Diva, I'm very sorry that your dad's condition is terminal. You mentioned that his feet look like they're "about to explode." I assume this is edema. Take some lotion or bath oil and apply pressure down and then up from his toes up to his knees. This was explained to me by a nurse. This needs to be done very gradually. If he says it hurts, then lessen the amount of pressure. You should actually be able to see the fluid moving up out of his feet and up through his calves. I had a terrible problem with lower extremity edema for months...and I would grab anyone available to do this for me, as it would relieve the pressure and pain momentarily...and also helped relieve the dry skin.
Yes, I also used TEDS (thromboembolitic deterrent stockings.) They are very difficult to get on, though, and I had a hard time doing it myself. However, they do help reduce edema.
As usual from this group, GREAT feedback and advice. You all make me feel all warm and fuzzy - I hope I can do the same for others.
PG, My Dad does know his prognosis. We talked about his DNR status during a time of clarity and he just wants to go home and get out of the hospital where he is woken up every hour! The conversation about going home with hospice with the doctor and social worker was oddly positive. It's the same plan we had before "hospice" came in to the picture... get him home and take it day by day.
I'm seeing more and more signs that we are doing the right thing. A local friend of the family who was on hospice (we live in a rural area) with a couple 24x7 caregivers passed away yesterday and with that, we have local caregivers that we know and trust that are available immediately. I'm so stressed about living two states away, being my Dad's only family, having a full time job, and my dad living alone... but I'm seeing things come together to help me be here as my home base, but have the support I need to take care of him, but keep my life afloat at the same time. sigh of relief... but I digress...
I love the idea of the Bag Balm and Vitamin D3... and the massage technique. I think that will definitely help his edema in addition to the elevation he is already doing. I've been giving him some back massages/scratches while he is in the hospital and he purrs like a kitten... I just want to cuddle him and laugh with him and feed him all the yummy food he wants. But will be ensuring his day to day meals are low sodium and manage protein intake. I don't want him confused all the time!
Does anyone know if Medicare/Hospice allows for Lactalose, Xifaxin as part of the comfort care? We just were referred to Hospice Friday afternoon, so I haven't been able to get all the info as of yet.
Hugs to all...
Loki, I'm so glad he was able to go home and be with you all, and pass on peacefully.