Hi, Bob, and welcome to the forum! There is a lot of information about liver disease in the folder at the top of the page entitled Hepatitis Resources. You might want to check it out. I have hep C, cirrhosis, and am a liver cancer survivor. Regarding protein, it's best to stay away from animal protein as much as possible, as that is the most difficult for the liver to process. Try soy products, such as edamame (soy beans) in the shell or shelled, to use in stir fries. You will find them in frozen foods. Cheese and eggs in moderation are also good. Fish, of course.
I think everyone with liver disease has a battle with ascites and edema at some point. I did when I had liver cancer. My feet and calves had 3+ pitting edema and my stomach was horribly swollen. They finally got it under control with diuretics. I also had drainage bags for weeks following abdominal surgeries.
I'm sure you will be an inspiration to others here and will also learn a lot.
Penny, it is my understanding that Aldactone taken with Lasix prevents the lowering of potassium that is caused by Lasix alone. Of course, it is also a mild diuretic. Perhaps the liver cancer caused my ascites and edema flare. After being on diuretics for about 2 years, I noticed my BUN and creatinine creeping up, I reduced my diuretics to twice a week, which my hep doc approved. When I stop taking them altogether, I do have some slight swelling in my fingers and abdomen and slight edema in my feet.
I also want to add beans to the list as a source of protein.
Penny, I couldn't take the potassium "horse pills" either. That's when they decided to put me on Aldactone. Lasix and Aldactone seem to work for me. I have an up-to-date Mosby's Nursing Drug Reference and always look up interactions in that.
David, I don't know how large my rt. lobe was when it was removed, but the surgeon said it was completely dead (from the chemoembolization and TheraSphere) and would NOT regenerate. I am living fine on the left lobe.
The size of the liver depends on the affliction and progression of the disease. For example, with NASH (fatty liver disease), the liver will be enlarged with fat. With cirrhosis, the liver will initially swell. As the disease progresses and the amount of scar tissue in the liver increases, the liver will actually shrink.
Harvey was nearly a dead man when he received his transplant. The surgeons were amazed he was alive considering what was left of his liver.
David, you're correct. Due to the size of the tumor (12 cm x 11.5 cm), it took up the entire right lobe and metastasized into the inferior vena cava. The treatment shrunk the tumor and the metastasized part, but there was no viable tissue remaining, either.