dealing with the dragon

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randy224
New Member


Date Joined Jul 2005
Total Posts : 1
   Posted 7/10/2005 5:08 PM (GMT -7)   
 I was diagnosed with hep c3 months ago im 25 yrs old an dont know how long i ve had it in my past i was hard core on the drugs and alcohol.  im completley clean now.  the diseae and the life style. have taken a t oll on my body.  i actually had to quitr working a few weeks ago cause  i had what felt like a massive heart attack.  the doc think anxiety but i dont trust that.  ive got a lot of pain in my joints my hands are  red. my nails are white  i have a constant pain in my right side  i get short of breath often . on a scale of 1 to 100 my energy level is 9.  i have various other symptoms but i dont want to go on all day  my liver enzymes are normal so says the docs i have nt got the results yet on other tests yet but my ct scan came back normal and my cbc s are mildly  abnormal.  this disease sucks.  i ll probaqbabl go on the treatment if all gos well on my tests.  and beat this thing              

crissy
New Member


Date Joined Jul 2005
Total Posts : 2
   Posted 7/16/2005 1:02 PM (GMT -7)   
I was diagnosed with Hep C 3 years ago. I am to begin Peg Interferon and Ribavirin (sp) on Monday, anyone have any first hand information on what I can expect? I have read a lot of info as well as surfed the net, but would like to talk with anyone who has been or currently on these meds.

Thanks! Cris

crissy
New Member


Date Joined Jul 2005
Total Posts : 2
   Posted 7/16/2005 1:03 PM (GMT -7)   
Sorry I didn't mean to post this on your space.. Not sure where I go to post my own..

Good Luck to you though.

Christina_R
New Member


Date Joined May 2005
Total Posts : 15
   Posted 7/18/2005 3:55 AM (GMT -7)   
Hi Randy.  :-) Ya it can be stressful.  I think the hep gives us anxiety.  I have had anxiety for years.  I think I am learning to live with it as I am the hep.  The Anxiety group are a great bunch of peeps, they've helped me out.  
If your enzymes are normal that is awesome.  I've been working my rear off trying to lower mine, and have actually succeeded a bit.  I too get pain in that area.  I had to go off my anti anxiety medication because the pain seemed to get worse.  Dr. didn't believe me, said that the medication doesn't do that.  My doc drives me nuts. 
If you have the energy, exercise can do wonders for anxiety.
I really hope you start feeling better soon.  We are here if you need to talk or have questions.
The thing I find hard is trying to meet someone and feeling scared about telling them I have this disease.  Does anyone have experience with this???
 
 
Christina

Christina_R
New Member


Date Joined May 2005
Total Posts : 15
   Posted 7/18/2005 4:33 AM (GMT -7)   
Hi Crissy. 
I have been on combo therapy.  While I was on therapy I joined a couple of groups and it was really helpful.  They were going through the same stuff and had a lot of good info.  It's been three years since I was on therapy.  I was on the Pegasys/Ribavirin combo therapy.  In a trial, actually. 
A lot of people were responding to therapy.  It felt like everyone was responding but me.  To respond you have to have a 2 log drop in your viral load after 6 months of treatment.  My Viral load was 2.2 million copies per ml/iu.  After 5 months of treatment it dropped to 715,000 copies per ml/iu.  If it had dropped to 220,000 I would have been a responder.  I have thyroid disease ( not good for therapy ) That is why I had to stop treatment. 
 
If you have any specific questions, just ask.  I can give you some info, but not all.  I was 31 when I did TX.  I felt ok most of the time until my thyroid went nuts.  Sometimes I got bad headaches, bone pain, and nausea.  These were manageable through other meds.
From what I remember.....Oh yeah, brain fog.  Still got it.  tongue  As you can see my paragraphs are scramble eggs, just like my brain.  Most people that I chatted with continued to work through therapy.
 
Maybe we can set up a chat session.  I'm on Pacific time.  Let me know.
 
Take care
 
Christina  
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