7)   
He's sleeping better now that the fluid is gone. On Saturday night, he bent over and got a pain in his upper right side that wouldn't go away. The pain then moved around to his back. I finally called the doctor and they said if it didn't go away, to bring him to the ER but it subsided after a while. I get the same thing sometimes when I'm bending over or tying my shoes but it goes away after a minute or two when I stand up. Any ideas what might have caused this? They also said he's at the top of the list for his blood type so hopefully his transplant will be soon.

Thank you, Linda

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/2/2010 1:36 PM (GMT -7)   

Linda, I'm glad he's sleeping better.  I really have no idea what the pain is that he had.  Pressure on a nerve, maybe?  That's good to know he's at the top of the transplant list!  Hopefully, he won't have a long wait.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland
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