Newbie needs help!

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Shelley120861
New Member


Date Joined Feb 2005
Total Posts : 2
   Posted 2/25/2005 9:14 PM (GMT -7)   
I was diagnosed with Hep C in 2000.  I don't know what's been going on, but it's like I've been in total denial of my condition until now.  I have a drinking problem, and continue to drink despite the doctors warnings.  I had a liver biopsy which showed minimal fibrosis.  I have no idea how I caught this, but the physician said according to the biopsy, I've had it for more than 20 years.  He seems to think he can cure me with the interferon treatments, but I can't afford to miss any more work for fear of losing my job.  I am a single mother with (2) children and cannot afford to have that happen.  I have basically no family support.  I have a wonderful boyfriend, but with me being so ignorant about my condition, it's hard to explain it to him.  I have told him about the possibility of transmission via sex per the recommendation of my physician, as I have others I have been with since my diagnosis.  I'm not a gutter drunk, but do drink on a daily basis.  I've been getting sick a lot lately, I think simply because of a compromised immune system anyway, plus lack of sleep and too much alcohol.  I'm hoping that I've scared myself enough to make some positive changes.  The honest truth is, i'm petrified of dying of this stuff.  I'm scared of the damaged that's been done since I was diagnosed just (4) years ago.  I haven't been back to the doctor, but am in the process of making an appointment.  Is is normal to avoid facing the reality of this or to "downplay" this diagnosis?  I was afraid to write because of the negative feedback I may receive, but I'm desperate at this point.  I've heard some good things about herbs and milkweed (?).  Has anyone used any of these?  Any comments/suggestions are welcome.  Thank all of you for listening! 

Shelley120861
New Member


Date Joined Feb 2005
Total Posts : 2
   Posted 2/27/2005 7:40 AM (GMT -7)   
Thank you for the warm reply :-)   It's always nice to at least hear someone say they understand.  This is not something you can go talk to the public about, or even a casual acquaintance, because no one understands.  Actually, I'm 43 and have been in and out of AA since I was 16.  The most sobriety I ever got was 4 years and I must say, it was the best 4 years of my life.  I'm checking into some groups in my local area.  Thanks, again, for your support.  I am keeping your email and will email you if you don't mind??

bearbrand
New Member


Date Joined Apr 2005
Total Posts : 1
   Posted 4/8/2005 9:30 AM (GMT -7)   
I'm 28 years old and just this March I had accidentally learn that I got hepatitis. I am in the denial stage so i get a second opinion, I am really positive. I dont know where i got it. I never had sex yet, i never drink nor smoke cigarette. I was so depressed here, in our country we are not well informed about hepatitis. I tried to isolate myself to all my friend because im scared that i might infect them. When i visit the doctor after the series of blood test. He inform me that it might not be longer than 6 months. He also told me that there is a possibility that it would just be gone. I would like to ask if this is true? I ask what should i do, should i take any medicine? But he just told me to get another blood test and wait and see if my liver is infected, the outcome as he say the infection is just low.. he advise me to take another that kind of test after 3 months. Is this the right way of approach. I really need to find a job abroad now, but this illness hinders me! How long should i wait to know that i am completely clean from this virus? Am i really be free from hepatitis on the coming years?

ps9670
New Member


Date Joined May 2005
Total Posts : 4
   Posted 5/29/2005 10:01 PM (GMT -7)   
Shelley120861 said...
I was diagnosed with Hep C in 2000. I don't know what's been going on, but it's like I'v
e been in total denial of my condition until now. I have a drinking problem, and continue to drink despite the doct
ors warnings. I had a liver biopsy which showed minimal fibrosis. I have no idea how I caught this, but the physi
cian said according to the biopsy, I've had it for more than 20 years. He seems to think he can cure me with the i
nterferon treatments, but I can't afford to miss any more work for fear of losing my job. I am a single mother wi
th (2) children and cannot afford to have that happen. I have basically no family support. I have a wonderful bo
yfriend, but with me being so ignorant about my condition, it's hard to explain it to him. I have told him about the
possibility of transmission via sex per the recommendation of my physician, as I have others I have been with si
nce my diagnosis. I'm not a gutter drunk, but do drink on a daily basis. I've been getting sick a lot lately, I thin
k simply because of a compromised immune system anyway, plus lack of sleep and too much alcohol. I'm hoping
that I've scared myself enough to make some positive changes. The honest truth is, i'm petrified of dying of this
stuff. I'm scared of the damaged that's been done since I was diagnosed just (4) years ago. I haven't been bac
k to the doctor, but am in the process of making an appointment. Is is normal to avoid facing the reality of this or
to "downplay" this diagnosis? I was afraid to write because of the negative feedback I may receive, but I'm despe
rate at this point. I've heard some good things about herbs and milkweed (?). Has anyone used any of these? An
y comments/suggestions are welcome. Thank all of you for listening!


Hello Shelly,

Nice to meet you, to answer your question, I think alot of us go into denial at first, then when reality of it all sets
in, we are simply scared to no ends, the thought of possibly loosing my husband wasn't an option, I got myself
together, started learning all I could about the disease, got into a wonderful support group that is for caregivers or
anyone that wants to visit and post and fill comfort, on days they think they can't go any longer, through this, we have
all become stronger, having someone to lean on, along with getting educated on the disease, one has to come to terms
with this yes, BUT, a vast majority die with it than from it, drinking and treatment, doesn't mix, Drs simply won't treat if one isn't
willing to stop the alcohol, it can cause the disease to progress even faster, although it is normally a very slow
progressive disease, treatment can be hard on some, then again, some have very little side effects, Drs don't
know why it works that way, it just does, I have been in many and still continue to go to my group support forums, there
we are one family, fighting this disease together, sharing our love with the ones that are in need of comfort,
and shar our thoughts and emotions with each one, we have cried together, laughted together, and we pass out
alot of tender loving hugs, and warm heartfelt posts to each other, words of encouragement, had it not been for
all my online friendships I have made over the years, God only knows where I would be today, please feel free
to join us @ Delhpiforums.com for caregivers, start getting educated, it can be pretty overwhelming at first,
so try not to take it all in at once, REMEMBER, you're not alone in your new journey you are about to start,
let us help you through your trying times ahead, take care, Sincerely Patty

ps9670
New Member


Date Joined May 2005
Total Posts : 4
   Posted 5/29/2005 10:18 PM (GMT -7)   
bearbrand said...
I'm 28 years old and just this March I had accidentally learn that I got hepatitis. I am in the d
enial stage so i get a second opinion, I am really positive. I dont know where i got it. I never had sex yet, i never
drink nor smoke cigarette. I was so depressed here, in our country we are not well informed about hepatitis. I tri
ed to isolate myself to all my friend because im scared that i might infect them. When i visit the doctor after the s
eries of blood test. He inform me that it might not be longer than 6 months. He also told me that there is a possib
ility that it would just be gone. I would like to ask if this is true? I ask what should i do, should i take any medicin
e? But he just told me to get another blood test and wait and see if my liver is infected, the outcome as he say th
e infection is just low.. he advise me to take another that kind of test after 3 months. Is this the right way of appr
oach. I really need to find a job abroad now, but this illness hinders me! How long should i wait to know that i a
m completely clean from this virus? Am i really be free from hepatitis on the coming years?


Hello Bearbrand,
Contacting HEP C is very, very low sexually, only like 2 to 3 % .....HEP C is contacted mainly by blood to
blood contact, alot of Ex drug users have infected themselves sharing needles, sharing toothbrushes as well,
any means of blood contact is possibly of infecting ones body with HEP C.....Some was infected through blood
transfusions before they started screening for HEP C, back in 1990, MY Husband was a faithful blood donor,
guess whatelse he gave everyone that recieved his blood, YEP, HEP C, talk about heartache, the last person to
reciece his blood was a little three year old boy, that by now, he would be 18 or so now, blood banks are suppose
to notify everyone that recieved tainted blood over the years, One can reach undetected with the virus, but to be
cured, they isn't a cure for it as of yet, just meds that help hold it at bay, as long as it works, you need to have a
liver biopsy, that is the only true way to see if one has any liver damage from the HEP C at all. what was you
talking about in your post when you mentioned 6 months??? Is that the time the Drs said you would be on
treatment of you decide that route??? You need to know your geno type as well, some can handle the meds with
little sides, some have them pretty severe, its one of those wait and see diseases, that we simply don't know
how the meds will be tolerated by each individual until they start treatment, many, many respond well, and will
go undetected from the virus, some have been virus free, which means the amount of the virus in there
system is so low, its undetected, BUT, " NOT " cured, some DRS. say, if one goes at least 5 years being virus
free, they call it cured, but not many will use that word, if they haven't found a cure as of yet, how can one
classify themselves as being cured??? Please come and visit our caregivers sight as well, at Delphiforums.com
I have made many, many lifelong friendships there as well, take care & God Bless, Sincerely Patty
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