new w/terrible itch, no rash

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Anaiis
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/2/2011 3:35 PM (GMT -6)   
I am new to this board. And I am new to talking about the HepC I have had for ten years. For the past week I have experienced intense itching on most of my body with no rash or bumps or hives in sight. After going on forums, it seems this has to do with my Hepatitis C. My liver enzymes and kidneys are being tested now, but in the meantime...what do people do about the itching? I can't sleep, I can't seem to go to my classes, I am too exhausted and frazzled by this. My whole body itches, and Bennadryl doesn't help. Any support or suggestions would be most appreciated!

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/2/2011 4:51 PM (GMT -6)   

Anaiis, welcome to the forum.  I also have Hep C and experience some itching, though usually in one spot...either my feet and ankles or the middle of my back.  If you do a search of the forum for itching, you will find a number of posts about it.  I use Gold Bond cream, although I can't reach the middle of my back with it.  Then, I just use a rubber comb to scratch and that relieves the itch for the time being.  Also recommended are a "calming" lotion or colloidal oatmeal baths.  Toxins in the body are thought to be the cause.

If you are eating beef, eliminate it.  Try to get your protein through eggs, beans, soy products, and fish.  Increase your fruit and vegetable intake and make sure to stay hydrated.

Have you had treatment for your HCV?  I was diagnosed in '93, so have been living with it for 18 yrs.

Hugs,

Connie


hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland

Anaiis
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/2/2011 5:30 PM (GMT -6)   
Thanks Connie, for the suggestions. I have never had treatment fot the HVC. I was diagnosed in 2000, it was not a suprise as I had previously shared a dirty needle. I have been sober since june 2000 and my enzymes, when i have them checked, have always been OK. So I figured, I'll get treatment when I need it...I just have a regular doc, and do not know what kind of specialist I should see.As far as the food, I will stop eating beef if that makes this better!!! I'm surprised about the oatmeal suggestion, since my skin seems to be fine...it seems to be my nerve endings that are itching...


Anaiis

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/2/2011 6:15 PM (GMT -6)   
Oatmeal baths are used for itching in general, though you might find something else works better.  As I said, do a search.  There have been many posts about this.
 
You should see a hepatologist or (at the very least) a GI doc (gastroenterologist.)  I well know the thing with the enzymes and thinking I was okay.  Since prior to diagnosis, they've always been slightly elevated, but never way out of sight as some are.  When it was found that I couldn't take Interferon (caused my white count to drop dangerously low), I also reasoned that I'd be okay.  I had blood work done every 3 mos. and a sonogram every year to check for liver cancer and it was always fine--until it wasn't.  In '05, I was found to have a huge cancerous liver tumor.  I personally believe that it was missed the previous year.  However, it woke me up to the fact that hep C was still very much alive and doing damage in a big way.  I learned that hep C puts one at high risk for liver cancer.
 
So don't wait until such a thing occurs before getting regular blood work and scans.  If you get too sick, you will not qualify for treatment.  The idea is to put it in remission before it has a chance to do real damage...a lot more than itchiness.
 
Hugs,
Connie
hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 3788
   Posted 3/2/2011 6:28 PM (GMT -6)   
Annais,

Hubby has had Hep C since 1970. He has a lot of other things at this point and is on the Transplant List.

Over the years, he has had most of the symptoms you read about in these posts, including itching that made him insane, mostly at night. He would scratch himself in his sleep and bleed on the sheets! YUK.

His doc prescribed cholestyramine which he has taken after meals since 2003 with no side effect and has NO itching any more at all:

See article from mayo clinic: http://www.mayoclinic.com/health/drug-information/DR601905

Good luck I agree with what others said...get into a hepatology practice so WHEN you NEED help, you are an established patient.


Carol

Post Edited (MamaLama) : 3/3/2011 6:09:06 AM (GMT-7)


rinkydink
New Member


Date Joined Feb 2011
Total Posts : 13
   Posted 3/2/2011 7:31 PM (GMT -6)   
Hi Anaiis, welcome..I am new here too. I also have hep-c and went through the interferon w/ribaviron treatment for 6 months a few years back, it was rough, when I was done 6 months later I was tested and was viral free.
Recently I have been experiencing severe itching too, especially around the liver area (drives me crazy) for immediate relief I take a hot shower (it helps) and then I use 'Eucerin' brand 'Calming Itch-Relief' Treatment Lotion
you can get it at Walgreens. If you do decide to go for the treatment..I highly sugest drinking LOTS & LOTS of water! Water will become your best friend!
 
Take care

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2310
   Posted 3/2/2011 11:46 PM (GMT -6)   
Mike used Bag Balm for this... he was constantly itching... hot showers and then using this lotion helped him... Sandi
There is no pit so deep that He is not deeper still... Corrie Ten Boom

Anaiis
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/3/2011 7:41 AM (GMT -6)   
Thank you all for the support. I will get a referral to a hepatologist. The hot shower made me insane during it, but provided some relief afterwards.
Anaiis

SadWife
Regular Member


Date Joined Jan 2011
Total Posts : 321
   Posted 3/3/2011 11:21 AM (GMT -6)   
Sandi,
Where can you buy bag balm at? I've never noticed it in our stores here before....(BTW) I'm in Arkansas.....

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/3/2011 4:58 PM (GMT -6)   

SW, I've also seen it under the brand name "Udder Cream."

Hugs,

Connie


hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland

Anaiis
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/12/2011 8:20 PM (GMT -6)   

Hey all--went to the (general practiioner) doc for the itching. She decided I have exzema since I have a little dry skin on my hand (which does not itch) and prescribed hydroxizine, which of course did nothing for me. She did have my enzymes checked, and said they were fine, (yay!) and she is referring me to a GI doc. I hope I can get treated better there, instead of being treated like I have allergies!!!!  Thanks again for the support so far!

 


**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3263
   Posted 3/12/2011 8:48 PM (GMT -6)   
I found that baby powder worked best for me and I had tried everything. Good luck!
"No good deed goes unpunished."

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/12/2011 8:52 PM (GMT -6)   

You might try OTC hydrocortisone cream...the highest amount of it you can find.  I believe it's 1%.

Hugs,

Connie


hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland

colleenz
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/12/2011 11:33 PM (GMT -6)   
SadWife said...
Sandi,
Where can you buy bag balm at? I've never noticed it in our stores here before....(BTW) I'm in Arkansas.....


You can find it at any animal feed store

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2310
   Posted 3/13/2011 9:45 AM (GMT -6)   
Walgreens here in Minnesota...in the pharmacy area ... ask them for it...
There is no pit so deep that He is not deeper still... Corrie Ten Boom

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2310
   Posted 3/13/2011 9:47 AM (GMT -6)   
Hey there A..... Mike was diagnosed with exzema too.... and it was an early sign of further liver problems... he had Hep C...your body may be talking to you about other issues...ie liver...
There is no pit so deep that He is not deeper still... Corrie Ten Boom

Anaiis
New Member


Date Joined Mar 2011
Total Posts : 5
   Posted 3/13/2011 10:43 AM (GMT -6)   
Arneeb, I agree this is my liver telling me something. I hope I can get more answers from a GI doc. The GPractioner was trying to treat my outside instead of treating from within. I'll keep you all posted on more specific liver results as i get them. I really appreciate this community.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/13/2011 2:27 PM (GMT -6)   

Anaiis, you definitely should be seeing a GI or (ideally) a hepatologist.  GPs generally don't know much about liver disease.

Hugs,

Connie


hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland
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