More Solvaldi/Riba

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944s
Regular Member


Date Joined Feb 2014
Total Posts : 40
   Posted 2/19/2014 4:40 PM (GMT -6)   
I just found this website. I am a member on the Medhelp site which is also very helpful.

Me. Canadian male 59 yrs. Did not know I had HVC until last year. Also # 3 Cirr.
Started Sol. / Rib on Feb 1. Full coverage by Manulife, 12 week program. So far no sides feel a lot better. muscle ache is gone and increased my workout time . Just a smidge of brain fog, but my wife will contest I`ve always had that.
The local HepC clinic has been great from the get go. They got me on the program very quickly in fact the first patient in the clinic and in this area.Gilead has been great as well. We did a conference call with Manulife who at that time didnt have the DIN # on the list. Anyway a week later I was good to go.I almost started rib / inter treatment. I had made the decision was approved for coverage and went to the clinic to get it started. The day before Solvaldi was approved and everything changed for the good.No Inter. shots YEA !

Good luck to all on this new treatment.
And to those wanting to start but are worried about sides,there are almost NO SIDES ! Do it ! :-)



Changesd your header so it would be more easily identified by members...hope you don't mind. ML

Post Edited By Moderator (MamaLama) : 2/20/2014 4:32:26 PM (GMT-7)


arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2313
   Posted 2/19/2014 5:17 PM (GMT -6)   
Welcome to our forum!! Thanks for the information!!
I'm sure others will come along. Glad you got this treatment.

Sandia

AllenM
Regular Member


Date Joined Dec 2013
Total Posts : 222
   Posted 2/20/2014 12:08 AM (GMT -6)   
Hi 944s welcome to the forum, I also started on Sovaldi+Ribavirin on February 6th for 12 weeks and I was in the same position and they were planning on giving me the Peg-Interferon+Ribavirin but my wife investigated as soon as we got home because we knew of Sovaldi.

My wife searched and found the DIN# online while I was out of town and within days our insurance Sunlife said they would cover but didn't know for how much. Eventually I was told I would get 80% coverage and then another 20% for the full 100% coverage if I paid $3000 up front which I did.

I have had a few side effects, was very tired some days and also had bad headaches last week which my doctor gave me Naproxen for but otherwise things are going ok, I have a log elsewhere you will notice that I post to when I feel crappy etc. in the hopes it might help someone do the same.

A few users along with myself have made logs with the first post starting something like this
www.healingwell.com/community/default.aspx?f=25&m=2984761

And then we make the subject something like "Usernames Sovaldi + Ribavirin Treatment "

We sort of thought it might make it easier for new users who come to the site to be able to quickly find insurance info, weight, height etc and fairly anonymous stuff but its info that helps the next person quickly find others similar to them to follow their progress.

You can make a new thread in the same format as sort of a log *if* you don't mind and that way you can report when or if you do have side effects and then we can all follow your posts..I'm very interested in how you're all doing :-)

Glad to hear your not having no side effects and I look forward to seeing all of us cured soon!

music
Regular Member


Date Joined Jan 2014
Total Posts : 250
   Posted 2/20/2014 8:09 PM (GMT -6)   
Hi 944s. You have found a super group of people here for support and info. Will look forward to checking in on you. Congrats on the treatment...those if us also on rib and sovaldi are seeing incredible results. Enjoy the journey.

music
"No one cares how much you know until they know how much you care." T.R.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 3899
   Posted 2/20/2014 8:14 PM (GMT -6)   
We are so glad you found HW forum. Let us hear all the details.

Welcome,
MamaLama
Forum moderator - Hepatitis


Partner received liver transplant May 1, 2011, Jackson Memorial, Miami, FL

Post Edited (MamaLama) : 2/20/2014 7:15:19 PM (GMT-7)


ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 625
   Posted 2/22/2014 5:21 PM (GMT -6)   
hi 944s, you stated #3 cirr. does that mean genotype 3, or stage 3 fibrosis.
barry

944s
Regular Member


Date Joined Feb 2014
Total Posts : 40
   Posted 2/22/2014 6:40 PM (GMT -6)   
Stage three fib geno, 2.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 625
   Posted 2/22/2014 6:48 PM (GMT -6)   
sounds great 944s, best of luck and cant wait to see you at the finish line, with your svr.
barry

steve-ca
Regular Member


Date Joined Feb 2014
Total Posts : 207
   Posted 2/22/2014 7:15 PM (GMT -6)   
Hi 944s. Just joining in on the welcoming party- glad you found us!
I can't wait to see your progress along with the rest of us on treatment.

944s
Regular Member


Date Joined Feb 2014
Total Posts : 40
   Posted 2/24/2014 3:13 PM (GMT -6)   
Day 25.
Feel great still no sides.
See my specialist and reload my Rib and Sol script on Thursday 8.15 am.Start month 2 .
Get the results from my first blood test.I don`t think they did a viral load.I think that will be done on the next one which they will draw on Thursday.
I`ll be in touch.

steve-ca
Regular Member


Date Joined Feb 2014
Total Posts : 207
   Posted 2/24/2014 3:19 PM (GMT -6)   
That's great! Glad to hear no sides continues ahead of the day I'm on :)
One thing I'm wondering- today is your day 25, and you see your doctor on day 28. You will have taken your last Sovaldi that day.
Do they actually have it in stock to pick up on that exact day?

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1050
   Posted 2/24/2014 4:42 PM (GMT -6)   
This is so neat to see no sides and treatment threads popping on board. Even though I rarely post to your thread, I am watching your journey. Forge onward! Big hugs,
themiz

Wife of themister, a fine man living with ESLD.
Eradicated Hep C geno 3a SVR July 2012
Transplant list, Mayo AZ- July 11, 2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.”
Kahlil Gibran

944s
Regular Member


Date Joined Feb 2014
Total Posts : 40
   Posted 2/25/2014 7:39 AM (GMT -6)   
Read the calender wrong. I see my doctor on the 27th .Sorry my bad.

944s
Regular Member


Date Joined Feb 2014
Total Posts : 40
   Posted 2/27/2014 10:06 AM (GMT -6)   
Back from my end of week four Dr appointment.
Hemo down a bit but not critical.She expected a drop.
Ultra sound results on liver were good too.
Platelets #`s were good as well
No viral load check until the end of treatment.
I have to give blood every two weeks until end of treatment. My Dr. is happy with the progress and doesn`t want to see me until treatment is finished in 8 weeks .
I asked what my viral load was before treatment. She said it was 3000.Very low.She said that they wanted to treat the HCV right away to help my liver which is at stage 3.
So all good today and a lot off my shoulders.

steve-ca
Regular Member


Date Joined Feb 2014
Total Posts : 207
   Posted 2/27/2014 12:55 PM (GMT -6)   
Glad to hear the news is all good! You had too much hemo, anyway :)

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 3899
   Posted 2/27/2014 1:04 PM (GMT -6)   
Hooray for thr Sofaldi team!

Maybe we need shirts!

ML
MamaLama
Forum moderator - Hepatitis


Partner received liver transplant May 1, 2011, Jackson Memorial, Miami, FL

944s
Regular Member


Date Joined Feb 2014
Total Posts : 40
   Posted 2/27/2014 1:27 PM (GMT -6)   
Ya t-shirts?
Interesting thing my Dr mentioned was this new one dose HCV med their working on. Looks like it may become reality sooner than we might think. Time to load up on that pharm stock maybe ?

dank
New Member


Date Joined Mar 2014
Total Posts : 1
   Posted 3/31/2014 1:58 PM (GMT -6)   
2 /12 weeks to go, after 4 weeks viral load down from 1m to 25 (amazing), AST & ALT normal for the first time in 3 years, only side effect is getting winded when exercising or climbing stairs, considered normal thanks to the riba depleting my red bloood cells. Wife says I seem a little more tired than normal but I really don't notice it.
 
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