I have posted in a while, however most everything with my wife remains about the same. Fatigue is still dogging her, as she has good days and bad days. She had her labs a couple of weeks ago and her MELD score has gone down again, this time to a 10. Her dry mouth, and eye symptoms are under control, as well as her nausea. Her A1C was 5 last month, and her insulin dosage has been reduced to a total of 20 units a day (16 in the AM and 4 in the PM). Lasix, Aldactone, Kristolose and Xifixan are keeping her ammonia and ascities in check, so she is very lucky in this respect.
Her hepatologist increased her Nadalol from 20mg a day to 40gm. He wants to keep her blood pressure as low as possible to prevent a GI bleed from her stomach varcies. He gave us specific numbers for her blood pressure and heart rate to monitor, and if they go below those numbers, I am to call him immediately. I believe her slower heartbeat has probably added to her fatigue though, as it has gone from 70-80 down to around 56-60, however the doc says this is exactly where he wants it.
Charlie, thanks so much for the update. I'm glad to hear that your wife is stable. That's definitely good news!
Rob, it's great to hear from you! Also great that you guys are traveling, enjoying life and each other, and creating a store of memories.
Be forewarned--FL is still hot and humid! Take appropriate clothing and enjoy the sunset in Key West!
Post Edited (hep93) : 9/8/2010 9:46:14 PM (GMT-6)