Chronic Itching

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

densgirl
Regular Member


Date Joined Mar 2012
Total Posts : 84
   Posted 3/27/2012 9:53 PM (GMT -6)   
Hi There,

This is my first post. My husband has HCC, Cirrhosis, Elevated Ammonia levels, low platelets, and many other problems associated with Hep-C. For him the one thats going to send him over the edge is Chronic itching. In all the posts I've read I'm not seeing that from anyone. Does anyone suffer from this problem.

I'm so grateful to have found this forum. I've tried to post our complete story twice but my computer keeps locking up. Thank you in advance for your support.

Densgirl

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 3918
   Posted 3/27/2012 10:38 PM (GMT -6)   
Hi Densgirl,

Welcome to the forum.

We are a group of caregivers, partners, friends and patients whose lives are affected by liver disease.

There is some educational material at the top of our forum that might be helpful. Looks like you have begun to learn the ropes.

When I came here amost 2 years ago, my partner was very ill. He has sobered up, met the transplant requirements, and is almost a year post surgery now.

For almost 9years prior to the surgery, with Hep C and all that he had a horrible time with itching.

Folks here recommend Gold Bond.

But Mike drank a packet of Cholyestyramine after each meal and it did something with the bile salts I never quite understook, and it took the itching away completely. He would scratch himself in the night until he bled! And it stoped the minute his Hep Doc put him on the stuff!

Maybe Mike had some combination of conditions that made it work ,but it can't hurt to ask.

Come back often and tell your story. We'll drop by and share ours too.

Best,
Mama Lama from Florida.
Mike received liver transplant May 1, 2011, Jackson Memorial, Miami, FL

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/28/2012 12:05 AM (GMT -6)   
Densgirl, welcome to the forum! Actually, itching has been discussed many times here. You can use the Search feature at the top on the rt. side and put in itching, which will bring up all the posts about it.

ML made a good suggestion. I use Gold Bond healing cream. Oatmeal baths are also good. Rx Atarax also works.

Hugs,
Connie
hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland

Liver transplant recipient, Oct. 27, 2011, at Mayo Hospital, Jacksonville, FL

Angie1953
Veteran Member


Date Joined Jul 2011
Total Posts : 933
   Posted 3/28/2012 2:53 AM (GMT -6)   
Densgirl,
My hubby with ESLD from Hep C uses Gold Bond Medicated lotion and it seems to work for him. He is not wild about the medicated smell, but it helps with the itching.

But yes, he itches badly and will scratch until he bleeds. He can't remember to use the Gold Bond so I just put it on him when I am at the nursing home to visit.
Angie1953

Angie1953
Veteran Member


Date Joined Jul 2011
Total Posts : 933
   Posted 3/28/2012 2:56 AM (GMT -6)   
Please come back and post often. You can ask questions or just vent. Welcome to our little community, but sorry you had a need to find it.
Angie again

Zipper05
New Member


Date Joined Mar 2012
Total Posts : 4
   Posted 3/28/2012 4:01 PM (GMT -6)   
I told my doctor that with all the suffering I was going through I could handle that but I could not take the itching anymore. I said that was the one thing that would send me over the edge. He couldn't recommend anything but changing soap to Dove and don't scratch! I changed to Dvoe soap and that did help but not much. It is better than using other soaps that are drying. Then I started trying all kinds of lotions. I did use Gold Bond and it made my skin feel better but only for a short time. Now Neosporin has come out with a set of products for eczema. The anti-itch cream is wonderful. I can't afford to use all the products but when I can I'll buy them too. So far it's the best I've found. No one has given a name to the rashes we get with liver disease so that doesn't help. Maybe it is a form of eczema, I don't know. A friend gave me a tube of Ca-Rezz cream also. It's for diaper rash and that sort of thing but it really does work too. I use both products every day now and it has made my life much better. I only have an area on my left arm that really itches now from time to time but the rest of the rash and itching has stopped.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/28/2012 4:15 PM (GMT -6)   
Zipper, welcome to the forum! Actually the itching is from bile salts. I like both Gold Bond and OTC hydrocortisone cream 1% (the strongest available w/o an RX.)

Hugs,
Connie
hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland

Liver transplant recipient, Oct. 27, 2011, at Mayo Hospital, Jacksonville, FL

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 3918
   Posted 3/28/2012 6:57 PM (GMT -6)   
From Wikipedia:
 

Bile acid sequestrants such as cholestyramine are primarily used to treat hypercholesterolemia, but can also be used to treat the pruritus, or itching, that often occurs during liver failure, due to the liver's inability to eliminate bile.

 

Mike used this powder from 2003 - 2011 with great success!


densgirl
Regular Member


Date Joined Mar 2012
Total Posts : 84
   Posted 3/28/2012 7:59 PM (GMT -6)   
Thank You Everyone,

He is actually doing most of these things now. He see's the doctor tomorrow. I'll let you know how it goes.

xoxo
densgirl

cable poodle
Regular Member


Date Joined May 2011
Total Posts : 491
   Posted 3/29/2012 12:46 PM (GMT -6)   
Densgirl,
My husband had the itching and we talked to his GI about the cholesterolmyne (mamma lama has correct spelling), and it is mildly unpleasant and gritty, but it works. It attaches to the bile/toxins in the blood and they go out in waste instead of thru the skin, thus no more itching. The taste and texture is worth the reward of not itching and for the spouse the complaining about it , and the suffering from watching them scrath themselves til they bleed. Everyone is happy!! :)
Successful transplant Feb. 8,2012 at Pittsburgh VA Medical Center

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 426
   Posted 3/30/2012 3:19 AM (GMT -6)   
Densgirl, I have a stock load o f every product for itching there is in the st0re. And remedies ,cold shower, hot shower, mud packs, epsomsalts nothing ,well benadryl but it makesyou sleepy the cream works. And if he breaks the skin while scratching it leaves an ugly scar. I went through most all. And lately I have started the prosess all over again strange. Well they did say 5 your time.
since the first day I was told by an unsyompethic lLPN that i would be DEAD DEAD between 48hours To 5 years.
And the doctors say they they dony know what caused it Every moment of my life is gone.
Sooooooooooooooooo Sorry I intended to talk about lotion. KEEP POSTING EVERONE HERE IS GREAT
iM NOT TO BAD JUST A CRY BABY
LAVENDAR































a
lavendar

densgirl
Regular Member


Date Joined Mar 2012
Total Posts : 84
   Posted 3/30/2012 10:05 AM (GMT -6)   
Good Morning All,

Well it turned out my husbands appointment was canceled yesterday. He will be getting a call in the next couple of day's to begin the work up for a transplant. The tumor he has is just under 2 CM, Kidney function is still good, but he has a ton of other problems. I love this forum. I share our journey with you when i can get on a different computer, mine keeps locking up so I have to keep it brief.

Hugs for All
Densgirl

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/30/2012 10:31 AM (GMT -6)   
Good that the tumor is less than 5 cm and also that he will be evaluated for transplant.

Hugs,
Connie
hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland

Liver transplant recipient, Oct. 27, 2011, at Mayo Hospital, Jacksonville, FL

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 3918
   Posted 3/30/2012 10:43 AM (GMT -6)   
Densgirl,

Since I started posting, about 1000 posts ago, there have been more and more folks who have gone though the transplant process.

There is a lot of good information here from patients and caregivers.

I am thrilled to hear he will be considered for the surgery. The balance between being the sickest on the list, yet sturdy and healthy enough for the surgery is a delicate balance! My partner was sure at the end of his rope.

And who would have thought that getting a tumor was a good thing? But that 2 cm tumor SAVED his life...it bumped him up on the list.

Mike was in the ER in April 2011 with painful pancreatis AGAIN. They gave him some morphine IV and called for the Hep Doc. He sat near Mike's head and whispered for him to hang on...it would be days until his transplant, but he had to HANG ON. It was hard. Mike was ready to give up.

13 days later, Mike was in surgery. It makes me cry to think of that time...it could have gone either way.

Carol
Mike received liver transplant May 1, 2011, Jackson Memorial, Miami, FL

serious
New Member


Date Joined Mar 2012
Total Posts : 11
   Posted 3/31/2012 9:56 PM (GMT -6)   
I read your post; I have stage 4 cirrhosis and for about a month I have experienced itching on my upper body, arms, chest and head.  I have tried everything.  It mainly hits right before I go to bed.  I am wondering if it is the ammonia levels, I have asked my doctor but no direct response.  Sorry no answers for you, but at least I'm glad I am not alone with this symptom.  I thought I was going nuts.  smilewinkgrin

serious
New Member


Date Joined Mar 2012
Total Posts : 11
   Posted 3/31/2012 10:11 PM (GMT -6)   
To Everyone :

I really don't know what or who would understand what I am going through; thank you all for being there with their suggestions and experiences. It is so scary at times.

Charlie92
Regular Member


Date Joined Jul 2009
Total Posts : 191
   Posted 4/1/2012 4:40 PM (GMT -6)   
I use Gold Bond medicated powder for my wife when she has itching spells, it is relatively inexpensive and works within minutes for her. The spells always occur during the night.

Charlie Johnson
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 24, 2014 6:53 AM (GMT -6)
There are a total of 2,250,131 posts in 250,307 threads.
View Active Threads


Who's Online
This forum has 157501 registered members. Please welcome our newest member, Gloinfrance.
311 Guest(s), 10 Registered Member(s) are currently online.  Details
Rrakkma, lymebarthiker, Morif10, deborahscinder, Park12, Our Mom, Old Mike, paulroy, Big Mac, MrMattyMatt


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer