"I did all the heavy duty drugs in the 60's and 70's, and paid the price later on."
Me, too, Rinkydink, though it was only 60s for the heavy duty ones. I tell everyone I survived the 60s...barely.
Welcome to the forum!
Rinkydink, how long have you had clearance; that is, how long has it been undetectable? As you know, you should have had the full course of treatment, as that's the best way to ensure that you've totally cleared it from your system. However, that's not always true. It CAN come back. This recently happened to our member David some months after transplant. He's back on treatment now.
You might be interested to know that there is a new treatment on the horizon that adds a 3rd drug and only has to be taken for 24 weeks. This should become available in the 2nd half of this year (I keep reading "spring" but the FDA doesn't always approve quickly.) Just keep that in mind if the C comes back.
How often do you have bloodwork done? Are you having any fatigue or other symptoms of hep C? I noticed that you're on the Fibromyalgia forum. That disease might make it difficult to differentiate between that and liver disease.
David, I know I've heard of others who cleared the virus but later had it come back. So I tend to agree that it is not 100% cleared for the remainder of your life. I don't know if those people were reinfected from an outside source, but I don't think so.
I guess March 1st is a date you will never forget!
Rinkydink, that rather astounds me that you have not been tested for C in 6 years! I would think you would be tested at least once a year...and much more often in the first year after treatment has stopped. I doubt you would have relapsed. Let us know what is revealed by your blood work. And best of luck!
Cured, I think it is doubtful that you would relapse after 20 yrs., but if you come up positive for HCV, you likely got reinfected. I do think you were wise to throw out your toothbrushes, razors, and earrings. I don't think I've ever heard of someone being reinfected that way, but why take the chance? Good move!
You must have done interferon treatment alone, as that's all that was available at that time...unless you were in a clinical trial for "the combo." I was diagnosed in '93 and tried two rounds of interferon, but had to be taken off each time after no more than 6-8 wks. each time, as my white count plummeted so low. I know that there were trials being done on "the combo" around that time.
Post Edited (hep93) : 3/28/2011 3:56:30 PM (GMT-6)
Hepmom, please post a welcome or Hi! to Michael Kelly's thread. He's an Aussie, too, and a new member.
Rinky, I addressed my comment to Cured about the earrings, below the post to you. But it does get confusing around here sometimes when we get new members and a lot of new threads.
Do keep us posted.
Post Edited (FeelingBetter) : 3/3/2011 1:48:41 PM (GMT-7)
FeelingBetter, welcome to the forum! I'm so glad you truly are "feeling better" and have slain the dragon. I agree--at 15 yrs., you would be considered cured and are not likely to relapse.
As I noted about, I also did the Interferon...in '93...3 injections a week. I got pretty bruised up, but wasn't on it long enough to have any side effects, due to plummeting white counts.
I'm hoping to try the new treatment that's on the horizon, as it has a 75% clearance rate in trials and is especially effective against geonotypes 1a and 1b, which have been so difficult to treat previously.
Best of luck to you and thank you for sharing your experience.
Hep-back?, welcome to the forum. I suggest you cut and paste your post to a new thread (copy, hit New Topic instead of Reply, and past into the new thread.) In that way, you won't fall through the cracks.
You mentioned that you underwent interferon/ribavirin for 6 mos. Even though you cleared the virus, it is usually recommended to taken the combo for the entire 48 weeks to prevent relapse. However, it could be something else causing your liver enzymes to rise, if that is what has happened. I hope you know something for sure soon.