What kind of blood work have they run? There are many things that can cause cirrhosis. Alcoholism, autoimmune hepatitis, Primary Biliary Cirrhosis (PBS), etc...
There are many people who are dealing with cirrhosis on this forum. They will be able to let you know the treatments that worked for themselves or their loved ones. You should really sit down with your doctor, if possible, to know all the treatment options you have for controlling the ascites (fluid in your belly) and slowing down any further damage to your liver. You must not have any alcoholic drinks and limit your salt intake. Is there a liver specialist you can see in Bangladesh? Or at least a GI (gastroenterologist) doc?
I'm sure others will respond to your post...there are many here to offer support and advice,
Post Edited (rupok) : 9/3/2010 11:16:25 AM (GMT-6)
Rupok, welcome to the forum. With the vomiting of blood, it sounds like you had bleeding esophageal varices, which were banded. The treatment and meds you have received so far sound correct. We are not doctors here and cannot tell you if you need a transplant or exactly what is causing your liver disease or how to treat it. If I were you, I'd ask your doctor for a referral to a transplant center. They will then do an evaluation and testing to decide if you are a transplant candidate. If there are no big problems after transplant, you could live a long life with a new liver, although you would always be on antirejection meds.
PG, I believe AIH is a specific disease entity and not a label attached when there is no known cause for cirrhosis.
Rupok, do a search for online consult. There are a few sites where a doctor will answer your question, though you may not get an answer right away. Normally, though, a doctor will want to see you personally before giving you any information or advice.
It is definitely better to adjust your lifestyle and perhaps take meds to control your cirrhosis rather than get a transplant. Transplant is a last resort, and you are not really the one to make that decision--it would be up to a transplant team. At least that's how it's done here in the USA. The evaluation process is grueling. They do blood work and scans, as well as colonoscopy and endoscopy and psychological testing. Whether you are placed on a transplant list, and where on the list you would be, is determined primarily by your MELD (Model for End-stage Liver Disease) score. I certainly wouldn't want to receive a transplant from a doctor who has only done one of them. Seek out a large hospital that might have a transplant team.
Your labs look pretty good, but you didn't give an AST or ALT (liver function tests.)
I really feel that you are putting the cart before the horse in talking about transplant. You don't even know the cause of your cirrhosis yet. You should get an abdominal MRI with contrast. That will show your liver, spleen, and gall bladder and if there are any tumors they would also show up.
Dany, that was a very informative list! Thanks for posting it! So you see, Rupok, there are many causes for cirrhosis.
I am missing most of my liver due to cancer and resection; my LFTs are only slightly lower than yours, and I have cirrhosis in what's left of my liver. But aside from fatigue, I am doing well. (My problems are all due to hep C, for which I hope to get treatment next year when new therapy is available.) If the cirrhosis doesn't advance or the cancer return (it's been over 3 yrs. now), I could live a long time.
So I want you to put transplant out of your head for now. You first need to get a definitive diagnosis and get proper treatment. Meanwhile, do as Dany says with low salt intake, nutrition, and no alcohol.
Rupok, it may be different where you live, but in the USA there is no drug that can specifically halt cirrhosis. They treat the symptoms (such as diuretics for ascites and fluid retention, or Lactulose for elevated ammonia) and suggest lifestyle changes to include low salt diet and no alcohol, to name two of them, which can halt the progression.
A MELD score of 12 here would not get you a transplant. Again, I do not know if it's the same in Asia. Also, a transplant is not a preventative measure as you seem to think. It is A LAST RESORT. There are many things that can go wrong during and especially after transplant, including death. Again, I think it is very premature for you to be considering transplant.
Take the drugs that have been prescribed, keep a low-salt diet, and follow your doctor's directions. Then, in a couple of months, have the labs repeated to find out if they are the same (stable), have decreased (a good sign) or increased (not good.)
Normally, the cause of the cirrhosis is treated. In your case, until you know what caused it, you may not be able to stop the progression. You need further testing at this time to determine the cause of your cirrhosis.
By the way, I am seen at Mayo.