My fiance was transplanted the same month as you, isn't that amazing?
We live in Arizona and he had surgery at [hospital name removed]; fantastic hospital. The surgery went really well and the first few months of after-care were great, but as time goes by things get looser and looser. They used to call us within hours of having blood tests done, now - he had labs drawn on Monday, today's Wednesday, we haven't heard a word.
(I've often wondered if, once a patient passes the 1 year mark, they're considered a success and the clinics turn their focus and energy on the more recent transplantees.) Our transplant center has a lot of patients. I think, in many ways, after-care becomes a prioritization / staffing issue. If they had more staff they could continue to give everyone immediate attention.
We did start asking his primary care physician to do some of the follow-up and coordinate with the transplant clinic. For a while, that got everybody jumping. I think we stepped on some sensitive toes.
I wish you luck!
Post Edited (DesertJules) : 7/22/2005 5:45:58 PM (GMT-6)