autoimmune hepatitis

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kiml
Regular Member


Date Joined Sep 2005
Total Posts : 38
   Posted 9/5/2005 10:52 AM (GMT -7)   
I was diagnosed with aih about 5 years ago, when i had a liver biopsy. my liver enzymes have been just about normal & i have had no symptoms at all. about 2 months ago, i was having upper right quadrant abdominal pain. it felt like a lot of pressure & hurt more when i sat down. i had an ultrasound, hyda scan, xray & everything was normal. the pain went away. i just saw a liver specialts & the day after the pain came back. the specialist did lots of bloodwork & has not reccommended any treatment at this time. I was wondering if anyone has experienced this right sided pain? does it come & go? what can be doen for it? also, has anyone ever taken cyclosporine for aih. i am scared to death of steroids. please email me at............kimlevy@specsonline.com. i am really wanting to talk. thanks, kim

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 9/6/2005 6:57 PM (GMT -7)   

Welcome kiml,

I really don't know much about AIH, but I wanted to respond to your message.

My best guess would be that your liver may be inflamed, which will cause differing levels of discomfort in the area of your liver.  Mark, my fiance, still gets pain, even after transplant.

There are pain medications that might help.  Unfortunately, most everything the doctors can prescribe are processed through the liver, so you do have to be careful.

As I understand it, corticosteroids do have some side effects. (Mark was a little energetic and mouthy when he was taking Predisone, after his transplant. I did consider strangling him a couple of times, but it got better.  tongue  

There's a good article at http://digestive.niddk.nih.gov/ddiseases/pubs/autoimmunehep/index.htm .  (I believe this is the same article that Jennifer posted in another "Autoimmune Hepatitis" thread.) It explains steroids, side effects, symptoms of the disease, and treatment options.

Do you have family or friends nearby to help?  These medications can make you pretty miserable. You should have someone help you with cooking and errands and the like.

As I say, I don't really know about AIH the way I do ESLD, cirrhosis and their complications.  But if you need to talk or rant or anything, just post here.  I am trying to check in at least once a day.

God Bless and stay strong.


DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

kiml
Regular Member


Date Joined Sep 2005
Total Posts : 38
   Posted 9/7/2005 6:46 AM (GMT -7)   
Hi DJ,
Thanks so much for the response. When i went to the specialist last week, she said i was in stage 2, when i had the biopsy from for years ago. . I just got some blood work back & now they say that they are not sure if i have AIH. (still waiting on more blood work). my question is if i dont have aih was is my liver inflammed. i also spoke with the nurse & thankfully at this time, i probably will not need any meds. Just a lot of monitoring & another liver biopsy. Good luck to you & your family.

kim l.

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 9/13/2005 9:31 PM (GMT -7)   
kiml,
 
I answered in your other post, but you have a question here that's unanswered, too.
 
Any liver disease can cause inflammation (swelling) in the liver, which will make you uncomfortable.  It sounds, based on your other thread, that the doctors are doing their best to find out what's aggravating your liver.
 
I hope the ursodiol helps.
 
Let us know how you're doing or if you have any questions or problems that we can help with.
 
God Bless.
DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

nicole j
New Member


Date Joined Mar 2006
Total Posts : 5
   Posted 3/21/2006 7:55 AM (GMT -7)   
Kimi,
I have the same problem. I complain about the right upper quadrant pain, nausea, constipation and even fecal urgenency.I go from one extreme to the other. Like you they have done ultrasounds, blood work and everything but it is normal. The only the they can say is that I should not be feeling this way. I forgot to mention I have AIH. I was diagnosised at the age of 26, I will be 29 in August. I am single never been married and I don't have any children. I am turning in circles trying to get some answers. I suppose to see a new and any information I recieve I will gladly pass on.You are not alone. Even with normal LFT's I still have symptons. It is hard because no one seems to have any answers for us. I just wanted to let you know you are not alone.
Nicole
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