Why always cold?

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healthynow
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Date Joined Oct 2010
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   Posted 10/19/2010 7:52 PM (GMT -6)   
My husband is always complaining about being cold.  He wants to crank up the heat even though he is wearing slippers and a sweatshirt...he wants extra blankets on the bed...a blanket across his lap when we are watching tv.  I see on the list of liver disease symptoms that always feeling cold is due to the liver disease.  Why does that happen? 
 
Still learning and trying to understand all this.
 
Thanks,
Emma

hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 10/19/2010 9:15 PM (GMT -6)   

Emma, I don't have an answer for that one.  I, too, get cold; however, I have Raynaud's disease, which is a circulatory disorder that makes the fingers, in particular, go white and blue with cold and then red as they warm up.

Hugs,

Connie


hep93
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"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

**David**
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Date Joined Nov 2009
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   Posted 10/20/2010 7:09 AM (GMT -6)   
I was told up front that I would feel cold when others didn't. That was when I was diagnosed with Hep C. After my transplant, my temperature has been just under 98. When asked, two of my nurses said that most liver transplants had below average temperatures and no one knows why.
"No good deed goes unpunished."

hopesprings7
New Member


Date Joined Sep 2010
Total Posts : 18
   Posted 10/20/2010 9:40 AM (GMT -6)   
Hi Emma,

I was told it had something to do with the actual temperature of the blood of liver disease patients being lower than everyone else's, but for the life of me, I can't remember why...but there did seem to be a reason for it. I think it had something to do with the blood being less able to absorb certain things, etc...

hepmom
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Date Joined Oct 2010
Total Posts : 164
   Posted 10/20/2010 4:20 PM (GMT -6)   
hep93 said...

Emma, I don't have an answer for that one.  I, too, get cold; however, I have Raynaud's disease, which is a circulatory disorder that makes the fingers, in particular, go white and blue with cold and then red as they warm up.

Hugs,

Connie

 

Raynuad's is a condition linked to  cryoglobulinemia which is a extrahepatic manifestation of Hep C. I also suffer from Raynaud's disease but have not been tested for cryoglobulemia as yet.  If you google Hep C and Cyroglobulemia together you can find heaps of info on this on the net.



hep93
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   Posted 10/20/2010 5:16 PM (GMT -6)   

Thanks for the info, Hepmom.  I was diagnosed with Raynaud's around '85 and not with hep C until '93...but of course I'd had it since the late 60s.  I never knew there was a link.  However, I don't think I have cryoglobulemia.  Wouldn't that have shown up as elevated protein during the massive amounts of blood work done prior to liver cancer treatment and after my hepatectomy?

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

pscwife
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Date Joined Dec 2008
Total Posts : 302
   Posted 10/20/2010 8:49 PM (GMT -6)   

 

It’s very common for those with liver disease to be chilled.  This is usually attributed to loss of muscle mass.  Other factors can contribute such as thyroid abnormalities, low sugar, and of course fever (often associated with Jaundice). 

 

We live in Florida and Harvey would have the thermostat set on 82 degrees!  He would sit with a throw blanket across his legs.   smhair  

 

Penny

 


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 10/20/2010 10:34 PM (GMT -6)   

Penny, I'm in NE FL and am comfortable at 80 degrees...except at night, when I seem to get warmer when I lie down, so set the thermostat for 75.  I just had thyroid testing done and it was all normal.  My little left liver lobe that remains is compensating quite well.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 10/21/2010 5:48 AM (GMT -6)   

Connie,

 

On average, individuals with liver disease will have a body core temperature of +/- 97.6 degrees.  Consider a healthy liver as the body’s furnace.  Everything we take into our bodies is converted by the liver into chemicals on a molecular level to serve our cells—energy, vitamin stores, etc.  When this process is compromised, the flames in the furnace are reduced.  Turn down the fire and you will feel cold.  Reduce the energy production and you will be left with fatigue.  These sensations will get worse as the liver disease gets worse, i.e. cirrhosis, ESLD.

 

I don’t want to over simplify this, but anytime the body’s digestive system is chronically compromised (whether the cause is associated with ulcers, liver disease, pancreatitis, bowel disease, etc) the body’s nutritional needs will compromised. 

 

Nutrition = Energy = Warmth

_________________________

 

I certainly wasn’t suggesting that people with liver disease have thyroid issues.  Anyone can have thyroid abnormalities or disorders and this will “contribute” to the feeling of coldness. 

 

Individuals will experience liver disease symptoms at varying degrees based on their genetic makeup, health, physical condition, complications and disease progression.  It’s no wonder the doctors aren’t discussing it.  There are too many variables.

 

The liver disease is not a “catch-all”.  Many conditions share the same symptoms.  When you have multiple conditions the symptoms will be amplified.  An individual with chronic liver disease must always remain vigilant for other unrelated conditions that could be present or that may develop.  Addressing other conditions may improve the “related” symptoms. 

 

This is where I was coming from.  I’ve always said that liver disease affects individuals in different ways.  Each case is unique.  I just wanted to clarify this.

 

Penny


DGinSD
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Date Joined Apr 2007
Total Posts : 818
   Posted 10/22/2010 2:14 PM (GMT -6)   
Yup, everyone is different.  Before I was diagnosed and my liver was starting to fail I had the worst shivers.  I kept my biggest sweater on and my teeth would chatter.  Now that I am all medicated and in remission...I'm like an oven.  Our building at work is kept pretty cold, some folks walk around with jackets on and I'm always in a tank top!

Dany
 
Diagnosed with AIH January 2007,
CMV (cytomegalovirus) June 2008
Raynaud's February 2010
meds: Azathioprine 100mg, Ursodiol 250mg BID
 
 

shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 10/23/2010 12:51 AM (GMT -6)   
The feeling cold is common for people with most serious illness! With liver issues it is the change of body mass and fat. Doug stayed a pretty husky looking man yet he was having the changes in muscle mass so he was always cold. I own more different blankets than any couple needed, I have a bureau that is converted to an entertaintment center and 2 drawers were just for blankets then there was a blanket on every piece of furniture, also a blanket in the car with an extra jacket! Electric blankets are TABOO for anyone with compromised health. Even a safe portable heater has to be used with caution as skin can become irrated or slightly burned if to close or to high! We found that light weight thermals worked the best for arounfd the house they even have nice thermal bathrobes so you feel less bulked out. Sometimes after he was given blood he would feel a little warmer for a day or so.
Sue
Adapt yourself to the life you have been given; and truly love the people with whom destiny has surrounded you.

Imp36
Regular Member


Date Joined Aug 2010
Total Posts : 47
   Posted 10/25/2010 7:07 PM (GMT -6)   
I don't post very often but I'm here every day learning and to see how everyone's doing but this hit a cord with me. I have been very cold for last couple of years even before I was dx'd. Even in the Summer I wear sweats and as many pair of socks as I can.(my feet and hands are even colder than the rest of me) No Dr. has ever been able to tell me why. I have ESLD,PAD,HE,portal hypertension, hypothyroidism and low blood oxygen (62%) so I have no clue where the coldness came from but I have noticed that since I've been on O2 therapy I'm not as cold anymore.

Post Edited (Imp36) : 10/25/2010 6:20:47 PM (GMT-6)


healthynow
Veteran Member


Date Joined Oct 2010
Total Posts : 1717
   Posted 10/25/2010 8:02 PM (GMT -6)   
yes, we are learning to have slipper socks, sweatshirts on and to have extra quilts on the couch and DH's side of the bed...

i am hoping to get him to drink hot tea...

is green tea a good choice for a liver patient? should it be decaffinated?

emma

pscwife
Regular Member


Date Joined Dec 2008
Total Posts : 302
   Posted 10/25/2010 8:27 PM (GMT -6)   

 

Emma,

 

Various studies have shown that green tea, coffee and caffeine are beneficial to the liver.  But like anything else, it should be consumed in moderation.  Too much of a good thing can be bad.

 

Enjoy,

 

Penny


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/25/2010 8:36 PM (GMT -6)   
Emma, I switched to green tea from coffee several years ago and am doing fine.  My hepatologist is okay with it, too.  There's not much caffeine in it, so no need to get decaf.  I like the flavored tea, like citrus or acai berry and raspberry.
 
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Charlie92
Regular Member


Date Joined Jul 2009
Total Posts : 186
   Posted 10/27/2010 10:43 AM (GMT -6)   

My wife is also suffering also from ESLD (PBC) and is always cold. Even in the 100 degree Texas summer heat, she keeps a sweater in the car to wear in restaurants. She has a twin size electric blanket on her side of our bed that she keeps on at night the year around. Before she got really sick, she was very hot-natured, so we believe it has to be her liver disease that makes her so cold all the time.

Charlie

 


Imp36
Regular Member


Date Joined Aug 2010
Total Posts : 47
   Posted 10/27/2010 12:37 PM (GMT -6)   
Charlie92

I was told never to use electric blankets. I'm not sure why. Dr. had a real problem when I said I using electric blankets. Wish I could give the reason why. Hopefully someone else will know. I was just like your wife always turning the thermostat down.I went from one extreme to the other.
Diagnoses
ESLD(End Stage Liver Disease),Hypothyroidism,Portal Hypertension,Pulmonary Arterial Disease,Sjogren's,Hepatic Encephalopathy,Varices,osteomyelitis,MRSA, and more secondary diagnosis.

Medication

O2 Therapy-24/7,Xifaxan-550mg 2X day,Lactulose 6-8 Tbsp day,Spironolactone 50mg 1X day,Synthroid 112mcg 1X day,Oxycodone 25mg 4X day

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/27/2010 2:10 PM (GMT -6)   

Charlie, it's good to see you posting!  How is your wife doing these days?  Hopefully, she has stabilized and is doing much better.

Imp, usually the objection to electric blankets is the danger of burns (same with heating pads.)  These devices carry a higher risk of burns in people with medical problems.  Make sure they are never directly on the skin and are on a low setting.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

Imp36
Regular Member


Date Joined Aug 2010
Total Posts : 47
   Posted 10/27/2010 2:29 PM (GMT -6)   
Thank you Connie. I appreciate the info. How do you know so much? Your post have helped me a lot.
Diagnoses
ESLD(End Stage Liver Disease),Hypothyroidism,Portal Hypertension,Pulmonary Arterial Disease,Sjogren's,Hepatic Encephalopathy,Varices,osteomyelitis,MRSA, and more secondary diagnosis.

Medication

O2 Therapy-24/7,Xifaxan-550mg 2X day,Lactulose 6-8 Tbsp day,Spironolactone 50mg 1X day,Synthroid 112mcg 1X day,Oxycodone 25mg 4X day

DGinSD
Forum Moderator


Date Joined Apr 2007
Total Posts : 818
   Posted 10/27/2010 2:33 PM (GMT -6)   
Hi Charlie! 
It is good to see you.  Aside from chills, is your wife still doing better?
 
That's the same thing I heard re: electric blankets.  It's more of a fire hazard and can potentially cause burns.  If the patient falls into too deep a sleep and doesn't wake up to adjust that blanket, it could cause burns.
Yup, Connie is a great wealth of info!
Dany
 
Diagnosed with AIH January 2007,
CMV (cytomegalovirus) June 2008
Raynaud's February 2010
meds: Azathioprine 100mg, Ursodiol 250mg BID
 
 

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/27/2010 6:27 PM (GMT -6)   

Imp, I've learned a lot about liver disease just from being here.  You guys are always teaching me, too.  In addition, I picked up a lot of basic medical information over my 15 years as a medical transcriptionist...and had to take a course in terminology and body systems before that.  And then there's my personal experience with hep C and liver cancer.

Hugs,

Connie


hep93
Forum moderator - Hepatitis
 
"But that was yesterday, and I was a different person then."
Lewis Carroll, Alice in Wonderland

shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 10/27/2010 11:51 PM (GMT -6)   
ELECTRIC BLANKETS........ other than the possibility of burning people with compromised health there is also the fact that the human body can become lazy. If you supply it with HEAT, I dont mean warmth from extra blankets, with real heat for more than a few hours it actually stops working at keeping your core temp up. Like if you live in arizona for along time then move to New England.... you have a hard time getting warm. That is because your body didnt have to work as hard to keep your temp up now in New England you are really cold till your body says okay we need to kick it up a notch. People turning water beds up were causing the same issues.  When you sleep your body naturally kicks in the furnace, if you have heat being supplied for it  then it forgets what it needs to do.
Please be very careful with alternate warmth..... light fleece, flannel even cotton does wonders.
Sue
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