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devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 12/7/2013 2:52 PM (GMT -6)   
My boyfriend was doing well for a couple months on Baraclude and taking 2 kinds of water pills(low dose). Now he is blowing up with water and got 6 lieters drained 8 days ago-they doubled up on water pills-but he is blowing up again. Is this normal ? Any replies are welcomed and thanks for taking time out of your day : )

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 12/7/2013 3:47 PM (GMT -6)   
Your boyfriend needs to use as little salt as possible. Most canned, frozen and food from restaurants is full of sodium and fresh food is the best way to avoid it. Read the labels before buying food. Bread is a good example of food that's full of salt. Salt intake will cause fluid to accumulate in your body.

Does your boyfriend have Hep C, alcoholic hepatitis, or is it auto immune? How long has he had hepatitis?
nullum beneficium impunitum...

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 12/7/2013 3:59 PM (GMT -6)   
He has Hep B. Just found out in June this year and they said it was chronic.
I guess we need to be stricter on the salt content. Dr at I.U. Med said keep sodium under 2g's and he doe's that so I guess we should cut it out all together somehow. Thank you for your advice !

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 12/7/2013 7:16 PM (GMT -6)   
Try to cut it gown to 1,000 mg. a day. My doc had me keep track for 3 weeks. Eventually, I got down to 7-800 mg. a day. That took a lot of willpower, as I used too much salt before that. I learned to use spices and citrus juice to take the place of salt.

My fluid problem was edema in my legs, not the abdomen.
nullum beneficium impunitum...

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 12/7/2013 9:07 PM (GMT -6)   
Thank you David ! I much appreciate your advice and will start counting the mg's and keep under 1000.
Another question.......why doe's the liver not like salt ? Do you know ? I am just curious and would like to understand in as many ways as I can. I would also like to completely comprehend what exactly takes place inside the liver from the Hep B. I am just one of those kinds of people that want to dig deeper. Again Thanks !

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 12/7/2013 9:39 PM (GMT -6)   
Consumption of salt makes the body retain water. Obviously, that's not a good thing if you're having a build up of fluid from hepatitis.

One thing I forgot to mention; you need to stop drinking any alcohol, if you haven't already. It's the worst thing you can do if you have hepatitis.

I know very little about Hep B, other than what is posted here. I have Hep C, though I've been undetectable for nearly 2 years now. You can do a search at the top of this page for Hep B.
nullum beneficium impunitum...

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 12/7/2013 10:22 PM (GMT -6)   
Thanks David. He hasn't touched alcohol since the viral news in June. And I haven't had a drink in over a year because of a d.u.i.
Your news of your Hep C being undetectable for 2 years is very encouraging ! Thanks for your helpful replies I appreciate every word : )

A.Ziffle
Veteran Member


Date Joined May 2011
Total Posts : 2071
   Posted 12/8/2013 5:23 AM (GMT -6)   
DV, Out of convenience for us trying to keep track of what's going on. Could you consolidate your subjects you posted? Just kinda pick one. I'm finding my self bouncing in between the two to get a picture of what's going on.
I'm just gonna ask outright and appreciate your honesty upfront. Is your boyfriend possibly a alcoholic? I ask this for a few reasons. It defines how he is to be treated. Treated in a healing sense of the word. I myself am a non practicing alcoholic and that's what brought about my liver disease. I will confess my knowledge of Hep B is limited but from your initial post(s) my thought leaned towards Alcoholic Cirrhosis. Are you sure your getting the whole picture here from him and his doctor? The symptoms your describing while not totally exclusive to Alcoholic Cirrhosis is very similar to it. I see both you and he obviously indulged in drinking at some point and that isn't bad. It's when it get's out of hand and causes problems.

My wife will tell you to this day she never saw me "Drunk" or display stereotypical "Drunken bum" behavior but fully acknowledges I drank excessively. It's entirely possible to be a functioning alcoholic. I know, did it for years. It never effected my work or my health until my liver and kidney got together and said " We had enough, We quit". Perfectly healthy to deathly ill in a day. Mind you I'm not being accusatory or saying this is what he's experiencing but is a distinct possibility. Your there, You know him and his lifestyle. If you think this may be a possibility we need to be discussing a few other scenario's that will make or break his chances of survival.

Ziff
" Never try to teach a pig to sing , It wastes your time and annoys the pig . "

Post Edited (A.Ziffle) : 12/8/2013 6:20:57 AM (GMT-7)


MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 12/8/2013 10:49 AM (GMT -6)   
DV

I agree with Ziff...keep going on one or the other of the posts...let me know which one and I'll lock the other or move the comments over to keep them all current.

There is a great Resources post at the top of this forum...with definitions, what to expect, lab definitions, etc. I think it will really help you.

Are things a little better today?

Ziff brings up a good point...sometimes it isn't just ONE thing that does in a liver. I've told my partner's story so many times...but the bottom line:

Hep C, Alcholic Liver Disease, Liver Cancer, Eposides of Hemachromatosis, and exposure to a workplace chemical that damages the liver...he was doomed to disaster!

Which has worked out pretty well for now...he is sober and has a new liver. He still has the Hep C. So that is our next battle!

Hugs,

Mama Lama
MamaLama
Forum moderator - Hepatitis


Partner received liver transplant May 1, 2011, Jackson Memorial, Miami, FL

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 12/11/2013 10:55 PM (GMT -6)   
Its o.k. to combine the two posts I have into one. They (Doctors) told him it was Hep B. He did drink hard liquor before. How doe's that have a bearing on his survival or not with Hep B ?
He is sleeping a lot it seems like. He wakes up a lot but back down. The fatigue is awful and I have that too.
And it is salt that is making him fill up with water. We thought we had it under control and really wasn't keeping it to under one gram a day. The specialist said keep under two grams and that wasn't enough.
We were evidently salt junkies before lol ! It is not easy to totally drop all salt. It is in everything practically. How do you eat good on a poor mans budget ? That is the new thing to deal with is how ? I sure hope the factory call's me to work soon, and somehow with this fatigue I will work hard if it kill's me. This is more stress right now than all my life up to this point combined !
Thanks to all of you responding to my posts ! You are my angels and I thank you for your time and knowledge : )

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 12/12/2013 12:31 PM (GMT -6)   
Here are the other devastated posts. They will post on this thread now:



so sorry for your situation. your boyfriend should be seeing a hepatologist for evaluation. only a hep doc for your bf. the dr you are seeing will monitor your liver thru bloodwork for the time being. most patients clear the virus without treatment. at 6 months , if you havent developed anti bodies the dr will call it chronic. approximately 5% of infections go on to become chronic. and then not all chronic courses are serious. if you google labtests online, they have a great site learning and interpreting your labs. having changed your lifestyle is huge and gives your bf a much better chance. best to you two
barry

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MamaLama
Forum Moderator


Hi DV...That's my new nick name for you, as you mixed up your screen name.

Welcome to the forum. As you have discovered our members are both patients and loved ones of patients living with liver disease.

There are some good sites to review in the resources section at the top of this forum.

I think you have gotten good advice about fluid retention and diet...keeping the salt to a minimum. Advancing liver disease and abdominal or leg swelling is not unusual. Hopefully our member ZIFF will be on later and will share with you about his battle with belly fluid - ascites.

When they take a lot of fluid at once, most of our members also get albumin to replace that which is lost.

There are several l kinds of diuretics...one is potassium sparing and I hope they have you on that one with any others...so that your electrolytes don't get mixed up.

When are you meeting your doctor next? Is he/she a Hepatologist? That is the best for liver diseases. the regular primary doctors or general GI docs are not specialists generally.

Healthy diet, low sodium, get some exercise when you feel well enough, get lots of rest, and let us hear from you,

Best.
Mama Lama





A.Ziffle
Veteran Member

Hi DV, I had severe issues with fluid retention in my abdomen as Carol mentioned. If his doctors haven't performed a Paracentesis yet they may have to soon. Paracentesis involves you having to get the fluid drained manually by means of a suction device. A Radiologist does a sonagram to mark the spot where the largest pool of fluid is located. The surgeon on call at the time typically is called in to insert a needle into the abdomen at the point the radiologist marked. A tube is then attached (similar to a I.V) that goes to a pump with containers on it. It removes the fluid much like a vacuum. When a container gets full (liter) the other container begins to fill while they dispose of the fluid from the first or take small samples for lab testing.

I've had over 8 liters removed in one sitting on many occasions. Of course it hurts to have the needle inserted initially but the procedure is pretty painless otherwise. That initial pain pails in comparison to the pain of having 12 or more liters of fluid trapped in your stomach. I was seeing a G.I at the time and he tried desperately to control the fluid with medications for almost a 6 months. Not a bad idea if it works or is showing signs of working. It's a really bad idea if it's chronic like in my case. I eventually got a appointment with a Hepatologist before this guy (GI) killed me. The Hepatology and transplant center at UNC Chapel Hill, NC. saved my life when they got involved.

Seeing a Hepatologist should be his min goal aside from treating the fluid issue. The low sodium diet works for most people just like the diuretic pills. Done in combination people have seen great results without the use of drastic procedures. Breaking a salt habit is tough or it was for me. Eventually once he gets used to it salty foods will taste horrible, It's just getting there that's difficult. If he has edema ( fluid in his calves, ankles and feet have him keep his feet elevated above his head for awhile. TEDS medical stockings work well for decreasing the pressure in his lower legs.

Possible problems to look for are umbilical hernia and internal bleeding. Blood in his stool is bad news. Umbilical hernias are somewhat common with large volumes of fluid in the abdomen. It makes a inny belly button into a outty. The fluid pushes it's way through the stomach and gets into the soft belly button cavity and pushes it outward. Mine grew to the size of a golf ball. If this happens as long as it stays cool to the touch, Flesh colored not red, and when lightly poked is soft to the touch it a good indicator it's normal for the situation. If it gets red, hot and hard go to the emergency room immediately. Could be intestine is pushing through the opening and about to rupture. This is instant death if the intestine ruptures and surgery will likely have to be performed to replace the intestine into it's proper spot again. This is what happened to me.

There is more for you to learn but this should give you something to chew on for awhile. Think about some questions you want to ask and we'll do our best to answer them. We aren't doctors but most of us have been down every route where liver disease is concerned from a patient or caregiver perspective.


Ziff

Ziff
--------------------------------------------------------------------------------
" Never try to teach a pig to sing , It wastes your time and annoys the pig . "

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devasted

Thanks for the replies-David, ppmguy, mama lama, A ziffle. Im not from the U.K...... I am from the U.S.A. a total country girl. If my English stinks it would be cause this is how I speak and write so bear with me please : )
David, He is being treated at I.U. by a Hep Dr. I am not being treated. Hep Dr. said he wouldn't look at me again until he knew I have had it over six months. His thinking was that I could somehow get rid of it possibly on my own. I don't know and I am nervous about it. I have worked in healthcare for 23 years as a c.n.a. and simply do not trust most Doctors. And I was vaccinated.. yes.....epic fail !
He has had esophageal banding done five times and things got to be looking better so far after 8 weeks. He had a paracentesis a little over a week ago and they drained 6 l's of fluid from abdomen. He has an umbilical hernia that looks like half of a gumball shape. He takes Baraclude 1mg, spironolact 200mg, and furosemide 80mg.
I appreciate all advice on here. I hate that any human being has to go through this and suffer !

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Worried daughter2
Regular Member

Hi Devastated.

My advice is to make sure that both you and your hubby are followed closely by a GI doctor that specializes in liver disease or a hepatologist. Frequent blood tests and scans (Mri, CT and ultrasound) are very important.
My mom has hepatitis B...she has been followed very closely by her local GI doctor who specializes in liver disease. She was also seen a few times a year by a transplant center who coordinated with her local doctor. Last year, we found out that my mom had Hepatocellular carcinoma (HCC)...since she had scans frequently, it was discovered when it was 9mm. Eventually, the tumor grew and my mom got exception points and moved up the transplant list.Thankfully, my mom was blessed with a donor liver 7months ago. I feel its extremely important to have close followup care no matter what stage of the disease a person is in.

You have joined a fantastic forum. There are so many knowledgeable people here...both patients and caregivers. Welcome and make sure to ask lots of questions...its the only way to learn.

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devasted
New Member


Thanks worried daughter2. I get another blood test in January to see if I still have it or what not. His hepatologist wasn't concerned with me and will not treat me until I have it past six months. He goe's to Indiana University to hep Dr again in 2 weeks. I don't think this Dr. doe's enough bloodwork. I think he has too large of patient load. He is very nice but has too much going on.
I am happy for your Momma ! That is awesome ! Thanks for the reply and encouragement as I am really scared. Thanks : )

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**David**
Veteran Member


DV,
Something in your initial post made me think you might be a Brit, but it wasn't because your writing was bad. It was just a feeling when I first read it. What is IU, or should I say where is it?
--------------------------------------------------------------------------------
nullum beneficium impunitum...

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Kierstin
Regular Member


To combat the fear, educate yourself. Its the best cure for it. Once you research and understand the body/liver and how Hep B effects your various systems and the treatments, and of course the outcomes, trust me, you will suddenly find the fear is replaced by fight. Equiped with knowledge, you will want to come out with both fists up fighting.

Good luck,

-K

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devasted
New Member


Thanks Mama, David, K. and Ziff : ) You are Angels !

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arneeb
Veteran Member


OMG.. Devastated... now you went and done it.. put wings on the boys... Mama earned hers.. Oh well guess the guys did too...

Glad you're getting help here D.

Sandia
--------------------------------------------------------------------------------
There is no pit so deep that He is not deeper still... Corrie Ten Boom

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A.Ziffle
Veteran Member


Its o.k. to combine the two posts I have into one. They (Doctors) told him it was Hep B. He did drink hard liquor before. How doe's that have a bearing on his survival or not with Hep B ?
He is sleeping a lot it seems like. He wakes up a lot but back down. The fatigue is awful and I have that too.
And it is salt that is making him fill up with water. We thought we had it under control and really wasn't keeping it to under one gram a day. The specialist said keep under two grams and that wasn't enough.
We were evidently salt junkies before lol ! It is not easy to totally drop all salt. It is in everything practically. How do you eat good on a poor mans budget ? That is the new thing to deal with is how ? I sure hope the factory call's me to work soon, and somehow with this fatigue I will work hard if it kill's me. This is more stress right now than all my life up to this point combined !
Thanks to all of you responding to my posts ! You are my angels and I thank you for your time and knowledge : )


Devasted

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A.Ziffle
Veteran Member


Until the Molly Lama ( Mamalama) comes on I placed your last post here. Just like salt a variety of things aggravate livers that have already been compromised. Alcohol being the worst violator. Start treating the liver as a separate entity. The liver is a filter for contaminants that otherwise would get into your blood stream. Sick livers can't filter properly, exposing you to any and everything you ingest or that might work it's way into the body. No or low immunity even to simple things. While salt is a needed to maintain proper balance in the body, it's certainly not good to be gobbled up in the volumes we as modern consumers do.

Start looking for low sodium recipes on the good ole interweb. It's a nuisance at first to get adjusted to but if you plan ahead, Like cooking simple meals the night before it wont put you out to badly. Left overs that are home cooked are the best way to keep the salt down for me. Fruits and veggies or salads with chicken. Fish is liver friendly and so is (cringe) pork if cooked properly. Stay away from red meats, Hard on the digestive system. Find a salt alternative, I use a substitute made by Cavenders, It is made up of several spices and is salt free. Careful which one you choose if you go that route as they make a few types (blue label is no salt). In a perfect world we wouldn't have to fear going to the grocery store and spending tons of money to eat properly without thinking. Once you establish what is acceptable to your wallet and your health you'll see it's not that bad.


Ziff
--------------------------------------------------------------------------------
" Never try to teach a pig to sing , It wastes your time and annoys the pig . "
MamaLama
Forum moderator - Hepatitis


Partner received liver transplant May 1, 2011, Jackson Memorial, Miami, FL

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 1/26/2014 3:02 PM (GMT -6)   
Hello friends ! He had a apt with Hep Dr. this week and his viral load went from168,000,000 to 1,020 ! How amazing that is to me.

He had a fibro-scan and do not have results back yet. And isn't retaining water like before but gaining weight. He still acts grumpy if he hasn't taken his HE meds on time. I will Never get used to the crappy attitude. I try to keep him on time with his meds but he gets an attitude and makes me feel like a meanie for trying to keep him on time. I never *****.....I keep a nice sweet voice. Doesn't help- so I guess I am the med police lol !
I go for bloodwork to see if I was able to fight off this virus this week. I am hoping and praying. I was vaccinated for this virus from my employer several years ago so I have no faith in vaccinations.

A.Ziffle
Veteran Member


Date Joined May 2011
Total Posts : 2071
   Posted 1/26/2014 6:24 PM (GMT -6)   
That's great news. You must be doing a good job of medicine cop. If your not getting on his nerves your probably not giving him enough Lactulose. That stuff makes me ill to this day just thinking about it. I was taking so much of the stuff I stayed in the bathroom. Sore rump and a bad aptitude. Miserable doesn't even scratch the surface of how I felt.


Ziff
" Never try to teach a pig to sing , It wastes your time and annoys the pig . "

rkayne
Regular Member


Date Joined Jan 2014
Total Posts : 93
   Posted 1/26/2014 9:43 PM (GMT -6)   
Hey DV! Heinz makes a NO SALT, not even the fake stuff, ketchup. It is labeled 'No Salt' and Organic. Muir's makes a no salt tomato sauce. Worchestershire in a 75% less sodium is available. Yamasa makes a low sodium soy sauce. These I mention, as they can be the base for a LOT of things (easy BBQ sauce, marinades) and they taste GOOD. Instead of masking low quality ingredients by pumping them full of salt, they are using only the best, freshest goods. I am going through that battle of low sodium with my wife right now. It is hard.

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 1/26/2014 10:09 PM (GMT -6)   
I use spices and citrus fruits for flavor, instead of salt. Lemon, lime or different kinds of vinegar add more taste than salt. I eat more chiles in my food. They vary in how hot they are, depending on what suits your taste. Hot sauces often contain salt, so fresh is better.
nullum beneficium impunitum...

Mae be here
Veteran Member


Date Joined Nov 2012
Total Posts : 1290
   Posted 1/27/2014 10:16 AM (GMT -6)   
And low salt or "lower salt" doesn't necessarily mean acceptable level of sodium. I looked at low salt soy sauce and it was still way over the limit for a liver patient so check those labels.
Mae

"I don't like to make plans in advance because then the word 'premeditated' gets bandied about in the courtroom"

Caregiver for brother's liver transplant
Blessedly rec'd liver 1/13/2013 at Mayo Clinic, FL

Mae be here
Veteran Member


Date Joined Nov 2012
Total Posts : 1290
   Posted 1/27/2014 1:25 PM (GMT -6)   
p.s. Dining out can be VERY bad for the liver, even when something is called "heart healthy" you just can't trust the restaurants. They can only survive if they have lots of preservatives (which often translate to sodium) in their foodstuffs. Even salads can be loaded.

I can tell you this from my experiences at owning a restaurant.

Best of luck,
Mae

"I don't like to make plans in advance because then the word 'premeditated' gets bandied about in the courtroom"

Caregiver for brother's liver transplant
Blessedly rec'd liver 1/13/2013 at Mayo Clinic, FL

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 1/29/2014 1:58 PM (GMT -6)   
Thanks for all the replies ! A.ziff ,WTN, David, MBH, All of you are angels to me and I appreciate every single reply very much....Thank you !
We got his new lab results and his viral load went from 1,020 to 1,080. In the beginning it was 168,000,000. So I do not know why it is changing now......?
And also his labs for ALT were 36 in November and now they are 191. His Ast was 51 in November and now is 195.
And Fibroscan results said 75 on the paper. We haven't called the Dr. yet to discuss results. I have no idea what this means. I looked online and a 75 looked like a F4 to me.
On the lab paperwork the Dr. was concerned if he was taking his Baraclude. And he religiously takes it everyday so I am concerned as to what this all means and what can he do if anything.
And they haven't prescribed lactulose to him and I don't know why ???
He is on Baraclude, spironolactone, furosemide.

Post Edited (devasted) : 1/29/2014 1:33:13 PM (GMT-7)


Mae be here
Veteran Member


Date Joined Nov 2012
Total Posts : 1290
   Posted 1/30/2014 6:00 AM (GMT -6)   
Ideally, let the doctor discuss the results with you, you should call him today and ask those questions.

I don't like the elevated ALT and AST though. He IS seeing a hepatologist, right?

Mae
Mae

"I don't like to make plans in advance because then the word 'premeditated' gets bandied about in the courtroom"

Caregiver for brother's liver transplant
Blessedly rec'd liver 1/13/2013 at Mayo Clinic, FL

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 2/9/2014 2:20 PM (GMT -6)   
Mae be here.....Thanks for the reply ! He is seeing a hep Dr. He had a scope done a few days ago and the scope Dr. thought he looked like he had candida in his esophagus(mis-spelled sorry)....she is contacting hep Dr. Don't know what this all means but it scares me......it looks bad. Doctors are hard to get ahold of in indy.....Hopefully we hear something this week. cry

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 3/14/2014 5:54 PM (GMT -6)   
Hello again to my Angels who all gather here and lift each other up :-)
I found out he is decompensated. A Child's class B and concomitant with hep b and alcoholic cirrhosis. And I found that out by picking up his chart and reading it while his dentist was out.
His hep Dr. Had sent the dentist this info and we had not learned this until now.
The University hospital that my bf is seen at has a huge lack of communication going on. I don't expect perfection, but this is a scarey path to walk and not know what to ask or expect now. Next appt with hep Dr. I will have to tell him to not be scared and just communicate info any and all we would like to know. I just am kinda shocked that the Dr. Isn't more concerned.
Also I still have to be the med cop. Right now he gets upset if I even slightly have emotions. I'm not allowed to talk very much or lol if I don't talk that is being mean. I had spent considerable amount of money on dental work and wasn't satisfied with the work so I was less talkative and that means I was having emotion that I shouldn't have brought home-seriously lol. I didn't cuss or raise my voice or rant, rave or complain. I was upset and just was at a loss of words. I feel like I'm being punished for existing. Mentally I'm fighting his cold heart. smhair smhair smhair smhair

arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2356
   Posted 3/14/2014 6:22 PM (GMT -6)   
Glad to see you back. Yep many doctors don't talk to the patient about the full diagnoses. It is a good thing to get copies of your medical records and keep them in a three ring binder and keep a copy of all lab results. It helps to remember what was going on and where he is right now etc. Communication is vital!!

Hope it helped to rant a bit!!

Sandia
There is no pit so deep that He is not deeper still... Corrie Ten Boom

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 3/19/2014 1:34 PM (GMT -6)   
Arneeb thanks for the reply ! It did feel good to rant. I have nobody to talk about this with except this forum. He chooses to not let his family know what is really going on. He is embarrassed by having hep
. I'm angry about having it to the point I would wear a T-shirt declaring it lol. I went to a dentist and they treated me like I was dirty.
So why is there so much aids awareness but not Hep ? It is 100 times easier to catch they say. They have made aids more acceptable by speaking out about it and so now without representation society shuns hep and makes it the silent personal hell I must suffer alone because I must have been a badd girl to get it.
Sorry for the gripe. I feel like I can only silently scream and I am frustrated......very frustrated devil

Mae be here
Veteran Member


Date Joined Nov 2012
Total Posts : 1290
   Posted 3/19/2014 6:23 PM (GMT -6)   
DV,

I'm confused about who actually has the hep, is it both of you? You were talking about your boyfriend, then you were saying that they treated YOU badly at the dentist, like you were dirty.

Perhaps I missed something along the way, wouldn't be the first time LOL.

Please clarify for me, thanks.
Mae

"I don't like to make plans in advance because then the word 'premeditated' gets bandied about in the courtroom"

Caregiver for brother's liver transplant
Blessedly rec'd liver 1/13/2013 at Mayo Clinic, FL

devasted
Regular Member


Date Joined Dec 2013
Total Posts : 38
   Posted 3/20/2014 12:02 PM (GMT -6)   
Dear Maebehere, we both have it. I got tested after we found out about him. My viral load isn't real high,I haven't had this a whole year yet.
While he must have had it for years or so the Dr says. I don't focus on me much. I just feel extreme fatigue and have nite sweats. He has a lot of things going on that worry me but we hate being treated like we are dirty. People can be so cruel it breaks my heart and makes me really angry too. Am I losing it feeling like this ?
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