What happens in the final stage of liver disease?

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jackjack
New Member


Date Joined Aug 2010
Total Posts : 1
   Posted 8/3/2010 5:44 AM (GMT -7)   
Hi there.

My mother was diagnosed with decompensated liver disease about 3 months ago.
She was given about 6 months to live at the time when she was admitted to hospital.
At that time she had a lot of fluid drained a while back and is pretty yellow.

Since then she has returned home and in the past 3 months she has lost a lot of weight and muscle - she hardly has any strength at all now. She's getting more ill every week I see her.

I'd really like to know how much time she has left - I know that it's impossible for the doctors to say, and they seem not to want to, but I need to prepare and try and make the most of the time she has left.

If it's not too difficult, could someone please explain how the final months will be?
How will she die? Will it be a sudden event?
How can I prepare for this?
What type of care will she need?

Thanks in advance.

worriedgirl
Veteran Member


Date Joined Apr 2009
Total Posts : 1130
   Posted 8/3/2010 7:05 AM (GMT -7)   
first off welcome to  healingwell forum you have come to a good place. liver disease is such a individualistic disease it is hard to say what will happen. my uncle had hep c and hep b and he just died on the way to the bathroom, my father in law had hep c and cirrhosis and died in the middle of the night after a bout of encephopy(sp) in the bathroom, whereas my mom had hep c and cirrhosis and ended up with a ulcerated ulcer which left her in the hospital with surgery then she never really recovered and she suffered the worse, two surgeries trying to save her and fluid coming out of the incision, her eyes, nose, and mouth. each person is affected differently. your mom could live the 6 months, live less then six months or even longer but there is no way to say for sure. just spend as much time as you can with her, make sure you have power of attorney, see if she has a will and what her wishes are for her funeral. dont take any day for granted and tell her every day that you love her.
The only person who can make you happy is you. Be your own self and love who you are because each and every one of you are wonderful for who you are
 
"No one really dies because they have loved. Because they love they stay in the hearts of the people they have touched so in that their memory lives on." Ghost whisperer-i know corny but this touched me deep down and i see so much truth in it.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/3/2010 9:23 AM (GMT -7)   

Jackjack, welcome to the forum.  I am sorry your mom is so ill.  If you will read the info in the folder at the top of the page, entitled Hepatitis Resources, it should answer some of your questions.  Nobody is able to tell for sure how much time she has left, though.  There are too many variables.  Usually at the end they slip into a coma for a few days and then pass on.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 8/3/2010 9:48 PM (GMT -7)   
Mike was given six months January of this year... he died April 22nd of this year... he had hepatitis c, cirhosis, ascities, put a shunt in, and in the end liver cancer... he died from blood pressure that crashed... he continued to take high blood pressure pills when his pressure had returned to norma... and he had pneumonia... because he was agitated... and smoke up a storm.. during one period.. his lungs collapsed along with his blood pressure... his heart was failing and then the kidneys also... and the liver cancer was just a matter of a couple months from killing him... Mike was conscious until just a few seconds before he died... he was independent in everything though always tired..and ate very little... however he walked out of the house to the ambulance... and died 24 hours later... he died the way he would have wanted... and he did not know he was dying at the time.. if the cancer had continue.. it would probably have been a tougher way to go... this is our story.. my thread "On the other side of treatment" will walk you through all of our ups and downs..to the point of his death... my prayers and thoughts are with you... Sandi

There is no pit so deep that He is not deeper still... Corrie Ten Boom

KathleenW
Regular Member


Date Joined May 2010
Total Posts : 80
   Posted 8/9/2010 9:22 PM (GMT -7)   
I am so sorry about your mom. I lost my mother on June 16th of this year due to complications from liver disease. She was 77. While some people seem to linger on for a long time, others go quickly. It is hard to say. My husband has a friend who is in the end stages of liver disease, he is suffering from kidney failure and they don't expect him to live more than a couple of weeks. If your mom is not having any issues with her kidney function, she still may have some time. However, so many other things can take a toll you just never really have an idea. I had doctors telling me mom had a year or more, then another would state less than six months. She lasted just shy of two months from her diagnosis. My suggestion would be to spend time with her now... You will never really know until the end is very near and she slips into a coma. Think about today, don't worry about tomorrow or stress about yesterday....God bless!
Kathleen
Life is painful, suffering is optional

Post Edited (KathleenW) : 8/9/2010 10:27:09 PM (GMT-6)

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