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Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/1/2005 8:10 PM (GMT -6)   
Hello Everyone,
 
My hubby has Hep C. For the last month,each night after he gets in bed, his legs start itching. They do not bother him any other time.
 
He got up last night and went to sleep on the sofa, and they stopped itching. I have not changed anything  I have been doing, as far as Laundry detergent, softener, everything is exactly as it has always been. Has anyone had this happen or have any info on what might be causing it?
 
Thank You in advance for any input you might have,
 
flopsie
 
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1883
   Posted 8/2/2005 10:52 PM (GMT -6)   
Hey Flopsie!
 
Did your husband sleep upright on the couch rather than flat down on the bed? Did he still use a sheet of the same fabric or did he use a different cover than what was on the bed? Is there something new in the room or something he does before bed that is new? Are you using new lotion that you use prior nighttime?
 
I don't really have answers, but I thought I'd throw some suggestions out there to think about. :-) I know when my liver acts up, I'm sensitve to EVERYTHING and I react to the smallest amounts of whatever is surrounding me.
 
**
 


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/3/2005 12:29 AM (GMT -6)   
Camama, nothing has been changed. He slept lying down on couch. He did use a different sheet though.

I went to store today and got a new detergent and fabric softener, so we will see.
Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 8/4/2005 1:05 PM (GMT -6)   
Flopsie,

I try to use the detergents that have no perfumes, no dyes, etc. My fiance is very sensitive to chemicals, so no chlorine bleach on his whites, either.

The itching could be from the fluid in his legs. It's really common in liver disease and doctors aren't positive what causes it. With Mark, I think it was when his bilirubin was higher.

I used to rub lotion into his legs, when it got really bad. Again, no perfumes, no dyes. Usually whatever the hospital had given us worked pretty well. It helped his leg pain, too.

Good luck.
DJ


CaMama
Veteran Member


Date Joined Mar 2005
Total Posts : 1883
   Posted 8/4/2005 11:40 PM (GMT -6)   
That's good info to know.
 
But why would he only itch in bed I wonder if she hasn't changed the detergent....strange.
 


DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 8/6/2005 3:52 AM (GMT -6)   
Mark never itched until he was in bed, off of his legs. It's a really odd thing.
DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin;  Hepatitis C is back.
If God brings you to it, He will bring you through it.


Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/6/2005 7:33 AM (GMT -6)   
My Mark only itches in bed, off his feet. hmmmmm


Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 
VIEW IMAGE

Post Edited (Flopsie) : 8/6/2005 3:37:03 PM (GMT-6)


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1187
   Posted 8/6/2005 8:47 AM (GMT -6)   
My hubby has hep c /cirrhosis of the liver too. He seem to have itching all over and it drives him nuts. He just started back on treatment this is the third or forth time i,m loosing count. He is on ribavirin ,lexapro,and pegasys he seem to be doing very well so far on the treatment so pray things continue to go well. I'll be praying for you all i know how hard this can be may God be with you all. Karen

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/6/2005 4:39 PM (GMT -6)   
Karen, I will keep you and hubby in my prayers for sure. I know the Pagasys and Ribavirin can take it's toll vey quickly.

Here's hoping it works this time,

flopsie


Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
 
VIEW IMAGE

Post Edited (Flopsie) : 8/7/2005 6:30:22 PM (GMT-6)


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1187
   Posted 8/7/2005 9:59 AM (GMT -6)   
Thank you Flopise, and i will also keep you in my prayers too as i know what a battle this is God bless, Karen

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 8/8/2005 7:20 PM (GMT -6)   
I talked to Mark about the itching and he said that it was worst when he first got up in the morning or had just laid down at night, because the fluid in his body was shifting with the change in position.
DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/18/2005 2:04 AM (GMT -6)   

Thank You,

I will pass this on to my hubby, That must be the answer. I appreciate all the responses.

It is wonderful to have a place that has so many areas we can visit with all our problems. yeah

flopsie


Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today.....www.healingwell.com/donate/
 
 
 
 

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 8/27/2005 10:13 PM (GMT -6)   

Evening, all.

How goes the itching?

Mark's got some water retention again, so we're back to ~scratch~ ~scratch~ ~scratch~.


DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

Flopsie
Veteran Member


Date Joined Jun 2005
Total Posts : 1361
   Posted 8/27/2005 10:30 PM (GMT -6)   

Hey DJ,

Unfortunately we are not doing so well. Considering the Interferon, he is just getting weaker and weaker.Not a good sign I know.

The only problen (aside from all the side effects) we have WHI for  RX and they are going to require we pay up front and they will reimburse. We have to do that with his PAP+, but it is not as expensive..only $75.00 per RX, pharmacy says Interferon could be well over $1,000.00. But ya gotta do what ya gotta do, you know? I don't understand why they call it special formula, when it is two separate meds, the Ribavirin and the Interferon.

Well. we will see how it goes,

flopsie


Don't walk in front of me....I may not follow
Don't walk behind me....I may not lead
Walk beside me..and be my friend...
                                    Albert Carnus
 
and Lord, put your arm around my shoulder and your hand over my mouth
 
Help HealingWell.com continue to help others. Donate Today....http://www.healingwell.com/donate/
 
co-moderator for Arthritis and Anxiety/Panic
 

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 8/27/2005 10:37 PM (GMT -6)   

Flopsie,

Sorry to hear about the side effects. Especially sorry to hear about the insurance issues.  It's just not fair.

Hubby wouldn't happen to be a Veteran, would he?  Mark reminded me that, if he is, you should be able to get his meds at the VA.

Just a thought.

God Bless.  We're keeping you both in our prayers.

 


DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 8/28/2005 2:00 PM (GMT -6)   
Welcome, rbetzmis!
 
I had wondered about that product. Is it non-allergenic, by any chance?
 
Mark doesn't do well with dyes and perfumes.
 
Thanks so much for the suggestion.
 
 
DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 8/28/2005 2:12 PM (GMT -6)   
Sorry, rbetzmis.

Forum rules don't allow posting of information that is copyrighted by another source.

I do appreciate the recommendation.
DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 8/28/2005 2:29 PM (GMT -6)   

Actually, the rules state that links to commercial sites are allowed under special circumstances.

You can find the particulars here:  http://www.healingwell.com/community/default.aspx?f=46&m=106997 .

Thanks for your help and consideration.  I'll have to get to the store and try that lotion.


DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 12/2/2005 3:00 AM (GMT -6)   
hi flopsie. have you or your husband talked to your dr. about medication for liver itch? whenI lay down seems to be when my liver itch gets worse too but the meds help a lot. the itch could be caused by the bile salts under the skin. hope he gets relief soon. God bless . lerie

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/1/2012 7:29 PM (GMT -6)   
Winnies, welcome to the forum. You picked up on a really old thread. Would you please start a new topic to introduce yourself to others and explain your involvement with liver disease. Just hit New Topic instead of Reply. Thanks!

Hugs,
Connie
hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland

Liver transplant recipient, Oct. 27, 2011, at Mayo Hospital, Jacksonville, FL
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