hep c novice seeks advice

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hep c novice
New Member


Date Joined Apr 2005
Total Posts : 3
   Posted 4/27/2005 9:14 AM (GMT -7)   
Have just recently been diadnosed,family dr referred to specialist who cant see me for a yr-fitigue getting best of me-im 53-can anyone recommend any interim remedies to help?

hep c novice
New Member


Date Joined Apr 2005
Total Posts : 3
   Posted 4/29/2005 9:32 AM (GMT -7)   
To jennifer from hepc novice-there are no other dr to transfer to, i have transferred 5 times and basically been told "just go back to work", given no insight into my disease or how to cope with it-how can i work when i cant even get out of bed-plus the fact i have no family or friends and my relationship ended due to them not understanding i dont want to sit home all the time, i dont feel well enough to go out-does anyone know of remedies to combat the tiredness or is this just something i have to get used to? Any insight would be helpful, thanks.  

sailgirl
Regular Member


Date Joined Apr 2005
Total Posts : 23
   Posted 5/7/2005 9:04 PM (GMT -7)   

Hi everyone,

If you have been diagnosed  with hepatitis C and are not being treated, its very important that you get to a gastrointerologist who is familiar with this disease.  If the Hep C does too much damage to the liver, then the treatment won't help without a liver transplant.  I was diagnosed in October 2004 and also had my gallbladdar removed in the same month because of gallstones.  The surgeon took a biopsy of my liver to see how much damage had occurred so that information was really helpful to the GI dr. He told me I needed to start therapy within a couple of months at least or my liver would be too damaged.  I am on Pegysus and copegas now.  I started in Nov.2004 and I was able to continue working until Christmas break.  Right now I am on an extended medical leave.  I am doing ok, I just have a lot of problems with infections and extreme weakness and tiredness.  Bottom line, get to a doc and start treatment.

sailgirl


hep c novice
New Member


Date Joined Apr 2005
Total Posts : 3
   Posted 5/9/2005 1:44 PM (GMT -7)   
TO SAILGIRL AND JENNIFER-FROM HEPC NOVICE-Thank you for your responses, unfortunately my situation remains the same-I just found out I cant go to pittsburgh for treatment because they dont take my insurance-so i guess i have to wait 10 mo to get treatment here.I have decided to try some of the herbal treatments in the meantime.I figure to try something is better than nothing.The only good news is my disability hearing is finally scheduled for july and im just praying it will be approved. I feel encouraged that my fitugue IS A NORMAL REACTION as i really have nobody to get feedback from.Will take any insight anyone has to deal with my predicament. sad

Christina_R
New Member


Date Joined May 2005
Total Posts : 15
   Posted 5/17/2005 12:51 AM (GMT -7)   
Maybe you can be put on a wait list in case somebody cancels their appointment with your gastro. 
 
I know what you're going through with the fatigue.  I've had fatigue and muscle weakness for over 5 years now.  What I have found that helps this is walking and exercise.  As hard as it is to do, I just do it, eventhough it burns my muscles.  The last few days I have been slacking off and the fatigue is setting in again.
 
I have cut out red meat and eat a lot more whole foods and have managed to lower my AST/ALT.  I haven't been able to lower my enzymes for years until now.  I guess what I'm doing is working for me.
 
Hope this helps.
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