Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004. Now, on interferon and ribavirin. Hepatitis C is back.
sbell23 - Congratulations on your success with hep treatment!
FFP is Fresh Frozen Plasma. It helps more with the anemia that liver patients tend to suffer. But, Mark seemed to get both FFP and albumin IVs, so I mentioned them both.
I understand your frustration. I've done some 'teaching' myself, and not in small towns. Would it create huge problems if you were to ask the small town doctors to contact the city doctors, or vice versa? Or is there a patient advocate at the hospital who could intervene on your behalf? Not everyone is open to being taught by a layman; believe me, I know. But, perhaps, they could 'save face' by consulting with your hubby's other medical team.
Obviously, what matters is getting the proper treatment, keeping hubby as healthy as possible, and reducing your stress.
God Bless. Let us know if there is any support we can offer.
Maggie, welcome to the forum. You might want to start a new topic--copy what you have written and paste it to a new topic post. There is more chance of people seeing it that way, rather than tacked onto someone else's topic.
Congrats on your sobriety. That is the very best thing you can do for your liver. Diet should be mostly complex carbohydrates (rice, pasta), fresh fruit and veggies. Animal protein is hard to digest, but try fish and chicken or turkey.
SBell, draining of ascites is paracentesis.