STRESS is NO GOOD!

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bostonmike
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 8/14/2010 7:40 AM (GMT -7)   
smhair  Good Morning,
 
           The last time I posted was a month or so ago. Had a problem with Anxiety and a Stomach, Spleen & Liver M.R.I. Tried the M.R.I. at the end of July and had no problem and the results were the same. Still have cirrhosis and mild ascities, but no internal bleeding or cancer. Thank God.
 
            That was a little stessful, but nothing compared to MOVING. I moved on 08/01/2010 to a Condo and lost about 7 or 8 pounds in 4 days from 08/01/10 to 08/05/2010. I did a little packing ,but paid movers to do the job. It was just all the change and planning and worrying. I missed meals which I never do. One thing I noticed about the disease and the meds is, if I do not eat, I get famished and weak. The good thing was I called my doc and told him I went from195 to 188 and he changed my meds from 2 40 mg. Furosemide and 2 100 mg Spironolactone to one tablet. He cut it in half. Although, I gained back the 7 pounds, still on the half dose. He said if I reach 200 go back to the regular 2 tabs dose.
 
       Another stressful situation is that my doc says I cannot work, not even part-time. I was collecting Unemployment up until April 2010, but all my weeks exhausted. I collected for a long time and there is no more extensions for me. So, I filed for disability and they said I should have an answer wether I qualify in 4 months. It's about 4 months and I have not received anything. They usually deny everyone the 1st time anyways and then the Appeal process starts. If they deny me, I do not want to go against the docs orders, but a Temp job would help if I could stick it out as long as I can. I been feeling alot better but very bored these days. I work at a desk and bang computer keys as an Account Receivables Rep in the Healthcare field for work, so ther is no heavy lifting. The job situation is grim out there but with all my experience I should find something. Getting antsy playing the waiting game on what the doc is going to say next about the cocktail and new drug. Right now, It's wait till after 2011, like everyone else. Well that's what going on with me. Thanks for listening. bostonmike.
 
          
 
 
 

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/14/2010 11:27 AM (GMT -7)   

Hey, Mike!  Good to know you got your MRI and had good results!  I can relate to the stress of moving.  I've done it at least 14 times in 24 years--the last time being Aug. 3rd of last year...a week prior to a hip revision. 

So you are not working at all?   Since you have applied for SS disability, they might turn you down if you are working full time.  It took me 2 years to get approved.  In that time, my aunt carried me financially for over a year, but I finally had to return to work.  I had only been working p/t since hep C diagnosis in '93.  But in that final year before being approved for SSD, I worked no more than 18 hours a week, and towards the end it was only about 12 hours a week, as I just couldn't do it.  You do not want to earn what SS considers a "living wage" or better.  Also, did you get a letter from your doctor to the effect that you cannot work?  This is something you should get and send to your SS caseworker.  That is a magic piece of paper that will almost assure that you will be approved.

If you are denied twice, you might want to get an attorney.   My feeling is that SS then knows you are serious and in it for the long haul if you have a lawyer.  When you are approved, the lawyer gets 25% of your back pay from SS, which is automatically taken out before you even get your check.  The payment goes back to the date you applied.

I believe the trials for the new drug are almost complete, so you would probably have to wait until FDA approval anyway, at this point.

Keep us updated!

Hugs,

Connie



hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

bostonmike
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 8/14/2010 6:30 PM (GMT -7)   
Thanks for the SS info Connie. That is the problem waiting for the SSDI benefits for so long without becoming broke and homeless. I do have that letter from my doctor and my caseworker does have a copy. It should'nt be long now before I get the news.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/14/2010 8:06 PM (GMT -7)   

I think that's how they weed people out...by making applicants wait so long.  In the end, it worked in my favor as I got a nice lump sum payment.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 8/14/2010 9:07 PM (GMT -7)   
As I recall, you don't get disability for the first 6 months. It was 9 months after I applied that they approved my claim. They sent me 3 months of checks and told me that the first 6 months aren't covered. However, the first 8 months of your working and earning, I think it's over $800 or $900 per month they keep paying. I've made well over that figure, but this month and next month, I won't, so my disability will continue until I'm over the limit. What that is I don't know, though when I contact them and explain the situation, I imagine they'll let me know what will take place in the future.

Funny to hear your story about moving. I moved in June and it was very difficult, both mentally and physically. I had to give up a home of 16 years (to my ex) and move into a one bedroom apartment. That meant getting rid of at least half of my belongings. At least I no longer have to mow the lawn.
"No good deed goes unpunished."

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 8/14/2010 9:20 PM (GMT -7)   
When I helped Mike fill out his SSDI paperwork... it took 45 days to get him approved from start to finish... but he had been enemployed at that time for 3 1/2 years... much hangs on the determination that the disability will last over a year and how far it is progressed... he also had mental health issues with the chronic depression... and diabetes... and some other things... can't remember... and I also had each doctor's summarization at the time... I supported him for that  period of time... and then he finally applied...don't know why we waited that long... but yes normally they turn everyone down... but when we applied last year... January... Social Security said they were supposed to be turning these cases around faster because the government didn't want these big back pay checks... I am a vocational rehabilitation counselor by trade so I knew what I was doing... and I  contacted the person who was doing the determination... and had a good rapport... anyways... we did wait a long time before applying though and that's probably why it didn't take so long... that and there was not one piece of paper that they did not have... and there was no doubt about his inablity to work... all that Connie said is the way it goes... though normally... Sandi... it's all about ability to work...length of disability and the prognosis in the future... and having the documentation to support all that... so I made sure that we had supportive doctors all along the way and got rid of those who would not be supportive of a SSDI claim when it came to it... and then applied... ok enough.. sorry so long...

There is no pit so deep that He is not deeper still... Corrie Ten Boom

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 8/14/2010 9:22 PM (GMT -7)   
It helps to document other disabilities thoroughly such as mental health issues or chronic conditions that preclude one from working... and have the dr for each issue stating an opinion that supports not working... and that's how.. u do it.. .. one dr at a time.. one step at a time..
There is no pit so deep that He is not deeper still... Corrie Ten Boom

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 8/14/2010 9:24 PM (GMT -7)   
ooops sorry so long... yep... I'm having to move... can't keep housing after Mike's passing.. and soon to be homeless... but God will supply... not too worried.. can't make any decisions.. until find out about these interviews see.. can't get a place here then bail out and move... and can't stay where I am... but it'll all work out...
There is no pit so deep that He is not deeper still... Corrie Ten Boom

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/14/2010 9:35 PM (GMT -7)   
David, I'm positive that it wasn't the first 6 months not counting--it may have been a month or so--but I did get back pay from the time when I first applied. I do know that age and the amount of credits you have into SS are considered. They are not so inclined to give disability to younger people. Also, as Sandi mentioned, the more diagnoses you have, the better. Although I mentioned hep C and the fatigue it caused preventing me from working f/t, I actually got approved on my hip replacements and one revision (at the time.) Liver cancer and 2 more revisions, as well as 2 hernia repairs, came after approval.

Sandi, I wish you luck, but know that things will work out just the way they are supposed to for you.

Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 8/15/2010 4:54 PM (GMT -7)   
I wanted to add also that documenting any encephalopathy problems, memory loss issues, etc will help. Those issues in conjunction with my husband's other issues seemed to be what got him through the "system". He did not have enough credits for SSDD benefits as he was self employed for a while and did not have enough credits into SS, but we are now on SSI, which also gives him his medicaid. Hope that helps.
 
Mer

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/15/2010 5:05 PM (GMT -7)   
Mer, that's why it's important to pay self-employment taxes when self-employed (which I was the last 6 years I worked), to continue to contribute to SS. David, I'm thinking you probably made too much money in the last 5 or 6 months that you worked, which is why your SSD didn't kick in sooner.

Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Post Edited (hep93) : 8/15/2010 6:24:12 PM (GMT-6)


mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 8/15/2010 8:12 PM (GMT -7)   
Unfortunately, Connie....hindsight is 20/20. Either way, he still would not have had enough "paid into" for SSDD......he was only short 1 quarter!!!

David, keep pressing them, and again, document every health issue you have. The more you report to them about the issues you are having, the better that makes your case.

I wish you the best!
Mer
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