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bostonmike
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 9/14/2010 8:18 AM (GMT -7)   
Hi everyone,
 
       The last time I posted my experience with ANXIETY. You were all helpful with your feedback and a couple of you were right about it not being the medication. Guess it it was mental this time. I ended up in the Leahy ER that night just to make sure it was not dehydration. I was on my way to Mass General Hospital but it is alot farther in distance. I just needed to make sure my blood work and vitals were normal. And they were fine. It was a good thing it happened because my doc sent an appointment change to my old address. I moved from Beverly, MA. to North Reading, MA. in August. I would have never known he cancelled. I called him after midnight that night to tell him about the anxiety and he fit me in for an appointment the next day. He gave me some lorazipam for the anxiety which I have not taken yet. Because the anxiety was only for those 2 nights and lately I haven't had any anxiety. Also, he told me I would not be able to take any combination drugs or the new drug telepevir with Ascities. Even the little I have had lately really bummed me out. In November 2009 I was 250 pounds, mostly water weight or ascities. Now, I am 190-195 pounds, but he said I still have some ascities going on even though my legs and my stomach look great since he first saw me. I must not have been listening or in complete denial and did not want to hear it. But, I heard it this time. He said I would need to get off the medication that controls the ascities and the cirrhosis is in the d-stage, I forget the word or phrase he used. I've heard the phrase before, to be able to handle the combo drugs or many problems would be experienced than anxiety. So, I took your suggestions and made an appointment with a Psychiatrist today at 5:00 P.M. Not for sleeping pills, the doc says too many of them can cause toxic levels in the liver. I need to seek another alternative like an anti-depressant or anxiety drug that will not tax the liver. crap, I'll do acupuncture if it will help. Also, my liver doc wants me to get an EKG because I take Quinnalon (Quinnine) and it can cause heart arrythmia. I said maybe that is it, but then if I stop taking it the cramps may start again.He said he was not sure so get the E.K.G ASAP. So, I will continue to see him every 3 months or so and monitor my progress. He said I am doing alot better and at this stage of the cirrhosis do not need a Liver transplant. Far from that but I cannot take the new combo after the first of the year which sucks.  I had a question? My stomach and sides have been really tender lately, especially under the rib cage and on the left side have many spidiograms when the liver is on the right? In the morning it feels like somebody worked me over or used me as a punching bag in my  midsection. Almost like my insides are bruised. Another thing is that just recently  cut my fingernails, my middle finger on the left hand just went dead (all white) and baby finger on the right and partial nail on the thumb. i have had a dead toenail for alot longer on my right foot. The doc said he was not concerned about that. He looks for spidiograms in the face and on the body. redness on th palms of the hands, etc. You do not get much time to talk to any of these docs. It's like everyday is a hectic day with them and there always behind schedule. Seems like they just want to rush you out of the room as soon as you sit down. Like the Leahy ER. Got there at about 1:00 A.M. got taken right away for triage and my vitals. The nurse took my blood right there which was a plus and a first for me. She said an hour for the results and it was about a hour and a half. So everything was going great until I went in the back to lie on a gurney in the ER. I waited another hour or more and a Resident doctor, very young Chinese women came in and asked me alot of questions about my heart. I told her I just came to get bloodwork to make sure I wasn't dehydrating and could you make me a copy for my liver doc at the MGH which he requested before I hung the phone up that night. She looked at me like I had 5 heads and told me she had to check my bloodwork and she would be back. I said you have it in your hand. She just walked away. i waited another hour plus and got dressed and walked out. My girlfriend was ready to pass out on the floor. She was sick the next morning throwing up. ER's are the worst places to go these days, there are germs floating around everywhere. There were elderly with pnuemonia there. My girlfriend is fine now, must have been a 24 hour bug or something. Thanks for listening. i got a little long winded today. bostonmike. 
 

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 9/14/2010 2:52 PM (GMT -7)   
Hi Mike,
I'm in Boston today, tomorrow and Friday morning. If you'd like to talk,or get together, call or email me. They're putting in a small patch, because I have a small incisional hernia from the transplant. **David**

shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 9/14/2010 3:11 PM (GMT -7)   
Mike, First I am glad to hear from you as I was concerned about the anxiety it can play havoc on you. The issues about nails is not uncommon, when the body has been sick for a long time it will pick and chose what is important to keep going. Hair skin and nails are the least important things for your body to maintain, but anything concerning toes and feet should be checked as that area is prone to infection because of circulation changes. Muscle is the next to be affected, this could explain your side pains but you also need to make Dr aware of this. If you are still working you may be pulling muscle beyong what it can handle. You would notice this more at nught after the relaxing period when sleeping. Doccument this like what were you doing that day up till bed time you might find a pattern. Doug and I never had a positive visit at Lahey so I can feel for you there!
Sue
Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/14/2010 4:37 PM (GMT -7)   
Mike, ask your doc about Trazodone for sleep.  It's working for both David and I--50 mg at bedtime (not together -  nono  )   Last Fri. night, I actually slept 9 hours straight.  It's been almost 9 mos. since I did that.  Usually I'm up 2-3 x, but that's a lot better than every hour or two. 
 
I agree about not taking the lorazepam/Ativan if the anxiety is not constant.
 
I didn't know that ascites meds can't be taken if going on the treatment.  I reduced mine to twice a week, but will have to stop them altogether.
 
There's an immune disease (circulation disorder) called Raynaud's.  The fingers and sometimes toes turn white, blue, and red when it's cold.  I was diagnosed with this about 25 years ago in an ER (you know how cold they keep those places!)  I had never noticed it prior to that time.  Have your digits stayed white or turned blue and red?  Are they back to normal now?
 
If you have to stop taking the quinine, perhaps there is something else you can try for leg cramps.
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Post Edited (hep93) : 9/14/2010 8:35:06 PM (GMT-6)


arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 9/14/2010 4:38 PM (GMT -7)   
Hang in there guy... Sandi
There is no pit so deep that He is not deeper still... Corrie Ten Boom

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 9/14/2010 6:38 PM (GMT -7)   
I second that.

You are in my prayers.
Butterflythree
 
There is always hope!

bostonmike
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 9/15/2010 12:06 PM (GMT -7)   
Connie,
 
        I did not mean to diminish your hopes about the combo drug Ribavarin, Peg- Interfuron and Teleprevir. I know your looking forward to that. I was too.  That is what my liver doc told me the other day. Your doc may differ. My doc is a fellow who reports to a team at MGH. He reports to a Lead doctor, a Dr.Pratt at the MGH because he changed his schedule. There may be others in the team but I do not know all there names. He used to report to a Dr Thim. I think David had Dr. Pratt for his liver doc before the transplant. Sometimes it is easy when I hear something I do not want to, like bad news. It goes right over my head. Also, I should have worded my fingernail problem better. It is the fingernail that turns all white, like a dead nail! Not my finger, Sorry! I am seeing a Psych at 6:00 P.m. tonight and I am going to ask him about the Trazadone. Thanks everyone. bostonmike.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/15/2010 1:07 PM (GMT -7)   

Mike, I don't think it would be any big deal for me to stop taking diuretics altogether.  I just hadn't heard that piece of info about diuretics and the new treatment.  I'm not sure I'm going to be able to do treatment, now that I'm hearing (yesterday from my hep doc's ARNP) that it is going to have to be taken 48 weeks if it's clearing the virus.

So you don't have Raynaud's.  That's good.  Don't know what the "dead nail" is about.

Good luck with your psych appt.!  I applaud you for getting help.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 9/15/2010 3:46 PM (GMT -7)   
Hi Mike, Dr. Pratt was my hepatologist and he and his PA, Abigail (she moved recently) were unbelievable. Any time I had a question, it was answered within a day, but usually it was more like hours. As far as "bad news." In the past 10 years of dealing with Hep C, I've had one phone call, or email with good news. That was the day they called to tell me I was getting a new liver. Every other notification has been bad, or not-so-good news. I don't hold it against the docs, they're just doing their job. Remember, you're being treated at MGH, one of the finest facilities in the world. Be well.
"No good deed goes unpunished."

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 9/16/2010 5:05 AM (GMT -7)   
You always have such good points David... Sandi
There is no pit so deep that He is not deeper still... Corrie Ten Boom
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