Notso, Loma Linda is indeed an excellent hospital for transplant. Back in the 90s, I was working for Children's Medical Services here in FL and we had a baby who received 2 liver transplants from there. I can't remember now if the liver came to her or she went there, but I believe that an air ambulance flew her there. This was brand-new surgery for infants at the time and not many centers were doing it.
Are you on a transplant list? Also, are you on any meds, such as diuretics?
David is right: Nobody who doesn't have hep C can understand the fatigue, especially if one "looks good." I've seen it described as "walking through molasses" and I think that description fits the feeling/physicality of the fatigue perfectly. It's an effort to do things. Even the thought of tackling something like ironing makes me tired.
Best of luck to you and I hope you will continue to post about your progress.
Post Edited (hep93) : 8/1/2011 4:56:46 PM (GMT-6)
DDmom, is Dennis a candidate for the new treatment?
There are 2 on the market, but one seems to get better results. It is Vertex's telaprevir (brand name Incivek, (pronounced In-SEE-vik.) It is only taken for 24 weeks. It is like the combo, but with a 3rd drug (a protease inhibitor) added. The first 12 weeks include the protease inhibitor (the new, 3rd drug) with interferon and ribavirin, and the final weeks are the combo alone. Some may be asked to go longer on the combo part, depending on their response. Everyone will be able to get this drug, regardless of ability to pay or lack of insurance (or problems with insurance paying for it.)
The other drug is Merck's boceprevir (brand name Victrelis.) The protease inhibitor is in pill form with both drugs. I believe there is only one injection a week of the interferon in both cases.
I was planning to start the Incevik the moment it became available (late May), but because I have a new liver cancer and it was decided to evaluate me for transplant and treat the tumor, I wasn't able to get on it. I'm now on the transplant list and think it would be unlikely that I could start this treatment after TP, as they don't have data on the drug with post-transplant patients. So I imagine I will end up on the combo.
If Dennis's doctor thinks he's a good candidate for this treatment, I hope he goes for it--shorter treatment time and much higher response rate.
Hugs and best of luck. (I also see my hep doc on 9/6.)
Post Edited (hep93) : 8/2/2011 11:42:51 AM (GMT-6)
That's great news, David!! I surely hope I can get Incivek after transplant. My hepatologist had said "possibly" when it first became available. Thanks for the new info.