Is there anyone out ther???

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knowfearman
New Member


Date Joined Jul 2003
Total Posts : 1
   Posted 7/4/2003 5:12 PM (GMT -7)   
Is there anyone out there? I don' know. I am a new mem looking for someone out there. Wanna say hi to a real person. On our national birthday! Started my third treatment for Hep-C. Three's a charm they say. First treatment about '91 then '99 'an now folks, for a third time, here I go with Peggy. I know alot about the trip. Want to relate to others. Write me! I am just starting with this service so I have to get used to it. I am KNOWFEARMAN (it was hard to get all those letters on my shirt)I am a SUPERPERSON. Three weeks into therapy with Peggy and my emotions are a flyin. Have plenty of reasons to be uptight but trying to remain stoic. Gonna have Gall bladder removed on tues next. I guess that makes me uptight too. So on and blah blah. IS THere any one out there??? Got lots of poetry and writings. Also lots of photos to share show etc. I am Photographer learning the new twentyfirst century way.DIGITAL write, call,send a smoke signal love G

BuuBuu
New Member


Date Joined Dec 2003
Total Posts : 12
   Posted 12/11/2003 1:26 PM (GMT -7)   
Hiya Knowfearman~
Hope your tx is going well...if you need a place to hang out please stop by my site.
I Had  liver transplant in 98' from hepc...also have been relisted for second still waiting..did a year of tx peg-riba..have been undetected well over a year now..I am genotype 1a.
Hugs BuuBuu
 

Post Edited By Moderator (~Jennifer~) : 3/20/2005 9:43:02 PM (GMT-7)


allone420
New Member


Date Joined Jun 2004
Total Posts : 2
   Posted 6/16/2004 7:12 AM (GMT -7)   
Hi, I'm a new person here and I also of course have hep c, now I'm just waiting to see if I will need the treatments. Just had a crap load of blood work and waiting to see what geno type I have and all that stuff. My primary doctor that told me I have it said my viral load was high and ultra sound showed some spots what ever that means maybe someone can tell me what this all means. If I have treatments what should I be expecting
Gail

allone420
New Member


Date Joined Jun 2004
Total Posts : 2
   Posted 6/16/2004 7:16 AM (GMT -7)   
Hi, I'm a new person here and I also of course have hep c, now I'm just waiting to see if I will need the treatments. Just had a crap load of blood work and waiting to see what geno type I have and all that stuff. My primary doctor that told me I have it said my viral load was high and ultra sound showed some spots what ever that means maybe someone can tell me what this all means. If I have treatments what should I be expecting
Gail

gentlerain44
New Member


Date Joined Aug 2004
Total Posts : 1
   Posted 8/5/2004 2:44 PM (GMT -7)   
I am also new here.  My first go-round with tx. I am on week 22.  Not having too bad of a time.  My 12 week viral lode was not zero, but there was a signifigent drop, so I decided to continue.  I can't imagine how your feeling doing this for the third time.  I wish you the best!  Hope to talk to you from time to time.  Take care.

pappy47
New Member


Date Joined Aug 2004
Total Posts : 1
   Posted 8/18/2004 1:11 PM (GMT -7)   
Hi new member.I was treated twice. Had a PCR test and it was positive.Go see my dr on 9/15 for further action.On my two treatments I handed it pretty good.Had the mood swings and was tired alot. Don't know if I want to go on treatment again.

troyslisa
New Member


Date Joined Sep 2004
Total Posts : 16
   Posted 9/6/2004 9:37 AM (GMT -7)   
i am a new member too! i was treated 4yrs. ago and am still undetecatable !yay!!! but my husband has it and viral load is med range but he also has crohns disease .the two don't mix together well from what the Dr. is saying.i hoope i never have to go thru treatment again.that was the worst !!! it made me crazy! good luck to you!
 


BLESSED1
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/28/2008 12:50 PM (GMT -7)   
I didn't have hep c but my 14yr old son does. He was just diagnosed, and I am new to the site and really hurting and scarred for my son. my heart cries out for some support

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/28/2008 8:36 PM (GMT -7)   

NoFearMan, well, as you can see, there are many of us "out there."  Welcome to the forum, to you and all the other newbies.

I was diagnosed with hep C in '93.  I had elevated liver enzymes and constant fatigue.  I tried Interferon treatment twice and was taken off both times due to very low white cell counts.  Aside from working P/T instead of F/T, and being always tired, nothing changed until about 2 years ago.  I was having yearly liver sonograms and that time it showed liver cancer.  A huge tumor in my right lobe, which had metastasized to the inferior vena cava.  Long story short, I had chemoembolization and TheraSphere treatment, and then had the entire right lobe of the liver removed in May '07.  Several months after that surgery, I developed an incisional hernia in my midriff.  I had to wait until I was healed from the first surgery before having the hernia repaired.  That was done in Dec. '07.  All was fine, except for a bit of fluid, until around Feb.  It was then determined that the hernia repair had failed and I again had a hernia...a really huge one as of now.  I had made plans to go to NYC and had nonrefundable airline tickets, so I went ahead and made the trip last month.  Now I'm going into surgery in the morning.  I have talked to the hepatologist about doing treatment.  She had scheduled an EGD for me to check for varices, but I canceled that when this hernia surgery was scheduled.  I need to recover from this first before being poked and prodded again!  At this point, I'm not even sure I want to do the treatment, since most people say it is really rough.  I'm 65 and don't want to spend a precious year of my life feeling miserable.

I need to get to bed, but it has helped to respond.  The surgeon has stressed to me twice that this surgery is going to be much more painful than the last two, and that has me very apprehensive tonight.  So if everyone could just keep me in your thoughts and prayers, I would really appreciate it.  I live alone and don't have any family nearby.  You all have become my family.

Big hugs for all, especially the new members,

Connie

 

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